Showing posts with label learning disability. Show all posts
Showing posts with label learning disability. Show all posts

Saturday, May 3, 2025

My sister has a learning disability and her husband squandered $100,000. How do I protect her after I'm gone?

By Quentin Fottrell

'She always worked part-time in a grocery store or at stock-clerk jobs until COVID. He does Instacart and similar deliveries for work.'

Dear Quentin,

I'm 71 and widowed, with no other family besides a sister, who is 67, and brother-in-law in another state. Our relationship is good unless there's money involved.

My sister has a learning disability, and she has been taken care of her entire life. It is unfortunate that she was never able to finish high school. She always worked part-time in a grocery store or at stock-clerk jobs until the pandemic. He does Instacart and similar deliveries for work. He refuses to get a different, better-paying job, which would be hard to do with only a high school diploma and resistance to working full-time. His only work experience has been in retail.

He is terrible with money, spending every dollar. For example, a $100,000 insurance policy from our uncle was squandered in less than a year. They live in a two-bedroom condo in a very desirable area, which our late mother put in a trust for her, as she knew they wouldn't be able to survive otherwise. For the first 20 years, they lived there rent-free until the trust left by our mother ran out.

They now grudgingly pay what amounts to about a third of comparable area rents to cover taxes, insurance and monthly condo fees. I am the trustee. My brother-in-law is not amused by this arrangement, to say the least, and wants me to sell the condo and give him the money to "invest." No way that's going to happen, as I was entrusted by our late mother to do everything I could to keep a roof over my sister's head.

Contemplating an annuity

Considering the situation, I am most concerned with how to protect my sister for the rest of her life. When I pass, hopefully not in the too-near future, I will divide half the sales proceeds of my house among various charities and small amounts for friends, and half of my estate will go to my sister. I could potentially leave her $500,000. Putting that in a bank account is out of the question.

Although annuities have high fees, this is the only idea I can think of. Can an annuity be set up to stipulate that no early cashing out is possible? Alternatively, I'm considering a gift to a well-established charity, with the charity buying the annuity and just sending her the check each month. It would be an immediate payment upon purchase of the annuity, and payable for my sister's lifetime.

The only remaining item in the trust is the condo, which will be given to my sister upon my death, at which point the trust will be dissolved. Due to our respective ages and her better health, I believe she will outlive me. I am generally financially educated and have always been chosen as executor and trustee of all family businesses. But I don't want to make a mistake here. Leaving her an annuity is the only plan I can think of.

The Sister


Dear Sister,

That lost $100,000 could save your sister $500,000.

You can learn from the mistakes of the past. Not giving your sister cash or funds that can be easily accessed or liquidated will help protect her from further financial exploitation or mismanagement by her husband. Whether he is incompetent, unlucky, stubborn or simply reckless when it comes to money, he should not have access to your sister's inheritance. In addition to the choices you outlined - annuities and a charitable trust - I favor a special-needs trust. It's more flexible and gives you or the trustee more control.

An attorney will help ensure that your sister's condo remains secure in a trust. Like a dog let loose in a sausage factory, her husband seems intent on finding and devouring any assets that he can get his hands on. Not everyone starts out in life with the same advantages (or disadvantages), so it's hard to criticize him for working as a delivery man for Instacart, especially without knowing more about his background and his story. But people who are looking to make a quick buck often feel financially stretched, and that's when mistakes occur.

Avoiding the five-year lookback

Remember, if your sister is now or at some point becomes a Medicaid recipient, there is a five-year look-back period for the program to review whether an individual divested themselves of assets in order to qualify for benefits. Medicaid is a needs-based program: To be eligible, a person must have no more than $2,000 in countable assets, which includes bank accounts and investments, and no more than $2,829 a month in income. In that case, one option would be a special-needs trust overseen by a charitable organization.

If your sister is a Medicaid recipient and received a $500,000 inheritance from you, she would have to report it to her state Medicaid agency. "Medicaid will view the inheritance either as income and/or assets, depending on when the inheritance was received and how long it has been since receipt," according to the American Council on Aging. "While a Medicaid beneficiary generally has 10 calendar days to report the receipt of an inheritance, this timeframe could be shorter or longer, depending on the state."

Managing a special-needs trust

According to the Special Needs Alliance, a legal-planning and advocacy organization for people with disabilities, trustees must handle disbursements carefully, "ensuring they do not jeopardize the beneficiary's access to critical government assistance like Social Security Insurance and Medicaid. Special-needs trust funds can cover expenses that improve the beneficiary's quality of life, such as medical care not covered by Medicaid, adaptive medical equipment, home and vehicle modifications, and recreation."

Setting up an irrevocable trust before the five-year look-back period removes assets from your legal ownership. A Medicaid Asset Protection Trust protects the assets of a person who wishes to apply for Medicaid, as long as this is done before the look-back period. Such a trust can be legally and financially complicated, however, and Medicaid can challenge it. These trusts can include stocks and bonds, bank accounts and CDs, as well as secondary properties such as vacation homes and rental homes. But with a MAPT, the person gives up control of those assets.

Annuities, red tape and fees

People who are worried about the stock market, President Donald Trump's tariffs and the prospect of a recession in 2025 have been drawn to annuities (perhaps encouraged by their advisers) in search of safe havens. For the third year running, U.S. annuity sales set an all-time record, according to the Limra Secure Retirement Institute. Total annuity sales hit $432.4 billion in 2024, 12% higher than the record set the previous year. Lower interest rates in the second half of the year undermined demand for fixed-rate deferred-income annuities, it said.

Annuity fees can be as much as 10% of the value of the contract. "Typically, the more complex the annuity, the higher the commission," Annuity.org says. "The commission on a 10-year fixed index annuity ranges from 6% to 8%." Annuity costs can include commissions, administrative fees, mortality expenses and surrender charges. Early withdrawal fees are punitive. If you withdrew $20,000, for instance, you could pay 5% of that or $1,000, which applies to the entire annuity withdrawal amount. You also incur a penalty if you withdraw before age 591/2.

Proceed confidently, if cautiously, with the help of legal counsel.

You can email The Moneyist with any financial and ethical questions at qfottrell@marketwatch.com, and follow Quentin Fottrell on X, the platform formerly known as Twitter.

The Moneyist regrets he cannot reply to questions individually. 

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My sister has a learning disability and her husband squandered $100,000. How do I protect her after I'm gone?

Friday, January 20, 2017

Lack of College Disability Information Prompts Congress to Introduce the RISE Act

The transition to college is a big challenge for kids with learning and attention issues. A recent survey on Understood suggests one reason why—parents can’t find information on college accommodations and services.

The survey asked parents of high school students and graduates with learning and attention issues about their experiences with college. Over 1,200 parents answered. The results were concerning:
  • Only 11 percent of parents of high school students who are seeking college accommodations clearly understand the process.
  • Nearly three-quarters (72 percent) of parents of high school students seeking college accommodations have found it difficult to find information about disability services at different colleges.
And the biggest reason kids aren’t going to college? Parents can’t find a program that fits their child’s needs, according to the survey.

This is a timely issue as more students with learning disabilities are graduating from high school than ever before. In 2015, a record 64 percent of students with disabilities graduated from high school. That’s up from 59 percent in 2011.

But many of those graduates aren’t heading to college. According to the 2014 State of LD, a publication from Understood founding partner the National Center for Learning Disabilities (NCLD), only 21 percent of students with learning disabilities attend a four-year college. That’s about half the rate of the general population (40 percent).

Christina Paternoster is a Pennsylvania mom of a college freshman with ADHD, dyslexia and dysgraphia. Earlier this year, her son went through the college application process, and she agrees there’s a problem.

“Finding a college that’s a good fit for my child hasn’t been easy,” she says. “I know my family is not alone in this.” Paternoster has used Understood to connect with other parents to help her better understand the process.

Part of the problem may be that students are transitioning from high school, where kids have IEPs, to college, where there are no IEPs. Federal special education law doesn’t apply to college students, so students have fewer rights.

At the same time, students may not be aware of the rights they do have. Both the Americans with Disabilities Act and Section 504 apply to college and provide for accommodations.

Congress is aware of the problem and is working on a solution.

This week, Senators Bob Casey (D-PA), Orrin Hatch (R-UT) and Bill Cassidy (R-LA) introduced the Respond, Innovate, Succeed and Empower Act (RISE Act). This Act would do three things to help students and families:
  1. Provide more funding for a one-stop resource for information about disability services in college.
  2. Require colleges to accept an IEP or 504 plan as evidence of a disability. This would make it easier and less costly for students to get accommodations.
  3. Support a technical assistance center to highlight strategies that help students with disabilities succeed in college. The center would also train college faculty on those strategies.
Advocacy groups like NCLD and the Learning Disabilities Association of America, another Understood founding partner, are fully behind the RISE Act.

“We have heard from parents and students about the barriers they face in college and I’m proud that we have elevated this issue in the U.S. Senate,” said Mimi Corcoran, president and CEO of NCLD. “We applaud the bipartisan leadership of Senators Casey, Hatch and Cassidy as we work to ensure that colleges and universities become more welcoming environments for diverse learners.”

It’s too early to know if the RISE Act will become law. The bill would need to pass the Senate and House first, before being signed by the president. NCLD, LDA and other groups in Washington, D.C., are working to move the legislation forward.

In the meantime, Paternoster and her family are navigating the system as best they can. “My son just started at Westminster College,” she says. “Right now, the most important thing is making sure there is a good support network for him. We want him to succeed and enjoy the experience.”

Full Article & Source:
Lack of College Disability Information Prompts Congress to Introduce the RISE Act