Individuals with Down syndrome are at especially high risk of
hospitalization and death from the coronavirus, researchers say, adding
to evidence that the virus is particularly hard on those with
developmental disabilities.
People with the chromosomal disorder are four times more likely than
others to be hospitalized due to COVID-19 and they face a 10 times
greater risk of dying from the virus.
The findings, published in a research letter
this month in the journal Annals of Internal Medicine, are based on a
review of medical records for 8.26 million adults in England between
late January — when the virus first emerged in that country — and June.
The group included 4,053 people with Down syndrome and 68 died during
the study period, nearly 40% of them from COVID-19. By comparison, only
20% of the 41,000-plus deaths in people without Down syndrome were
related to coronavirus.
Researchers from the University of Oxford, the University of
Nottingham, the London School of Hygiene & Tropical Medicine and
University College London said that the higher risk did not seem to be
influenced by age, sex, body mass index, smoking status or alcohol
intake.
The increased risk was estimated after researchers said they adjusted
for “cardiovascular and pulmonary diseases and care home residence,
which our results suggest explained some but not all of the increased
risk.”
Those with intellectual disabilities other than Down syndrome appeared to have a much lower risk, according to the findings.
Down syndrome is “associated with immune dysfunction, congenital
heart disease, and pulmonary pathology and, given its prevalence, may be
a relevant albeit unconfirmed risk factor for severe COVID-19,” the
researchers wrote.
Information about the heightened risk for people with Down syndrome
from COVID-19 should be used by “public health organizations,
policymakers, and health care workers to strategically protect
vulnerable individuals,” they indicated.
Currently, information
from the Centers for Disease Control and Prevention about who is at
increased risk from COVID-19 does not specifically mention Down
syndrome.
“Most people with developmental or behavioral disorders are not
naturally at higher risk for becoming infected with or having severe
illness from novel coronavirus (COVID-19),” the CDC says. “However,
people with developmental or behavioral disorders who have serious
underlying medical conditions may be at risk of serious illness.”
Nonetheless, this is not the first research to suggest that COVID-19 could be more of a danger to this population. A study
out earlier this year indicated that people with developmental
disabilities are significantly more likely than others to die if they
contract COVID-19.
Another report
out just this week looking at data from California, Colorado, Indiana,
Maryland, New Jersey, New York, Pennsylvania and Virginia found that
people with intellectual and developmental disabilities were no more
likely than others to contract the coronavirus. But, 12.3% of those with
the disabilities who got COVID-19 died compared to 6.7% of virus
patients in the general population.
TOWN OF CHENANGO (WBNG) -- On Oct. 26, the Broome County Sheriff's
Office says two people were indicted following an investigation into the
death of 23-year-old Kayla Kunkel, who lived with autism.
56-year-old Renee Kunkel and 61-year-old Edward Kunkel were indicted in the following charges:
Manslaughter in the second degree, a class C felony
Endangering the welfare of an incompetent or physically disabled person in the 1st degree, a class A felony
Two counts of endangering the welfare of a child, a class A misdemeanor
On June 29, 2019, the sheriff's office says deputies and EMS
responded to 40 Theresa Blvd. in the town of Chenango for a person who
was not breathing. They found Kayla Kunkel and CPR was performed on
her.
Kayla was taken to Wilson Hospital where she died.
The sheriff's office says its investigation determined Kayla was not
capable of caring for herself and her death was the result of
"inadequate guardianship."
Authorities noted two children were also found in the residence.
They say the two children were living in unsafe and "grossly" unsanitary
living conditions.
More information about the children was not released.
Lllian DeHart, 92, celebrates her arrival home and her
great-granddaugher Grace Bhatia’s fifth birthday along with her other
great-granddaughter Nora (left) at her son’s home in Loudon on Friday,
October 16, 2020. GEOFF FORESTER—Monitor staff
By TEDDY ROSENBLUTH
The family decision to take Lilian DeHart out of her nursing home was an easy one.
They
convened a family meeting on Skype during one of Lilian’s designated
call times and presented the risks of leaving the protected bubble of
masks and rigorous COVID-19 testing. If she were somehow exposed to the
virus, it could be fatal. They asked her if she still wanted to leave
the nursing home.
“Absolutely,” she said.
As the coronavirus ravaged nursing
homes in New Hampshire, facilities adopted new policies to protect their
residents – they limited visitations, ended group activities, and, in
some cases, confined residents to their rooms for weeks at a time. But
as families watched their loved ones struggle in their isolated, albeit
safe, new environments, some questioned at what point their quality of
life inside the facilities was not worth protecting. A couple made the
decision to take their loved ones out of the nursing home altogether.
“You
are saving these patients from death by COVID but you’re killing them
from a broken heart,” said Pat DeHart, Lilian’s daughter-in-law.
DeHart,
92, who lived in Merrimack County Nursing Home, was on hospice for a
bad heart when the pandemic struck. The isolation had taken a toll on
her. Since the start of the pandemic, she had lost 32 pounds, which Pat
DeHart attributes at least partly to the social isolation.
Lilian
DeHart’s family members did their best to keep her company. They
attended their weekly Skype call religiously. In July, Pat DeHart,
Lilian’s daughter-in-law, and her husband drove 700 miles for two
20-minute outdoor visits. However, after new guidance released by the
state required those coming from outside New England to quarantine for
two weeks, it became infeasible for Pat, who lives and works in New
Jersey, to visit.
“Her world is getting smaller and smaller,” she said.
The
DeHart family planned out Lilian’s vacation from the nursing home –
they hired a private, wheelchair accessible van to pick her up,
carefully planned out visiting times for family members and pastors to
visit and soon, she was sitting snugly in a brown Lazy Boy in her son’s
living room in Loudon.
Lilian stayed there for a week, where she
ate lobster rolls and played scrabble with her family. One of the
hospice workers, who came by to help her shower and administer
medications, commented on how happy she seemed.
Tonya Dubois, the
director of nursing at Hillsborough County Nursing Home, said a couple
of families at her facility have opted to take their family members out
of the home.
“Some of the patients say ‘I don’t care if I die of COVID, I don’t want to be isolated,’ ” she said.
Especially
as the holidays approach, Dubois understands why some families are
making this decision. As cases rise in New Hampshire, she isn’t sure how
the nursing home is going to be able to celebrate. She worries many
will go through their last holiday seasons without seeing their
families.
In a typical year, about 300 families would come into
Merrimack County Nursing Home for a holiday meal. Though legally there
is nothing preventing families from taking their loved ones out for the
holidays, Matt Lagos, an administrator at Merrimack County Nursing Home,
said he can’t recommend it.
Anyone who leaves the facility has to
quarantine for two weeks when they return, which quickly burns through
personal protective equipment which they could need in case of an
outbreak.
Furthermore, even after rigorous testing and a 14-day
quarantine, allowing someone from the outside world in risks bringing in
the virus.
“We see how quickly the virus flies through facilities,” he said. “That’s something that keeps me up at night all the time.”
Joanne
Miles Thomas looks through a screened window at her father, George
Miles Sr., a resident at a facility in Rochester, N.Y., on Oct. 10.Mariana Henninger / NBC News
By Suzy Khimm
The moment that Tammy Roberg stepped off the elevator, she could hear her father’s booming voice.
Chester
Peske, 98, loved to sit in the lunchroom at Copperfield Hill and talk
to the other memory care residents about everything from the weather to
the history of the highway that connected his hometown to downtown
Minneapolis, 6 miles away. While he had Alzheimer’s disease, Peske still
recognized his children when they came to the Robbinsdale, Minnesota,
facility for weekly visits.
“He would talk and talk and talk,” Roberg said with a laugh.
Then, in March, there was almost no one that Peske could talk to.
When
the pandemic hit, long-term care facilities across the country,
including Copperfield Hill, shut their doors to visitors and largely
kept residents to their rooms, suspending most group activities and
communal meals to protect residents from Covid-19. Peske was hard of
hearing, so phone calls were a struggle. Roberg’s only lifeline to her
father was the staff of the facility, who reassured her that he was
doing well.
The first sign of a problem came in mid-May
when her father tested positive for Covid-19. Roberg prayed for his
health, but was relieved when his case appeared to be asymptomatic.
Then
in late May, Roberg got another alarming call from the facility. It
wasn’t the virus, they said — something else was wrong. “His head was
down into his chest, and he was sitting slumped in his wheelchair,” her
father’s aide said, according to Roberg. “He was not his perky, chatty
self.”
Roberg later learned that her
father, who’d always had a healthy appetite, had been losing weight.
Even more isolated in quarantine after his Covid-19 diagnosis, he was
becoming quiet and disengaged, even with the staff members who tended to
him, a nurse later told her.
He still had
no coronavirus symptoms — he was just withdrawn, according to Roberg and
an administrator at Copperfield Hill. Roberg was hopeful that he would
bounce back with more hands-on attention from the facility. But four
days later, on June 2, she got another call: She should come right away.
Her father was dying.
That morning, Roberg
flew in from Wisconsin and met her brother in the parking lot of
Copperfield Hill. Together they walked into the entryway of the
facility, where they were temperature-checked, and then put on gowns,
gloves and face shields. A nurse finally brought them up to her father’s
floor and opened the door.
“Oh wait a minute—” she said, stopping short. “I think he’s gone.”
Roberg
gasped when she saw her father’s gaunt body lying on the bed. After
three months of separation, she missed her only chance to see her father
by minutes.
His death certificate listed
the cause of death as the progression of Alzheimer’s disease and “social
isolation / failure to thrive related to COVID-19 restrictions.”
Social
isolation was listed as a contributing cause of death for at least nine
other Minnesotans — almost all long-term care residents — from June to
September, according to state death records; no deaths in the previous
two years cited social isolation as a cause.
One
of the nurses who treated Peske later described his deterioration as a
burning candle with no oxygen left to draw from the air. It was as if a
light had gone out, Roberg said: “He couldn’t survive from being
isolated.”
Tammy Roberg with her father, Chester Peske.Courtesy of Tammy Roberg
The
effort to shield elderly, frail and disabled residents from the
coronavirus has created another wrenching health crisis: The confinement
meant to protect the most vulnerable is also threatening their lives.
“The
isolation is robbing them of whatever good days they have left — it
accelerates the aging process,” Joshua Uy, associate professor at the
University of Pennsylvania Perelman School of Medicine, said.
“You
see increased falls, decrease in strength and ability to ambulate. You
see an acceleration of dementia, because there is no rhythm to your day.
There isn’t a single part of a person’s life that isn’t affected.”
With
help from staff members, a nursing home resident stands to wave to
family members below at St. John's Home in Rochester, N.Y., on April 24.Tina MacIntyre-Yee / Rochester Democrat and Chronicle
While
there is no comprehensive tally of elderly people dying from causes
linked to social isolation and confinement, evidence is mounting that
restrictions related to Covid-19 are taking a toll on their health,
according to a review of recent research and interviews with medical
experts and dozens of families across the country. The phenomenon is far
harder to track than the number of Covid-19 deaths linked to long-term
care facilities — 84,000 as of early October, according to the Kaiser Family Foundation — as it is unusual to list isolation as an official cause of death. But the harms are still real, experts say.
One recent study
of a Chicago-area nursing home found that from December 2019 to the end
of April 2020, two-thirds of the residents had lost weight, in some
cases dramatically — a change that researchers attributed to reduced
social interaction, the cessation of family visits and schedule changes
due to the pandemic.
Confinement, social isolation and the lack of external stimulation are also fueling cognitive decline and depression,
which in turn increase the risk of high blood pressure, heart disease
and stroke, according to Dr. Louise Aronson, a geriatrician and
professor of medicine at the University of California, San Francisco.
“Sometimes
the doors to their rooms are open, and you just see someone sitting in a
chair with tears running down their face,” Aronson, who is assisting
San Francisco’s response to the pandemic in long-term care facilities,
said. “People ask me, ‘Is this the rest of my life? If so, I don’t want
to go on.’”
Do you have a story to share about how the coronavirus is affecting nursing homes? Contact us
While most states have begun allowing
some form of routine in-person visits for long-term care facilities,
the guidelines vary widely, and many restrictions remain — not only to
protect residents, but also vulnerable front-line staff members, many of whom are low-wage Black and Hispanic workers. Some states and facilities are only allowing limited indoor visits,
and colder weather is already curtailing outdoor visits. Many nursing
homes have resumed communal dining and group activities, but still
require residents to remain distanced from one another. And a single
case of the virus can put a facility back on lockdown for weeks.
The
threat from the pandemic has not receded: On Friday, the U.S. hit a new
record number of Covid-19 cases, and nursing homes from Massachusetts to Wisconsin
are reporting new outbreaks. At the same time, policymakers need to
weigh the competing risks, said David Grabowski, a health policy
professor at Harvard Medical School, who recently served on an
independent federal commission that recommended expanding in-person visitation at long-term care facilities.
“We’ve
locked these older adults in their rooms in the name of safety without
thinking about the unintended consequences here,” Grabowski said. “In
many respects, the side effects are worse than the potential harm of a
slightly higher risk of infection.”
Gloria
DeSoto, 92, visits with her family in their car through a window of the
Hebrew Home at Riverdale in Bronx, N.Y., on June 11.Seth Wenig / AP file
Strict,
prolonged lockdowns can dramatically alter residents’ health. Uy said
that he saw some patients rapidly lose the ability to perform basic
tasks — such as standing, feeding themselves and swallowing safely —
while confined to their rooms. Physical therapy and other rehabilitation
services have also been cut back because of the pandemic.
“Until
the pandemic, ‘sudden frailty’ would have been an oxymoron,” Aronson
said. “Normally, it would take months to years, and we are now seeing it
in weeks.”
But while deadly coronavirus
outbreaks at nursing homes tend to grab headlines, the slower-moving
health crisis inside these facilities caused by social isolation and
confinement remains largely invisible.
Unlike
cases of Covid-19, it is not always clear when a resident’s health is
deteriorating because of pandemic-related restrictions, given the
complex medical issues that brought them to the facilities in the first
place. “Failure to thrive,” for instance, is often characterized by
weight loss, reduced appetite and lower activity levels — symptoms that
could also be linked to other underlying health conditions. But the
biggest marker is psychological, and closely linked to isolation.
“It
means, they give up,” said Dr. Joseph Ouslander, a professor at Florida
Atlantic University’s Charles Schmidt College of Medicine. “You do
everything to get them to participate, to get them to eat, and despite
that they continue to go downhill.”
Beverly
Noody used to drop by her mother’s assisted living facility in upstate
New York at least twice a week. The first thing she would do: Walk over
to her mother’s chair to see that her feet were propped up.
Barbara
White, 94, had congestive heart failure, so her limbs tended to swell
from fluid buildup. She was supposed to keep her legs elevated when she
was sitting down, and to get up and about a few times a day. But her
daughter knew that wouldn’t always happen unless she made sure it did.
“She never had her feet up when I came to visit,” Noody said. “If her
ankles and knees were swollen, I would have noticed it.”
Two
months into the pandemic, Noody got a call that her mother was en route
to the hospital because of dangerous swelling in her legs. She
recovered, but the same thing happened again in June, Noody said. She
could no longer use her walker to get around safely, as she kept
falling. Her condition ultimately deteriorated so much that she was
moved out of assisted living and into the adjoining nursing home,
Premier Genesee, where she could be supervised around the clock.
Noody
had always thought of her mother as the no-nonsense type, true to her
German roots. But in July, when she was helping to move her mother’s
possessions into the nursing home, she found a letter that White had
written during the pandemic, but hadn’t given her.
"Beverly,
I want to come home for good. I don’t know how to get out of here,” her
mother wrote. “I would do anything to get away. I was told today this
was forever. Do you know how I can get away?”
Barbara White with her daughter Beverly, her grandson Brad, and her great-granddaughter Hunter.Courtesy of Beverly Noody
New
York was the first state to ban visitors from nursing homes in
mid-March, and other states quickly followed suit. The virus has still
taken a devastating toll on residents, many of whom were highly
vulnerable because of their advanced age and underlying health
conditions. At least 6,600 long-term care residents in New York have
died from Covid-19, an undercount that doesn’t include those who died after they were taken to the hospital.
While nursing home cases and deaths have ebbed
since the spring, New York has remained cautious about reopening
long-term care facilities to visitors. In July, the state announced that
limited outdoor visits and residential activities could resume, but
only after facilities were free of Covid-19 cases for 28 days.
Premier
Genesee was preparing to begin outdoor visits under the state’s new
guidelines when a staff member tested positive in late July, pushing
back the reopening, as required by the state. Noody and other angry
family members held a local rally in early September protesting the state’s visitation restrictions; other grassroots groups have held similar protests elsewhere in New York and other states.
“If
she got Covid and she passed away, I would be heartbroken,” Noody said
of her mother. “But do I want her to live walled up in a room?
Absolutely not. It’s not fair. Nobody wants to live like that, but
they're not even given a choice.”
Under mounting pressure, New York officials relented in mid-September and lowered the threshold
for in-person visits to 14 days without a coronavirus case. They also
added a requirement for visitors to have a verified negative Covid-19
test. There are still strict caps on the number of visitors allowed in
the facility, as well as social distancing and mask requirements.
New
York officials say the restrictions are critical to protecting
residents and front-line workers at these facilities. “This pandemic is
not over,” Jill Montag, a spokeswoman for the state health department,
said in a statement. “Our decisions will continue to be driven by data
and science, and now is not the time for anybody to let their guard
down.”
A
tent is set up near the windows where visitors can see residents at the
Premier Genesee Center for Nursing and Rehabilitation in Batavia, N.Y.,
on Oct. 9.Mariana Henninger / NBC News
The
Covid-19 restrictions are especially painful when residents themselves
can’t understand why their family members have stopped coming to visit.
More than half of nursing home residents have moderate or severe
cognitive impairment from Alzheimer’s, dementia and other conditions, according to the Centers for Medicare and Medicaid Services.
Before
the pandemic, Adele Billig constantly circulated throughout her nursing
home in Delray Beach, Florida, always showing up for bingo, poker night
and karaoke, where she loved belting Frank Sinatra.
“I’m never in my room, so don’t call my room, because you’re not going
to get me,” the 95-year-old often told her daughter, Melinda.
Under
lockdown, Adele’s social life disappeared. Mostly confined to her room,
she had little to keep her engaged: She had trouble following
television programs, and phone calls could be difficult, as her hearing
aids regularly went missing. “She’d say, ‘I can’t hear you, I can’t hear
you.’ Then she’d just give up,” Melinda said. Sometimes when Melinda
called, her mother assumed that her daughter was in the building,
waiting to come up for a visit, and was crestfallen when she learned she
wasn’t there.
Adele began sleeping more
and more, even falling asleep during their phone calls, which had never
happened before, Melinda said. By June, she was developing wounds that
were not healing — a serious sign that her body was breaking down. But
the most upsetting part for Melinda was the feeling that her mother
didn’t fully grasp why she had stopped visiting, as her memory was
spotty.
“I wish I could be there with you,” Melinda told her mother in July.
“If you say so,” her mother responded flatly.
It
was the last conversation they had. The next week, the nursing home
called to tell Melinda that her mother had died. The official cause of
death was heart failure, but Melinda doesn’t think that conveys the full
story.
“Part of why she died,” she said, “is that her quality of life had diminished to such a point that there wasn’t any.”
Even
when family visits resume, there are usually significant restrictions
in place. When Gelsey Randazzo Markese went to see her grandmother Rose
Violet Randazzo for the first time in seven months, the rules made her
almost regret showing up at all.
It was the
last week of September when she arrived at the Edna Tina Wilson Living
Center in Rochester, New York, with her grandfather Vincent Randazzo,
who had been married to her grandmother for 69 years. Markese had been
raised by her grandparents, who adopted her as a baby, so it was
especially hard to be separated from Rose Violet for so long.
Vincent Randazzo and his wife, Rose Violet Randazzo.Mariana Henninger / NBC News
When
a staff member brought her out in a wheelchair, Rose Violet, 91,
instinctively stretched out both arms to touch Markese, then broke down
sobbing when the aide told her that they had to remain at least 6 feet
apart.
“My baby, my baby...” she wept, her arms still reaching for her granddaughter, who was also in tears. “She’s my baby.”
It
was a wrenching experience for Markese, who was seven months pregnant
and had been waiting to tell her grandmother in person. “To me it was
almost more tortuous being there, so close but not being able to touch,”
she said. “It was like being punched in the stomach.”
Markese and other family members are now pushing New York officials to create a program
that would enable them to be recognized as “essential caregivers” — a
designation that would allow them to provide hands-on assistance and
companionship for loved ones in long-term care facilities.
In
June, Indiana became the first state to permit essential caregiver
visits for family members who had tended to residents at least two times
a week prior to the pandemic, subjecting them to the same Covid-19
testing requirements as staff members. Minnesota, New Jersey, Florida, Texas
and other states have made similar accommodations for family members,
stressing their role in monitoring their loved ones and advocating on
their behalf. Florida recently announced that facilities can allow outdoor visits even if they have recently reported coronavirus cases.
Markese knows how deadly Covid-19 can be; 11
residents and one staff member have died of the virus at her
grandmother’s nursing home, according to federal data. But she believes that visits without social distancing can be done safely.
“If
we follow the same protocols in place as the staff members do — the
staff members who bathe my grandmother and help toilet her and help
comfort her by holding her hand — then why can't I hold her hand? Why
can't I give her a hug?” Markese said. “Why can't my grandfather embrace
her when she's crying out to touch him?”
Vincent Randazzo holds a frame containing photos of him and his wife, Rose Violet Randazzo.Mariana Henninger / NBC News
To address the impact of prolonged isolation, the Centers for Medicare and Medicaid Services issued new guidance
in September to help expand “compassion care” visits in nursing homes.
In addition to allowing end-of-life visits, facilities could also permit
families to visit residents who are losing weight or dehydrated and
need encouragement to eat or drink, as well as residents who are
“experiencing emotional distress, seldom speaking, or crying more
frequently,” the new guidance said.
State
and local governments, however, can still impose stricter rules for
nursing home visits and usually give facilities considerable leeway in
deciding when to reopen. The push for more visitation is also coming
amid signs that the pandemic could reach a dangerous new crisis point in
the fall and winter, increasing the risk of community spread.
Nearly
eight months into the pandemic, some long-term care facilities are
still struggling to protect themselves from Covid-19. Nursing homes
across the country continue to report a lack of reliable testing and personal protective equipment,
as well as staffing shortages. Without adequate protections in place,
in-person visits could put both residents and staff members at greater
risk.
Industry lobbyists are now pushing Congress for more money
for facilities to prepare for the next wave of the virus, while
admitting there is a tough trade-off when it comes to protecting
residents.
“We too are concerned about
prolonged social isolation for our residents,” the American Health Care
Association, which represents for-profit long-term care facilities, said
in a statement. “With cases rising in many parts of the country, we
must be vigilant about protecting our nation’s most vulnerable, but
balance that with the need to stay connected with loved ones.”
Tammy
Roberg is still haunted by the circumstances of her father’s death.
Shocked by the weight he had lost at the end, she asked the staff to
show the logs of what he ate at every meal, only to be told there
weren’t any. A nurse later told Roberg that isolation often prompts deep
depression among Alzheimer’s patients, which helped explain why her
father had deteriorated so quickly.
Ashley
Fjelstad, a spokeswoman for Copperfield Hill, said that Peske’s health
had not declined dramatically until his final days. She said the
facility typically only notes if residents refuse to eat at all, not the
portions they eat at each meal. And she noted that changes in routine
are especially disruptive for those with Alzheimer’s disease: The common
areas of the facility, where residents can socialize and do activities
together, “are the heart and soul of memory care,” she said.
On
the morning of her father’s death, Roberg sat down beside his body and
took his hand in her own. She prayed and told her father that she loved
him. But she couldn’t shake how he looked lying there. “Why was he so
skinny?” she wondered. “When did he last eat?”
Several
weeks after his death, Minnesota enacted a policy allowing essential
family caregiver visits in long-term care facilities, including
Copperfield Hill.
Roberg never got that time. Months later, she keeps holding onto the same thought: “It didn’t have to happen.”
A 96-year-old World War II veteran is hoping to become the oldest Marine to ever complete the Marine Corps Marathon on Sunday.
Thiele "Fred" Harvey, who fought in the battle of Iwo Jima, is participating in the race with a team of marathoners -- Dr. Glenn Paige, Chris Haley and Master Gunnery Sgt. Michael Lawrence -- who plan to push Harvey across the finish line.
Paige, who has run several Marine marathons, first met Harvey four years ago. The two have talked every week since.
"We're
gonna run 26.2 miles and, hopefully, make him the oldest Marine to
cross the finish line in his custom, commemorative wheelchair that will
be used in the future by disabled veterans for Marine Corps Marathons,"
Paige said.
Dr. Glenn Paige and T. "Fred" Harvey
The team raised $5,000 to build the special chair,
decorated with pictures of Harvey, his war medals and patches, and
inscribed with his name.
Due to the coronavirus pandemic,
this year's marathon went virtual, so Harvey will race with his
friends in Fredericksburg, Texas, finishing at the National Museum of
the Pacific War.
"I would have loved to have finished with him at the Iwo Jima
Memorial, but the next best thing is his favorite museum here in
Fredericksburg," Paige said.
Harvey said at the museum this summer that he wants people to remember those who sacrificed their lives during World War II.
"I
can talk about the war, and I am going to talk about it as much as I
can, because I want the people to remember those buddies of mine that
paid with their lives for the life that we have here in the U.S. today,"
he said.
Harvey
was a private during the fierce five-week battle in early 1945 against
dug-in Japanese forces at Iwo Jima. He was awarded the Silver Star for
valor in combat.
"When his three-man patrol which was sent out to establish contact
with the adjoining company was ambushed by heavy fire from an enemy
machine gun and one of the men was seriously wounded, Private First
Class Harvey dragged the fallen Marine under heavy fire to the shelter
of a nearby hole," his citation says.
"Remaining
with the wounded man while his companion went for aid, he held off the
hostile forces with his rifle and hand grenades until the arrival of the
rescue party. Then, exposing himself to enemy fire and directing
accurate heavy fire on the Japanese position, he successfully covered
the evacuation of the casualty."
The marathon this year will be on the 75th anniversary of the battle of
Iwo Jima, so the commemorative finishing medal will contain actual black
sand collected at the island, as well as filmstrip images of the
iconic raising of the flag by victorious Marines.
A Connecticut list brokerage firm pleaded guilty to facilitating
elder fraud schemes resulting in at least $9.5 million in losses to
victims through mass-mailing schemes.
A corporate representative for Macromark Inc. pleaded guilty Sept. 25 in the U.S. District Court in Hartford, CT, to charges
that the firm was part of a conspiracy to commit mail and wire fraud.
The schemes tricked thousands of consumers into paying fees for “falsely
promised cash prized and purportedly personalized ‘psychic’ services,”
according to the Department of Justice.
The government alleges Macromark provided list-brokerage services
from 2005 to 2016 to clients running mass-mailing fraud schemes.
Specifically, Macromark reportedly helped fraudulent mass mailers
acquire and sell lists of potential victims to other mass mailers. Those
lists were “essential” to the fraudulent mass mailer clients, allowing
them to more effectively reach consumers susceptible to their schemes,
including the elderly and vulnerable, the Justice Department said.
In 2016, the U.S. Postal Inspection Service executed search warrants
on the company’s offices, and the Civil Division’s Consumer Protection
Branch obtained a federal court order preventing the company from
facilitating mass mailing fraud. That court order resulted in a permanent injunction
prohibiting Macromark from dealing in certain promotions or
solicitations, including sweepstakes reports, wealth-building programs
or psychics. The company also was required to hire a compliance officer
and to audit a sample of all list orders for five years.
“List brokers and service providers, such as Macromark, who
facilitate these schemes are especially dangerous,” said Inspector in
Charge Delany DeLeon-Colon of the U.S. Postal Inspection Service’s
Criminal Investigations Group. “Data firms such as this have
extraordinary access to consumers’ personal information, not just their
mailing address. The sale and distribution of this data exponentially
magnifies the scale and impact of these schemes.”
Macromark’s guilty plea follows a separate guilty plea by former
Macromark Executive Vice President Steven Keats in July 2018 to
conspiracy to commit mail and wire fraud. In March, former Marcromark
Senior Vice President Norman Newman was indicted
by a Connecticut grand jury for conspiracy to commit mail and wire
fraud, along with 15 counties of wire fraud. Newman is scheduled for
trial on March 1.
Under the terms of the company’s recent guilty plea, Macromark could
be sentenced to three years of probation, forfeiture and fines totaling
$1 million, and be required to cooperate with any related government
investigation or prosecution. The final sentence awaits a ruling from
the federal court overseeing the case.
At midnight on October 2nd, 93-year-old Bertha Bernal was admitted to
St Jude Hospital, in Fullerton, with a condition that was later
described to the family as “low sodium”.
The text from Maila Soliven, Bertha’s caregiver, came a good 11 hours later – not even a phone call she deemed necessary.
What follows is an emotionally charged chapter in the Bernal
children’s fight for their mother. One that mixes the joy of the
encounter, with the apprehension for her well being.
[Artvoice is following the Bertha Bernal’s case, and reporting on
her children’s relentless efforts to resume visitation with her, and
perhaps even take back the conservatorship that was awarded to
unattached ‘professionals’.]
“Although I was anxious about Mom’s condition.” Sandi explains, “I
was so excited to drop everything and rush to the hospital to be by her
side.”
Sandi’s arrival in the hospital on Friday made Bertha clearly happy, although she was still a bit disorientated.
Photo evidence shows what no second-hand medical opinions in the world can deny:
Bertha thrives in the care of those in the world who love her the
most. This is patent for all to see. All but California Probate Court,
that is.
The usual family photos, playing cards, games – all those familiar
stimuli benefit her. She enjoys playing with her children. The nurses
and staff were all very friendly, which was also a good departure from
Bertha’s everyday life.
“When I prepared to leave, at night, she became anxious and kept
asking me not to go – but I promised her I would be there, by her side,
in the morning.”
As she drove home that night, so many things went through Sandi’s head, besides the joy of seeing her Mom again.
Saturday, October 3rd
The reader can see for himself Bertha’s reaction to being around her children.
Sandi was there, bright and early, first thing in the morning, on
Saturday. Not a minute could be wasted in this window of opportunity to
be with their mom. Cathleen was flying in from Northern California, to
also be by Bertha’s side.
It had been several months since any of them had seen their Mom. A
cruel and unwarranted separation that had been temporarily lifted.
Besides the joy, being with Bertha afforded the opportunity to learn more about her current health situation.
“I noticed some wrapped padding in her room, and shortly after the
orderly came in and proceeded to put padding on all the bed rails.”
Sandi recalls. “When I asked what they were for he informed me that she
has seizures and this was to protect her.”
“Imagine my horror when I heard this, as I was not nearly aware that the condition was so advanced.”
The information flow from the conservator to the family is so flawed
it’s almost unbelievable. There is, actually, a continuous effort to
deny the family even the most basic medical information.
So, it was no surprise when the nurse, that morning, informed Sandi
that Ms. Suzette Smith, Bertha’s court-appointed conservator, had called
in and informed the hospital staff that they were NOT to give any
information to the family.
The usual modus operandi.
“Why is that? We are not asking to make decisions for her (even
though her family should be doing that) but we are concerned about our
Mother and her condition.”
“It was a joy to order her meals, play games with her, make her laugh
and to just be by her side to love on her and help give her some
familiarity to help make her feel happy and secure.”
Cathleen came in straight from the airport, and was able to be with Bertha, too. It felt like a small miracle.
Sunday, October 4th
Bertha wanted her hair combed forward.
Cathleen went back for Sunday, and spent the day with Bertha. It felt
so natural, it should be the obvious way to go – allow her grown
children to be with her.
“From morning until she fell asleep, we laughed, looked at photos of
her children and grandchildren and her 2 siblings,” tells us Cathleen.
“We played cards, tic-tac-toe, watched TV. I combed her hair, because
she said she didn’t like her bangs combed back. ‘Comb down, down’, she
asked.”
That we even have to be defending what should be an obvious, inalienable right, is shocking to the core.
With all the love around her, as well as the competent and caring
medical attention she got, her medical situation soon improved, and she
was scheduled to be discharged on Monday.
One of the doctors said, “Wow, she looks so, so much better!”
That should be a happy development for the family – if it was not for
the fact that she was to be handed over back to her “caregiver”, and go
back into the unreasonable, unacceptable isolation she has been
subjected.
Monday Oct 5th
The daughters arrived very early, lest they miss the chance of being with their Mom a little bit more.
“We got there at 7am before visiting hours,” Sandi explained,
“because we feared that the caregiver [Maila Soliven] would come early
to pick Mom up so as to avoid us completely.”
[That’s exactly what the caregiver did at the last
hospitalization of Bertha. She coordinated with the rehab center staff
to call her when Sandi left the hospital premises, subsequently only
checking the elderly lady out of the rehab facility after 10 pm.]
“This time, the conservator arranged to have her medically
transported back to the board and care,” Sandi says. “The whole
experience was a roller coaster of both joy – of being able to be with
and comfort Mom – and sadness, for the condition she was in.”
Daughter Cathleen was told several times by a hospital doctor that
“they needed to make sure she eats enough and stays well hydrated, so
this won’t happen again.”
“We always suspected she was not getting enough food at her
residence,” shares Sandi, “based on how fast and intensely she would eat
her lunch at the activity center. After what the doctor said to my
sister, it seems like our darkest fears may be realized.”
Despite the Conservator’s orders for the medical team not to relay
any medical information to the family, the daughters were able to read
that, on the patient chart in her room, Bertha’s weight was recorded as
125 lbs.
“I was shocked when I first saw her, and noticed the bones protruding from her neckline!”
“Each day, I would go down to the cafeteria to buy her a big to-go
container of fresh fruit,” says Cathleen. “You see, the conservator and
mom’s “keeper” (caregiver is too generous of a term) wouldn’t know mom’s
favorite fruit is watermelon, and cantaloupe.”
“So I cut up the fruit, and every couple bites mom would say, ‘Boy
that’s good fruit!’ I’d always say, ‘Sweet, huh?’ She would nod yes.”
The happiness of a mother and her daughters together. The natural way of life that we are fighting to restore.
And so it happens that Bertha Bernal is back to the house of
caregiver Maila Soliven, where she lives in complete isolation from her
loved ones, as one of the elders taken care in what is essentially a
family home. Where it seems to be the case that, the least she leaves
the bed, the better. Where she is not eating enough, where she has
apparently not being hydrated to the doctors satisfaction.
A place where she can’t see her family – but she can vote? How is
that even possible that a dementia patient under conservatorship can be
deemed able to vote?
How long will the family be tortured in this fashion?
We call on California Probate Court authorities to reunite Bertha Bernal with her children Sandi, Cathleen and Anthony. NOW!
Concerns raised over ability of people under guardianship to vote (WKRC)
CINCINNATI (WKRC) - One-and-a-half million people across the country
are under guardianship, and considered unable to make decisions for
themselves, but many are still legally able to vote. That includes
thousands of people in the Tri-State area.
‘My initial response
was, 'She shouldn’t vote!',” said Leslie Knepper from Owensville.
“Because she was declared unable to live alone, she’s unable to make her
medical decisions.”
Knepper has guardianship over one of her family members, who called her over the weekend excited that she just voted.
“I
had a lot of concerns,” said Knepper. “The first is, 'If I can’t get
in there, who did?' Who took it, how it was marked, and whether it was
legal that she voted.”
Knepper's
family member is a nursing home resident. A staff member told Local 12
that they had two other staff members certified to administer ballots --
one Republican, one Democrat. In Ohio, nursing homes can request their
own certified staff, or have people from the Board of Elections come
administer ballots.
“The right to vote is precious,” said Director
of Election for Hamilton County, Sherry Poland. “And this is not one
that the Board of Elections can make a determination on. If you have a
family member that you believe is not mentally competent for voting
purposes, then you should seek guidance from the probate court.”
“A person could be adjudicated incompetent, found incompetent to
manager their property and their personal affairs, and yet still be able
to vote,” said probate attorney Julia Meister, of Taft Stettinius &
Hollister. She says judges need to be petitioned and then determine
whether to render someone incompetent to vote, with no set criteria.
The fact is, of Hamilton County's 600,000 voters, none have been rendered incompetent to vote.
Knepper
says she is now convinced her family member was able to vote
competently, and the act of voting may have done her some good.
“I haven’t heard her that excited on the phone in a couple of years," she said. "She kept saying, ‘It’s official, I voted!'”
People
in Kentucky, like Ohio, need a probate judge to rule them incompetent
to vote. Indiana has no law on the books regarding voting competency.
There are states, like New Jersey, that do not allow people to vote if
they are under someone else's guardianship.
That is one of the questions lawyers asked a Farmington probate court to answer Thursday.
By determining that Jennifer predeceased her estranged husband
Fotis Dulos, his estate will be able to access an IRA worth close to
$200,000 to pay off debts.
“It is clearly not our intent for this court to make any
findings of causation, their involvement, or having anything to do with
the criminal complaint,” said Christopher Hug, the court-appointed
attorney administering the Fotis Dulos estate.
Jennifer Dulos has been missing since May 24, 2019. The last sighting of her was when she dropped her children off at school in New Canaan that morning.
Her estranged husband, Fotis Dulos, was charged with her murder and
maintained his innocence until he died days after an attempt to take his
own life in January. Jennifer has never been found.
Because Connecticut law requires a person to be missing seven
years before a declaration of death, this ruling could provide precedent
on such matters. Thursday, the Hon. Evelyn Daly said she’s not
convinced she had enough information to make a decision.
“I believe it is fair to say that the supplemental brief did not
provide the court with any related Connecticut case law precedent,” she
told the attorneys. “I believe a full hearing of testimonial evidence
and any other evidence counsel needs to be heard before I can render a
decision.”
Hug was joined by the guardian ad litems for Jennifer and the
estranged couple’s five children who also tried to convince Daly that a
hearing was unnecessary.
An attorney representing Hug drew comparisons to 9/11.
“Our probate courts proceeded to make findings for those whose bodies
were not found and therefore had no death certificates in abundant
numbers,” said Paul Kanera.
Daly said she wanted to hear testimony from the state trooper
involved in the criminal investigation along with the medical examiner,
but the attorneys pointed out that they were not asking her to determine
how Jennifer died, only that she died before her husband.
Attorney Jon Schoenhorn appeared on behalf of Michelle
Troconis, who has pled not guilty to a charge of conspiracy to commit
Jennifer’s murder. He stood alone in his argument that the judge should
hold a hearing on the matter.
“Although there is this comparison to 9/11, there was no dispute at
all about the circumstances of those disappearances, and I submit here
it is contested,” he said.
Hug submitted the arrest warrant for Fotis Dulos, which
includes a chief medical examiner’s determination that Dulos was
unlikely to have survived a serious assault in her home, as evidence
that she is no longer alive.
“That warrant talks a lot about my client. A lot, relies a lot
on allegations that they claim involve my client Ms. Troconis,”
Schoenhorn went on to say. “They’re asking the court to make a finding
on a sworn document that I maintain contains half-truths.”
While the other attorneys argued that Schoenhorn had no
standing on the issue (he was present for other matters the judge took
arguments on, including contested items he was seeking to be returned to
Troconis from the home she once shared with Dulos), he expressed
concern that his client’s criminal trial could be negatively impacted by
the probate court’s decision.
“For the most part, the issue here for them is the money and
who should get it. I have no interest in that. Michelle Troconis has no
interest in that,” he explained.
