Monday, December 9, 2019

Owners, managers of Lincoln Park nursing home accused in lawsuit of covering up theft of $700,000 from resident

The money represents the life savings of 98-year-old Grace Watanabe, a WWII Japanese internment camp survivor.




Grace Watanabe
When managers and owners of a Lincoln Park nursing home learned employees had stolen more than $700,000 from a 98-year-old resident who has Alzheimer’s disease, they didn’t fire them or go to authorities — they sought to cover it up, according to a lawsuit filed Thursday.

The Cook County public guardian’s office filed a 335-page complaint seeking monetary damages for four entities that own Symphony Residences, several managers and the five employees accused of stealing Grace Watanabe’s life savings.

Public Guardian Charles Golbert’s lawsuit said a nursing home executive resorted to locking Watanabe in her office to keep county social workers from moving her to another nursing home.

Word of the standoff got back to Golbert, who dispatched Dawn Lawkowski-Keller, an attorney who works in his office’s financial recovery unit. 

After a shouting match, Lawkowski-Keller boiled it down for Symphony Executive Director Erika Cruz: “You have 5 minutes or we’re calling the cops.” 

Cruz released Watanabe.


Symphony Residences of Lincoln Park nursing home
Google Maps
An investigation by Golbert’s office later concluded that five nursing home employees used Watanabe as their personal piggy bank — draining her life savings through a series of ATM withdrawals, forged checks and other payments.

While not accused of taking part in the theft, the lawsuit alleges Cruz and other nursing home executives were aware of it and didn’t report it to law enforcement.

A representative of Symphony, reached Thursday via email, reiterated a statement previously sent to the Sun-Times: “Upon learning of the incident involving Ms. Watanabe, we immediately notified law enforcement authorities to investigate and seek restitution for Ms. Watanabe, and we are cooperating with those agencies.” 

Two of the five employees accused in the civil suit of stealing from Watanabe have been charged criminally with financial exploitation of an elderly person.

Bank regulators noticed irregularities and brought the case to the attention of authorities. 

A separate civil suit filed by Golbert’s office seeking information from Symphony is stalled while company executives appeal a September court order compelling them to testify. They are being fined $400 for every day they defy the order and remain silent. 

“We can’t wait for them,” Golbert said. “My client is 98 years old, and they’re trying to run out the clock.”

Should Watanabe pass away before the conclusion of the civil suit against Symphony, the beneficiaries of her will — Misericordia and Mercy Home for Boys & Girls — could step in as complainants, Golbert said.

Watanabe was born in Santa Cruz, California, in 1921 and was held in the Poston internment camp from 1942 to 1946. After her release, she earned a bachelor’s degree in English from the University of Illinois at Chicago.

Members of Chicago’s Japanese community have been attending court hearings to support Watanabe.

Full Article & Source:
Owners, managers of Lincoln Park nursing home accused in lawsuit of covering up theft of $700,000 from resident

See Also:
Judge slaps $400-a-day fine for nursing home execs refusing to discuss resident who was allegedly bilked of $750K

Former senior living employees charged with $300,000 theft from resident with dementia

New Port Richey attorney on emergency suspension for allegedly misappropriating more than $82,000

TALLAHASSEE — New Port Richey attorney Hugh Charles Umsted has been placed on emergency suspension following a March 21 Florida Supreme Court order over misappropriation allegations, according to a recent announcement by The Florida Bar.

"Umsted appears to be causing great public harm based upon his misappropriation of at least $82,647 in client funds," the state bar said in its March 29 announcement of the discipline and the Supreme Court's order.

In its four-page order, the high court approved the state bar's petition for emergency suspension before indefinitely suspending Umsted. The court gave Umsted 30 days to wind down his practice but to accept no new clients or do any legal work in that time, in addition to other conditions.

Florida court orders are not final until time to file a rehearing motion expires. Filing such a motion does not alter the effective date of Umsted's suspension.

Umsted was admitted to the bar in Florida on Oct. 2, 1991, according to his profile at the state bar website. No prior discipline before the state bar is listed on Umsted's state bar profile.

In its seven-page petition for emergency suspension, to which almost 600 pages of exhibits and other documentation was attached, the state bar alleged it found evidence of misappropriation during its investigation that began last fall.

Between October 2015 and May 2017, Umsted allegedly transferred more than $82,700 from his trust account and into another account, with a ledger entry indicating the money was for fees, according to the petition. Umsted also disbursed two checks totaling $4,000 from the trust account to the client's personal representative, with a ledger notation that about $200 was for the client's costs.

In September 2018, while acting on a court order to transfer all of the client's savings bond proceeds into another account, Umsted allegedly cobbled together enough funds to obtain a cashier's check that covered the total amount due, according to the petition.

Umstead "misappropriated and utilized $82,647.01 of other clients' funds from the trust account to obtain the cashier's check," the petition said. "The respondent made numerous misrepresentations to the probate court, both orally and in filed pleadings, and to The Florida Bar regarding the status of the funds being held in his trust account for this matter."

Full Article & Source:
New Port Richey attorney on emergency suspension for allegedly misappropriating more than $82,000

Sunday, December 8, 2019

Area families caught in 'nightmare' of guardianship

Kim Hall talks to her stepson Derrick Hall-Fisher, Jr. while he plays video games.

By Mardi Link

TRAVERSE CITY – Derrick Hall-Fisher, 25, hadn’t seen a doctor in years when an abscessed tooth caused him so much pain, he extracted it himself.

After dementia robbed Martha Rothaug, 82, of Suttons Bay, of her ability to live independently, she was hidden purposely away in an assisted living facility so her daughter could not find her.

Franco Nicolanti, 86, of Beulah, was caring for his ailing wife, Flavia, 82, using their social security and a pension from his native Italy, when access to his bank account was cut off and phone calls to the person controlling his money went unanswered.

None of these people know each other, but they do have something in common.

Each experienced a life change that alerted Adult Protective Services caseworkers, who then petitioned the court for a guardian to control their affairs.

Guardianship and the law


“Perhaps no civil proceeding has greater impact upon an adult than guardianship,” said Bradley Geller, of Ann Arbor, an elder rights attorney and author of a handbook on guardianship. “You can lose all your rights. Where to live, who your doctor is, what you can spend your money on.”

Nationwide, critics have continually claimed professional guardians have too much power. That the unscrupulous among them take advantage of vulnerable adults by stealing from their estates, denying necessary medical care and hiding elderly parents from their children and grandchildren.

An estate plan, complete with signed power of attorney, patient advocate designation and notarized will is no guarantee an aging adult will not end up in guardianship, Geller said.

Which is exactly what happened to surgical nurse Jennifer Rodgers.

Guardianship and Martha Rothaug


In March 2017 Rodgers said goodbye to her mother and left Sutton’s Bay for a short-term surgical assignment in Florida. Her mother, a widow, had some health challenges but lived independently, in her own home, and Rodgers said was capable of making her own decisions.

In Roger’s absence, someone – Rodgers believes it was a family member – found rotten food in Rothaug’s refrigerator, called Adult Protective Services, and APS worker Michelle Hagerman filed a complaint.

“Jennifer has had no regular physical contact for 4 years with Martha,” Hagerman wrote, though this was clearly false. Rodgers lived a few miles from her mother, they saw each other regularly, and had said goodbye to each other just days earlier.

Hagerman, who declined comment and referred questions to the state’s department of Health and Human Services, also accused Rodgers of unsubstantiated financial crimes.

“They were lies,” Rodgers said. “Complete lies made up to put me in a bad light.”

Bob Wheaton of Health and Human Services said he could not comment on specific cases.

Before Rodgers could return to Michigan, Hagerman filed an emergency petition with Leelanau County Probate Court and Judge Larry Nelson, who placed Rothaug under guardianship.

Jill Case, a supervisor with Grand Traverse County’s Commission on Aging, was appointed to make all of Rothaug’s housing, medical and financial decisions.

Neither Rothaug nor Rodgers had ever met Case, and surveys of guardianship files in area probate courts show this is not uncommon.

Guardians: Often strangers to their wards


“When there is no relative, no family member willing or qualified to make decisions for an incapacitated adult, probate judges appoint court volunteers or professional guardians,” said Grand Traverse County Probate Judge Melanie Stanton.

Stanton stressed she could not comment about specific cases, but acknowledged clarity on the way professional guardians are allowed to run their businesses is needed. For example, there is no certification or training required and no limit on the number of wards a guardian can have.

“I always want to make sure the person is taken care of,” Stanton said of the wards before her court. “I want to make sure they’re seen every three months, and if someone can’t do that, or isn’t capable of doing that, I do not appoint them. Some people don’t like that, but it’s the law.”

Court documents show Case, who could not be reached for comment, moved Rothaug out of her home and into assisted living, first to a facility in Northport and then to another facility in Grand Traverse County.

“I didn’t know where my mother was,” Rodgers said. “I wasn’t allowed to know. My only recourse was to hire an attorney and fight it in court.”

A change of venue and more than $200,000 in legal bills later, Judge Stanton ruled Rodgers and a different professional guardian, Brenda Miller, of Northern Fiduciary Services, would manage Rothaug’s affairs together.

The arrangement worked. Rodgers could see her mother as often as she liked, but says it was a bittersweet victory.

Rothaug was diagnosed with Alzheimer’s disease. Because of the guardianship debacle, Rodgers missed out on time with her mother she can never get back.

“This whole guardianship nightmare took two years from our lives,” Rodgers said. “I still just don’t understand how it can possibly be legal.”

A Lack of Accountability


In Michigan, political discussions about guardianship’s legality, and its potential for abuse, have a long – and mostly impotent – history.
  • In 1998, Gov. John Engler worked with Chief Justice Conrad Mallet, Jr. on the Supreme Court Task Force on Guardianships and Conservatorships.
  • In 2007, Gov. Jennifer Granholm appointed 15 bureaucrats, attorneys, law enforcement officers, insurance administrators, finance experts and elder rights activists to serve on her Task Force on Elder Abuse.
  • In 2019, Attorney General Dana Nessel created an Elder Abuse Task Force and went on a statewide listening tour, telling the rankled crowd at the Traverse Area District Library in July, “These issues have been researched and discussed already, ad nauseum. This task force is committed to doing, rather than just studying.”
Geller said guardianship should be a probate court judge’s last resort, not its first instinct, but that two decades of study groups have resulted in little real change.

Nessel’s communications director, Kelly McKinney-Rossman, confirmed no new legislation aimed at regulating guardianship has been introduced this year.

Guardianship and Derrick Hall-Fisher


Kim Hall said she wishes there were better laws looking out for people like her and her stepson, Derrick Hall-Fisher, Jr.

“This whole guardianship thing, it leaves people who can’t afford a lawyer, at their mercy,” Hall said. “It lets strangers make life-long decisions for people they don’t even know.”

In May, Hall said she learned her stepson, who has autism, was in what she described as a “dangerous, difficult circumstance.” She called Adult Protective Services, which assigned a caseworker, Brandi Fitzgibbons.

“She said they had a placement for him, they just needed to get it staffed, and asked if I could house my stepson for four days,” Hall said. “I said of course. The nightmare began from there.”

Weeks passed, Hall learned her stepson had pulled his own tooth before he came to live with her and that his overall physical health was precarious.

She made a series of medical appointments for him, signed him up for counseling and said he delighted in the new superhero-themed clothes and bedding she bought him.

Hall and her stepson’s father, Derrick Hall Sr., divorced in 2009, the two rarely speak and court documents say Derrick Jr. was removed from his father’s care sometime in 2018.

In an interview at the Leelanau County Courthouse, where Derrick Hall, Sr., was called to testify in a hearing about where his son would live, the father said he loves his son and wants what’s best for him.

With a new wife and several much younger children, he was happy to work with APS, because he could not give Derrick, Jr. the specialized care, time and attention his oldest son needed.

“Kim is on a fixed income, that and I’m a happy man now so what she’s doing could be to get back at me,” Derrick Sr. said.

Problems arose when APS could not find a group home willing to take in Derrick Jr.

“I’d say, ‘Today’s the day, buddy. Today’s the day you’re going to move into your new home and it’s going to be great,’ ” Hall said. “But it wasn’t great. It wasn’t great at all. They (APS) canceled time after time. They were treating Derrick like a ping pong ball and I couldn’t bear it.”

Leelanau County Probate Judge Marian Kromkowski granted Hall co-guardianship of her stepson, along with professional guardian Jessica Carnes of Pro-Advocates Guardians & Conservators, LLC, of Benzonia.

Hall said neither she nor her stepson had ever met Carnes, and she wasn’t sure why the court required a co-guardian but she didn’t object.

Attorney Heather Dykstra was appointed guardian ad litem, a temporary assignment that required her to investigate and then advise the court on what would be in Derrick Jr.’s best interest.

She did not return several calls for comment, but said this in her June 10 report:

“Derrick clearly enjoys living with ‘Mama Kim,’ as he calls Kim Hall. She has been transporting him back and forth to school on a daily basis and taking him on many outings. Derrick initially arrived at her home with only one pair of shoes and one outfit but she has provided him with a few additional necessities.”

Despite this, Dykstra said Hall did not have the resources to care for Derrick Jr. long term, recommended a group home, and on July 25, Fitzgibbons told Hall her stepson would be moving out.

“She said I was too enmeshed in his life,” Hall said. “What does that even mean?”

Fitzgibbons, who declined comment for this story, had chosen Piper’s Place, an AFC Home owned by Valerie Freeman, who attends the church where Derrick Hall Sr. works as an associate pastor.

Derrick Sr. said he supports the decision because Freeman could bring his son to church, and the two could see each other regularly.

Hall said she was crushed by the decision, but tried at first to put on a brave face about the change. But then she took her stepson to visit the facility and was disturbed by his reaction.

“When he gets anxious, he likes me to rub his hand or his ear,” Hall said. “And when he gets anxious, he stutters. He was doing all those things and the owner just kept telling him to spit it out. It broke my heart. I don’t want him there.”

The move happened Oct. 18, but Hall kept doing research. After learning the Bureau of Licensing and Regulatory Affairs cited Piper’s Place nine times since 2017, she decided to fight the move.

Hall represented herself in a four-hour closed hearing Nov. 19 in front of Leelanau County Probate Judge Marian Kromkowski. A decision is expected by the end of December.

Professional Guardianship and Fees


Some of the criticism against guardians has come from those, most notably Geller, who said the estates of wealthy vulnerable adults are being pilfered.

That is not what the Record-Eagle uncovered.

Of the three cases examined for this article, Rothaug was the only ward who had substantial means beyond Social Security income, and there’s no evidence any of her guardians (or conservators, the more common title for those who make financial decisions for a ward) misused funds.

What is in evidence is an almost universal lack of communication between professional guardians and their wards.

Derrick Hall Sr. had control of Derrick Jr.’s $780 in monthly Social Security income during the time he lived with Kim Hall, according to Dykstra’s report, though none of those funds were provided to her for his care.

Jill Case had complete control of Martha Rothaug’s finances, her medical care, the schedule and number of her home health care aids, and her living arrangements. According to a letter from Case to Judge Nelson dated July 13, 2017, Rothaug did not understand what was happening to her.

“I spoke to Martha about the assisted living move,” Case wrote to Nelson. “We spoke about the aids coming to her house. Martha asked why I was doing this to her. I reminded her that she has a disease and that the doctor said she needed 24/7 care. I told her that it was my job to make these decisions to look out for what is her best interest and where she lives.”

In another example, at a hearing August 6 in Benzie County Probate Court, Flavia and Franco Nicolanti attended, so they could tell the court that yes, they did still need help with their finances. They just didn’t want that help to come from professional guardian Anna Feala anymore.

“Mr. and Mrs. Nicolanti are not comfortable with how Ms. Feala is handling their money, they find it difficult to get Ms. Feala on the telephone when they have questions, and in general it is simply a poor fit personality-wise,” wrote attorney Brian Johnson.

Johnson had been assigned guardian ad litem, to investigate and deliver a report to the court on what would be best for the Nicolantis.

Their difficulty getting Feala on the phone mirrors the problems with guardianship on a larger scale.

Feala could not be reached for comment and Johnson did not return calls for comment.

Because so many of the details and life events that put a person in guardianship are confidential — family strife and abuse, medical issues and financial details for example — state and local officials have legitimate reasons for not speaking publicly.

Those same issues, however, can provide cover for indiscriminate decisions based on opinion and what appears repeatedly to be an inflated sense of power and authority, and not always on facts.

“I can say this,” Kim Hall said about her efforts on behalf of her stepson. “I know that I did everything that I absolutely could for Derrick when I had him with me. I can’t beat up on myself too much. I know that I did everything I could.”

Full Article & Source:
Area families caught in 'nightmare' of guardianship

Digging Deeper: Police suspect inside job in $190K fraud of elderly victim

TUCSON – There were nearly 11,000 cases involving vulnerable adults in Arizona reported to the Department of Economic Security.

Twenty-two percent of those cases had to do with financial exploitation.

Tucson Police Department detectives are currently investigating a case of financial abuse of an elderly man who suffered from dementia.

The Digging Deeper Team uncovered a search warrant that revealed some disturbing information about the case.

According to Tucson Police, 84-year-old Robert Ouellette was allegedly taken advantage of by an employee who worked at a local credit union.

News 4 Tucson is not naming that person because they have not been formally charged with a crime.

However, the search warrant stated Tucson Police was investigating the crimes of theft, fraud schemes, computer tampering and forgery.

Ouellette lived alone in the Campbell Estates Mobile Home community for 20 years, but died four months ago from injuries he received in a car accident.

Fred Thorpe was the victim’s friend and neighbor.

“It’s heartbreaking,” said Thorpe. “I mean the guy was such a nice fellow, probably why they took advantage of him.”

According to the court document, the crimes were believed to have been committed around February 2018 to July 2019.

The search warrant also stated that the suspect was employed at a credit union and was responsible for assisting customers with financial transactions.

The warrant goes on to say the employee took advantage of his position and conducted fraudulent transactions and theft from Robert Ouellette.

The employee allegedly stole from Ouellette’s accounts at the credit union and other bank accounts.

The theft is estimated at $190,000.

Ouellette was a devout Catholic who attended mass at Sacred Heart every morning.

Friends and family of Oullette said he lived a simple life and spent money on necessities and charity donations.

The Digging Deeper Team contacted his niece, Mary Peters, in Michigan.

“He was really a cheerful man, he was always good-hearted and in good spirits,” said Peters as she remembered her Uncle Bob.

Peters is also the executor of Ouellette’s estate.

Peters said family members started noticing changes in 2017.

“I started getting calls from the trailer court where he lived he wasn’t paying his rent. That’s not Uncle Bob,” Peters recalled to News 4 Tucson.

Ouellette was formally diagnosed with dementia in April.

The search warrant stated that Adult Protective Services began an investigation last March.

Records were also subpoenaed from Ouellette’s bank.

It showed transactions to online retailers, utility and cell phone, and the suspect’s credit card account.

Investigators say those transactions were out of character for the elderly victim.

When Peters learned her uncle was missing nearly $200,000 from his account and that the money ended up in the suspect’s accounts, she was shocked.

“They should go to jail. Do not pass Go,” Peters told News 4 Tucson.

News 4 Tucson made repeated requests to TPD to comment about their investigation.

The department repeatedly declined and said it was an ongoing investigation.

To file a report with Arizona Adult Protective Services call 1-877-SOS-ADULT (1-877-767-2385) or a report online can be made here.

Full Article & Source:
Digging Deeper: Police suspect inside job in $190K fraud of elderly victim

Financial Exploitation Case Will Hear Plea Agreement Testimony

By Benjamin Cox

Two women will get to argue that a plea deal in a murder case from 2 years ago holds over to their own. Circuit Judge John M. Madonia said yesterday he would allow motions to dismiss charges against 64 year old Joyce Gill and her daughter 39 year old Jewell Maul to be readmitted and proceed to an evidentiary hearing, according to the Journal Courier.

The two are charged with financial exploitation of an elderly person. They are accused of making $39,449 in transactions from the bank account of 88 year old Norma Notson whom they were charged with taking care of. Their attorneys argue the women cannot be prosecuted, though, because of an oral agreement between then-special prosecutor Ed Parkinson and Gill’s husband, Robert Gill. The agreement was part of a plea deal in Robert Gill’s first-degree murder guilty plea in the 2015 shooting death of Andrew Maul, who was Jewell Maul’s ex-husband. Robert Gill plead guilty to the shooting in 2017 and is serving 49 years in prison for the murder. The agreement allegedly stipulated there would be no charges brought against the two women resulting from the investigation into the shooting as well as no further investigation into Notson’s case.

At a hearing in September, Madonia denied the conclusion that the two could not be prosecuted and scheduled the cases against the women to move forward. He believed new special prosecutor Matthew Goetten originally had filed the charges against the women and could not be held to another prosecutor’s agreement. Madonia has learned since through discovery documents and motions to reconsider that Goetten and Parkinson filed the charges together. The motions to reconsider the dismissal maintained Goetten and Parkinson are representatives of the same office and are “bound by the verbal agreement.” Goetten contends that the plea agreement is not enforceable in the case, according to a report by the Journal Courier. Goetten would not communicate further on the case with WLDS News via email yesterday after the hearing.

An evidentiary hearing has been set for January 9th during which the court has called on Parkinson and Robert Gill’s attorney, W. Scott Hanken to testify on the oral plea agreement.

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Financial Exploitation Case Will Hear Plea Agreement Testimony

Saturday, December 7, 2019

In helping elderly parents, caregivers get a peek at their futures — and are inspired to plan for old age

Myrtle Lewis, 76, holds a birthday picture of her late mother, who died at 98. (Ricky Carioti/The Washington Post)
By Tara Bahrampour

Even after Myrtle Lewis’s mother reached her late 90s and could no longer drive or care for herself, she insisted on remaining in her home in Northeast Washington. Lewis, who was helping care for her mother, arranged for her to have a live-in companion, another older woman, named Kizzie. But watching her mother’s world shrink as she knocked around a too-big house clarified a few things for Lewis, now 76.

“After a while it just became she and Kizzie. They’d go to bed at 6:30,” she said.

Unlike her mother, who stayed in her house until three months before she died at 98, Lewis is open to someday selling or renting out her house and moving to a senior facility. “I want more companionship,” she said, “multi-age companionship in a group, and people who share some interests, and stay as involved as I can in growth and development and health.”

AARP estimates about 41 million Americans care for their adult family members, a number that has increased as life expectancy has grown. About 4 in 10 such caregivers say they have plans in place for their own future care, according to the organization’s 2015 Caregiving in the U.S. survey.   

Myrtle Lewis, who cared for her mother
 in the last eight years of her life, at her
D.C. home.
(Ricky Carioti/The Washington Post)
Often, people who are relatively young and healthy don’t spend much time contemplating what life will look like when they get old and frail — until they see it reflected in the life of a loved one.

“No one wants to think about their own aging. Everybody puts it off,” said Amy Goyer, a family and caregiving expert at AARP. “With our parents living longer, we are getting more involved in it as an ongoing situation. Our parents’ parents didn’t live as long, but for baby boomers it gets harder to ignore — it’s a repeated smack in the face of reality.”

Seeing a parent’s body or mind break down can inform decisions about one’s own old age, from the practical — finding a house on a single level, installing grab bars, touring living facilities — to the philosophical, such as learning empathy, shoring up social ties or accepting one’s own limitations.

Downsizing, Myrtle Lewis sets aside
items to put in storage.
(Ricky Carioti/The Washington Post)
For Richard Lui, 52, an MSNBC news anchor in New York City, becoming a caregiver for his father, who has dementia, forced him to grow emotionally. After his father, a retired pastor in San Francisco, began to have memory problems eight years ago, Lui started flying there each week to help care for him, as his father gradually lost his ability to communicate.

The experience, while wrenching, also resulted in a breakthrough. Seeing his once independent father so vulnerable felt like holding up a mirror on Lui’s own potential frailty. He also began to think more about financial planning and long-term-care insurance. “Eight years ago I thought I was forever young. But no, I’m not, and I need to think about that for my own health and personally,” he said. “I have to run toward the fire. I have to. I can’t run away from it.

Now when people ask how he is, Lui is more willing to share the hardships. “I will try to answer as honestly as possible,” he said. He also serves as a caregiving “ambassador” for AARP; the Alzheimer’s Association; Embracing Carers, a caregiver advocacy group; and BrightFocus Foundation, which supports research on Alzheimer’s and vision diseases.

Such clearheadedness is typical of people caring for family members, said Denise Brown, a Chicago-based caregiving coach who started CareGiving.com in 1996. “When you’re a family caregiver, you’re not in denial about death and aging and what happens when we get older,” she said. “We know that we’re not going to live forever — we live it. It’s not necessarily immediate for most people, but we live it.”

Brown started caring for her parents in 2004 and made a vow to herself when, after a medical crisis, her mother was unable to return from a rehabilitation facility to her house. “It was awful to tell her she couldn’t go home,” she said. “I want to make sure I’m set . . . where I don’t have to rely on other people to pack up my house and move for me.”

To forestall this, Brown, 56, has identified a continuing-care facility she is considering for her next move: “It’s beautiful. It’s got a campus. I feel like when I’m 70 I’ll have enough energy for the move and then I’ll have enough energy after the move to enjoy it.”

It wasn’t until he became his mother’s full-time caregiver that Dave DiBella, 71, of Pittsburgh realized how unprepared he was for his own aging. When she fell and injured her hip 10 years ago, he retired early from his job as alumni and gallery director at the Art Institute of Pittsburgh and moved in with her.

“That was a year of being tested beyond anything I could have ever imagined,” he said. “It made me so afraid that I’ll be dependent on somebody.”

To stave that off, DiBella said, he is consciously staying fit. He is also taking more seriously the idea of organizing his affairs, such as writing a will and designating beneficiaries. “I was a bit of an ostrich before,” he said. “Now I realize that I’m not the exception to the rule.”

Dale Brown, 65, a retired federal policy administrator in the District who helped care for her parents, is shopping for a condo that, unlike her current one, is all on one level, with an elevator and wheelchair accessibility.

“Once I get it, I’m going to set it up for the 95-year-old Dale,” she said. “I’m going to get lever door handles. I’m going to try to get a walk-in tub, and a room where I can put someone if I need help.”

Caring for a parent can also crystallize what a person doesn’t want. Jeffrey Slavin, 64, the mayor of Somerset, Md., and his sister have been decluttering their 94-year-old mother’s house as they care for her, secretly slipping out with books and other items.

That has convinced Slavin to start getting rid of his own possessions, including art and some pocket watches from a collection his father left him. “I’m giving away things now that I want people to enjoy in my lifetime,” he said.

Lewis, too, is taking steps now to forge a path different from her mother’s. Seeing her mom give up driving prompted her to get cataract surgery to maximize her years behind the wheel. “I’m trying to hold on as long as I can,” she said.

Some have a more radical take. Seeing her parents grow old and frail made Holly Tippett think she might consider ending her life rather than become incapacitated. Tippett, 57, a fundraiser for a nonprofit group in the District, helped care for her father as he was dying and was her mother’s primary caregiver for a year.

“It makes me realize that I don’t want to get super old and I don’t want to be a burden on my children,” she said. “I don’t think the quality of life is worth the burden on family and friends.” Recalling seeing her father, a successful business executive, reduced to incontinence, she said, “I don’t want to live like that, and I don’t want my kids to see me like that.”

For Roberta Youmans, 65, a retired Department of Housing and Urban Development employee in the District, caring for her mother, who had Parkinson’s disease with dementia, made her “a little more worried about aging than I think some of my friends are.”

Because of this, she signed up for Medicare B even though she already has a government pension, and she thinks twice before spending money on things such as travel. She also learned to appreciate small victories: “I spend a lot more time being grateful for what I can do. ‘Oh my God, my legs are still okay,’ having seen my mom not be able to walk. I can still smell. I can still see.”

“Little gifts, like, ‘Oh, she matched up two buttons, that’s great,’ when she used to do 5,000-piece puzzles,” she said. “I really learned a lot about life, death, aging, and what’s important.”

Full Article & Source:
In helping elderly parents, caregivers get a peek at their futures — and are inspired to plan for old age

Guardianship legislation: a timeline

1837 – Michigan law mandates that court appointed guardians must account to the court at least annually.

1974 – A Michigan Guardianship statute passed as part of the Mental Health Code specifically aimed at protecting people with developmental disabilities. The law’s stated purpose was “to encourage the development of maximum self-reliance and independence in the person.” The law gave wards the right to counsel, independent evaluations, a hearing, and a jury trial.

1988 – Michigan Legislature enacts the Michigan Guardianship Reform Act which covers the appointment of guardians for “legally incapacitated persons.” This law was aimed at protecting older adults and people with a mental illness.

1990 – National study of 22 states finds that Michigan’s guardianship numbers were steadily increasing and that Michigan far exceeded other states in numbers of guardianship petitions filed in court. The State Bar’s Elderly Law and Advocacy section asked the Michigan Supreme Court to create a task force on guardianships and conservatorships.

Sept. 1996 – State Bar of Michigan’s Representative Assembly unanimously adopts a resolution supporting a task force.

Nov. 1996 – Michigan Supreme Court creates the Task Force on Guardianships and Conservatorships to “examine how the judiciary, legislature, and executive branch agencies can better protect the interests of those for whom guardianship is sought.” Twenty-five probate court judges, probate court registers, lawyers, professors and others are appointed.

July 1998 – Task Force unanimously adopts 11 recommendations.

April 1, 2000 – Michigan legislature adopts the Estates and Protected Individuals Code, replacing the Revised Probate Code, to make sure any new laws will follow the task force’s recommendations. For example, when possible, that a guardian consult his or her ward about major decisions.

October 2000 – Amendments to House Bills 5919 and 5921. The first, and so far seemingly only, legislative response to the Task Force’s recommendations. Two separate findings must be made on the record for a probate court to grant guardianship; a guardian cannot be given powers designated to a patient advocate; that guardians must give a copy of their annual report to the court, the ward and any other interested parties.

May 2005 - Gov. Jennifer Grandholm appoints 15 bureaucrats, attorneys, law enforcement officers, insurance administrators, finance experts and elder rights activists to serve on her Task Force on Elder Abuse.

March 2019 - Attorney General Dana Nessel created an Elder Abuse Task Force and with State Supreme Court Justices Richard H. Bernstein and Megan K. Cavanagh went on a statewide listening tour.

Full Article & Source: 
Guardianship legislation: a timeline

How a doctor learned to become a caregiver

Arthur Kleinman and his wife, Joan, who died at 71.

After his beloved wife was diagnosed with Alzheimer’s, Arthur Kleinman discovered that what he didn’t know was a lot



Arthur Kleinman’s wife, Joan, began to struggle with a rare form of early Alzheimer’s disease at 59. Eight years after losing her, the Esther and Sidney Rabb Professor of Anthropology in the Faculty of Arts and Sciences and professor of psychiatry and of medical anthropology at Harvard Medical School chronicles their journey in “The Soul of Care: The Moral Education of a Husband and a Doctor.” The book is part memoir, part examination of love and marriage, and an intimate look at how 40 years in the medical profession left him entirely unprepared to care for a loved one.

Q&A

Arthur Kleinman


GAZETTE: The book is so personal. Can you talk about the decision to write it and whether you talked to Joan about it?

KLEINMAN: I started writing a long time ago when she was just starting on her 10-year course of Alzheimer’s disease. She had a very particular kind of Alzheimer’s that affects only 5 percent of the people, and it began in her occipital lobes, which meant that she became blind first. To be both blind and have dementia is particularly trying, particularly for the person who has it, but also for the caregiver. Joan was 100 percent behind the idea of writing this. I came out of a background that was very unpromising for a caregiver. I was a very headstrong, heedless, and careless child. I was self-centered and incredibly ambitious and hard-driving. Those 10 years changed me almost entirely and made me realize how crucial the human aspect was. I was always good with patients and students, but I wasn’t like that generally, and taking care of her and seeing how sad and frustrating it was made me a different person, a better person.

GAZETTE: You were unprepared to be a caregiver. Can you elaborate?

KLEINMAN: My whole career was studying illness and caregiving, but it was the actual experience of being a family caregiver to someone I loved that I regard as a tremendous gift. I spent all of my time on things that I used to think were trivial, learning how to be vital about getting through it, rather than being matter-of-fact. The other thing I discovered was that no one had prepared me. If it weren’t for the neurologists, the diagnosis wouldn’t have been made for a year or two, but those doctors were hopeless when it comes to after-care. That whole field needs to change in terms of its understanding of after-care: how central families are, how essential it is to learn to work with then. What I really wanted to illustrate is that there are two health care systems in America. One is organized for trauma and acute disease. That’s a high-technology system that’s very powerful and functioning well. The other system is the chronic illness system. There, technology is doing very little, but it’s primarily the human interactions and that’s where it is failing. Most people don’t have long-term-care insurance. If we look at assisted living and our nursing homes, the system is tragic.
Arthur Kleinman
“If it weren’t for the neurologists, the [Alzheimer’s] 
diagnosis wouldn’t have been made for a year or two, 
but those doctors were hopeless when it comes to after-care. 
That whole field needs to change in terms of its 
understanding of after-care,” said Arthur Kleinman. 
Stephanie Mitchell/Harvard Staff Photographer
GAZETTE: You were fortunate to have the best doctors, connections, and access to care. How did the system fail you?

KLEINMAN: I felt that excellent doctors had missed what was most important, which is at the end of every engagement to ask the family member, “Well, you spend a lot of time with her. What do you think the problem is?” Think about this: No one at the beginning told me about a home health aide. We were three or four years into the disease before I realized I couldn’t keep doing what I was doing, and I needed help. My adult kids helped me. My mother helped me. But the best help I got was from a home health aide. I should have been told at the first meeting that at some point you’re going to need a home health aide. At some stage you realize, you can no longer be the caregiver. The burden is too great. For me, as Joan became weaker and weaker, and I was lifting her into the bath, out of the bath, into the bed, I was having trouble physically. I should have started to look earlier. I could have moved into assisted living with Joan, but no one told me about that. When we went to look for assisted living, it was so late in the course of her disease, they said, “You’ve made a mistake. You’ve taken care of her too long.”

GAZETTE: Joan brought the influence of the East, in particular China, to your life and your work. Can you talk about the part it played in the caregiving?

 KLEINMAN: What we learned the first time we lived in China and for 7½ years in total was the importance of family and the responsibility one has for each other, the interpersonal strengths one has to develop to be sensitive to others and moral commitments. That’s the insight of Chinese society. It provides that great genius of the power of relationships. It’s the defining thing in your life. There are a number of Chinese terms that I associated with Joan that helped us in this regard: renging guanxi, that relationships are moral, and qi, that each of us has a vital energy. And that’s what I meant in the book by presence. And it’s particularly presence that is critical in dementia or end of life because it’s so trying at times. And the idea of enduring, in the sense of how to live a family life of responsibility, guo ri zi. I think the American idea of resilience is overblown and not really relevant. Most of us endure. From the Chinese perspective, that’s your responsibility, to keep going. I found this kind of enduring the most difficult thing. Over 10 years, how to keep going. I believe it’s this human engagement. If you’re present, it’s this vitality that keeps you going. You feel, “I just barely survived.” Resilience doesn’t describe my experience. I barely survived, and it was a struggle all the time. And it was my sense I had learned as a clinical teacher that the suffering of a patient counts more than your suffering. I think if you get that balance right, doing the acts as a caregiver, that somehow also keeps you going.

GAZETTE: Since her death, you have started working on the Global Aging Initiative. What is the project about?

KLEINMAN: I had another topic when starting the book, which was trying to figure out elder care best practices. It was a comparison across China, Hong Kong, Seoul, Kyoto, Hanoi, and Bangkok. I was looking at how good care looks different in different environments. Now I’ve come to a much more specific topic, which is social technology for elder care. It’s an interdisciplinary project that involves engineers from the School of Engineering and Applied Sciences, Conor Walsh and Fawwaz Habbal; and Winnie Yip and David Bloom from the Chan School of Public Health; and Ann Forsyth from the Graduate School of Design; Tarun Khanna from Harvard Business School; and Hongtu Chen and myself from the Medical School. What we’re doing tries to put together social systems with particular technologies to help the frail elderly and the demented elderly in China.

GAZETTE: What does that look like exactly?

 KLEINMAN: To give you a sense of this project, I’ll tell you a story. There is this excellent exoskeleton for the legs. We took this idea to the many elderly women in Shanghai living in high-rise apartments. We showed them illustrations of how this works. They said, “Wow, fantastic, but I’d never use it.” We asked why. They said, “It’s so dangerous to cross the road here. Cars don’t stop. We wouldn’t trust it. But if you really want to help us, we have six friends, all in similar conditions in different apartment buildings here in Shanghai. We would like to twice a week get together and go to a tea house. Right now, we feel isolated. If you could figure out a way with social technology to get us there and back safely, that would change our lives.” We had it all backwards. That becomes an interesting issue for technology and anthropology. Maybe the exoskeleton would be useful in this instance, but if so, probably not the legs, but for the arms of a carer to get them from a 12th floor to a lobby of a building, and doing this for six people. How do you organize this? Is it a van? Who goes with them? How does the actual human experience come together with the technology? That’s the project we now have.

Interview was edited for clarity and trimmed for space. 

Full Article & Source:
How a doctor learned to become a caregiver

Friday, December 6, 2019

Tonight on Marti Oakley's TS Radio Network: In the Mix with Coz and Marti: Shenanigans Updates and How to Deal With "Glory Hogs"

7:00 PM CST

"Tonight we will be discussing some recent events...like the lady who was held in contempt of court for having the audacity to have a sudden seizure while his Royal Highness, the judge, was berating her. We will be be discussing other various cases that have surfaced over the last few weeks.

Also! Coz will school us all on how to deal with "glory hogs". You all know them, you have all encountered them. They gather everyone elses work and efforts and then stand up and take credit for them Glory hogs show up everywhere. According to them, they are always the "leader", the most notable, the most important and have an ever changing persona. Always insulting, always trying to minimize or marginalize anyone elses efforts, the Glory Hogs nonetheless, always claim they are owed some kind of apology. The Glory Hogs show up whether invited to an event or not...after all.....they are a STAR! Coz will discuss a recent episode she encountered, and how it affected not only her, but others on the page where it was posted."

LISTEN LIVE or listen to the archive later