When K.E.J. was 8 years old, she suffered a traumatic brain injury in a car accident.
When she was 26, her guardian attempted to obtain a court order to have the young woman sterilized. K.E.J., as she is known in court documents to protect her privacy, had no idea.
Before Tuesday, when Gov. Pat Quinn signed into law a measure that would require court orders approving the sterilization of people with disabilities, guardians could take steps to have their wards sterilized without the individual's consent.
Rep. Kathy Ryg (D-Vernon Hills), the original bill’s chief sponsor, says the law shows how society has evolved, citing the recent obituary of Eunice Kennedy Shriver, whose sister Rose was mentally disabled and had a lobotomy.
She says it also gives all parties protection under the law.
“I think it provides the due process that really protects all parties, most particularly the individual, but also the family, the guardian and the doctor,” Ryg says. “Once it was brought to people’s attention, it became clear there was a gap in the due process.”
“This is so important. All women need, deserve and should have all their options as to whether to become a parent or not to become a parent available to them,” says Shelley Davis, vice president of programs and advocacy for Chicago Foundation for Women.
In the case of K.E.J., her guardian’s request was denied twice. K.E.J., did not find out about her guardian's attempt to have her sterilized until she consulted with Equip for Equality on another matter. Court records were then uncovered.
Before Quinn signed the bill, Illinois was one of 16 states that did not require a court order to perform such a procedure. Other states in the Midwest that do not require a court order include Missouri, Iowa and Nebraska.
Leah Bartelt, staff counsel for the American Civil Liberties Union of Illinois, says the law adds another layer of oversight for guardians, who are already scrutinized by the courts.
“Bringing the court in to assess whether … the ward would be able to make the decision on their own is an important step,” she says.
Under the law, courts would assign an agent to meet with the ward to discuss the petition for sterilization. After consulting with the ward, reviewing his or her mental capacity and ensuring he or she understands the petition, the court will make a decision.
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Quinn Signs Sterilization Bill
it's about time
ReplyDeleteIt amazes me that society even considers sterilizing disabled people. I thought that ended in the last decade.
ReplyDeleteThank you for this article, NASGA, it was an eye opener for me.
First we take away their power to sterilize the disabled --- then we'll take away their power to execute them as well.
ReplyDeleteThank you, Gov. Quinn. People with disabilities must be protected, especially from bad guardians.
ReplyDeleteI hope KEJ's guardian was removed for the attempt to sterilize KEJ.
ReplyDeleteWait - Anonymous 2 makes a good point.
ReplyDeleteHere's a law that prevents sterilizing disabled people but there's no law to prevent terminating them (as in Gary Harvey).
I'm not saying that sterilizing anyone is right; it certainly isn't. But killing them is even more wrong.
But, perhaps Gov. Quinn should be looking at passing a bill to protect disabled people from their guardians terminating their lives as well.
Any protection for the disabled or elderly is welcomed.
ReplyDeleteIt's a crying shame we have to make legislation to protect people from these things, though.
Out and Out Abuse
ReplyDeleteNothing short of Lobotomy
for a woman who just 'wants and can stil get around and live'.
www.SoSorryMom.com