Caring for a loved one with a serious medical condition can be
overwhelming at times, especially with other obligations at work and
home.
So, it’s important for caregivers to remember to tend to their own physical and emotional health needs, too.
An
informal caregiver, who often is an unpaid family member or friend
helping a relative or someone with an ongoing illness, is a role that’s
expected to expand in the years to come as the baby-boom generation
ages. In the United States, the cost of caregiving for those with heart
disease and stroke is projected to increase from $61 billion in 2015 to
$128 billion by 2035.
As this happens, more Americans will need coping strategies.
“It’s
a time thing,” said Dr. Barry London, the internal medicine chair at
the University of Iowa Carver College of Medicine. “It can expand to
really consume your life.”
Make sure others are available to help so the caregiver gets some relief and avoids exhaustion.
Those
who are in the caregiver role all the time, every day of the year, such
as a spouse, may become particularly isolated from an outside life and
face the most pressure. A spouse, London said, is present and invested
in helping the patient, which can be trying for the caregiver but also
good for the patient.
A study in the Journal of the American Heart
Association found that when patients received a heart-pumping device
known a left ventricular assist device, or LVAD, the patients reported a
dramatically improved quality of life, while their caregivers initially
suffered additional stress.
“There’s no easy end in sight a lot
of times” for the caregiver, London said. “There’s a period of, ‘Oh my
God, what have I gotten myself into?’”
When a caregiver must
operate or oversee medical equipment there’s added worry about something
going wrong, possibly even resulting in the patient dying, London said.
The more a caregiver can learn about the medical condition, the more
confident he or she can feel in assisting.
A survey from the
nonprofit foundation Transamerica Institute of more than 3,000
non-professional caregivers in 2017 found that 55 percent of caregivers
said their own health took a back seat to the health of the recipient.
Caregivers
spent a median of 50 hours per month caring for someone, and 36 percent
of caregivers spent 100 or more hours per month, according to the
Transamerica Institute survey. More than half were also employed
full-time, and most of those had to make some type of adjustment at work
because of caregiving duties.
But
finding time to take breaks is important, London said. Dedicate time
during the day or week to exercise or find something else that’s fun to
do with the limited time available. And maintain outside relationships
so the role doesn’t become a “social drain,” he said.
Eating
nutritiously, getting enough sleep and receiving regular medical
checkups are all important. Caregivers also should pay attention to
warning signs of depression and talk to health care providers if they
need mental health help.
Organizations including AARP, the
American Heart Association and the National Alliance for Caregiving
offer useful caregiver information, including tips about medical
conditions, legal documents and health.
The help is out there
informally, in the form of nurses and others who interact with patients,
but London believes more should be done in the future to formally
support the needs of caregivers.
He also emphasized the importance of the rapport between the caregiver and the care recipient.
“The better the relationship between the patient and the caregiver,” he said, “the better it is for both of them.”
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Caregivers must safeguard their own health to help others
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