Showing posts with label Care Homes. Show all posts
Showing posts with label Care Homes. Show all posts

Tuesday, January 3, 2023

Making the care environment more dementia-friendly

Pictured on a simulated train journey on Medical Ward 1 in Nenagh Hospital were Siobhan Toomey, CNS Patient Flow, Nenagh Hospital; Vimal Mathai, CNS ICPOP, Thurles; Celia Dwan, ADON, Nenagh Hospital, and Elaine O’Sullivan, CNM2 Medical Ward 1, Nenagh Hospital. This quality improvement project for people uses reminiscence therapy to improve the experience of patients with dementia in Nenagh.

Nenagh Hospital's innovative train project

A project focused on the needs of people with dementia is improving the patient experience at Nenagh Hospital.

Patients are invited to take a simulated train journey through the interactive RemPods platform, which has been in use in care homes and hospitals in the UK for a number of years.

An LCD screen displays footage of rolling countryside, pulls through tunnels and into stations along the journey, facilitating reminiscence to reduce anxiety and stimulate positive memories in older patients with cognitive impairment.

Vimal John Mathai, Clinical Nurse Specialist in the Integrated Care Programme for Older Persons in Thurles, said this quality improvement project for Nenagh met a need where acute hospital environments were not as well set up for persons with dementia as care homes.

Mr Mathai has a specialist interest in dementia and has led out on the RemPods/ Reminscence Therapy project in Nenagh.

“A quarter of all patients admitted to Nenagh Hospital have dementia. I have worked in Nenagh myself and all the team there are focused on what we can do to improve things for this older group of patients. It’s fair to say that the clinical environment in an acute hospital is not as dementia-friendly as in a nursing home, for example.

“Admission to an acute hospital can be confusing and frightening for a person with dementia. Even though they need to be in hospital, the stay might also have a negative impact on their physical, mental and cognitive abilities. How acute hospitals are designed very often doesn’t meet the needs of people with dementia. Signage can be confusing; lighting can be poor; the environment can be cluttered with inadequate space for visiting,” Mr Mathai said.

TRAIN PROJECT

The train project in Nenagh, which has now opened on Medical Ward 1, focuses in particular on the different care needs of people with dementia. The initiative has been supported by management and ward staff, including ward manager, Elaine O’Sullivan.

Patients will board the train while having a meal, while welcoming a visitor for hospital or while waiting to be transferred or discharged. Feedback has been very positive from patients, families and staff to date, Mr Mathai said.

Through the RemPods platform, patients are encouraged to share their life experiences, memories and stories from the past. This is known as reminiscence therapy.

“Typically, a person with dementia is more able to recall things from many years ago than recent memories, so reminiscence draws on this strength. In many cases, recent memories deteriorate first for people with Alzheimer's and other forms of dementia. By sharing memories from the past through reminiscence therapy, people with dementia can develop more positive feelings while reducing stress and agitation,” explained Mr Mathai.

“Reminiscence therapy encourages discussion of memories that have been stored away. It helps stimulate those memories through sensory organs. This causes the brain to react differently than usual. Those reactions can impact emotions or behaviour. Studies have shown that reminiscence therapy can help older adults become more engaged.”

Commenting on the new project, Prof Michael Watts, Consultant Physician, UL Hospitals Group, said: “This is yet another example of Nenagh Hospital adapting to the challenges of providing care for the patients of UL Hospitals Group. Congratulations to Elaine, the staff on Medical 1 and to Vimal for all of their work.”

Full Article & Source:
Making the care environment more dementia-friendly

Thursday, November 19, 2020

Pulled from care homes during pandemic, these seniors thrived — highlighting 'urgent' need for change: expert

Pandemic creates new issues in personal care homes, highlights old ones, experts say

 

by Caitlyn Gowriluk  

Sharon Webb pulled her grandmother, Mary Goertzen, out of Winkler's Salem Home this summer. (Sharon Webb/Submitted)

On a hot July day that was supposed to be one of her last, Mary Goertzen's grandchildren climbed one by one up a ladder to say goodbye through the window of her Winkler personal care home.

With visitor restrictions in place to stop COVID-19 from making its way into Salem Home, it was the only way most of Goertzen's family could see her for the last time.

"Everything about it was wrong," said Goertzen's granddaughter, Sharon Webb. "It was heart-wrenching to watch."

Days later, the care home's rules tightened again to only allow Goertzen one visitor every 12 hours. That meant her family would need to work in staggered shifts, keeping a meticulous schedule to make sure the 85-year-old wouldn't be alone.

But Webb saw another option. She and her husband decided to bring her grandmother home to live her last days with them — but what happened when she got there, Webb said, was nothing short of miraculous.

"Mentally, emotionally, spiritually, she just completely turned around," she said. "[She] just had this will to stick around."

Most of Mary Goertzen's family had to visit her through the window of her personal care home this summer, after staff at Salem Home told her family that Goertzen likely didn't have much longer to live. (Sharon Webb/Submitted)

About four months earlier, Lois Coleman Neufeld made the same decision for her mother, just as sites across Manitoba started restricting visits when the first cases of COVID-19 were detected in the province.

After one of their weekly Sunday outings — spent at church then at her house for lunch — Coleman Neufeld was walking her mother back into Parkview Place when a worker at the Winnipeg care home stopped them.

"[They] said, 'You can't come in. We're in lockdown,'" Coleman Neufeld said. 

"So we started asking questions about, 'Well, would we be able to come and visit tomorrow? Would we be able to take her out again?' And of course, it was new for everybody, so nobody had any answers."

In the meantime, she decided to bring her mom home to live with her. But over the next few days, it became clear what the new rules would mean for someone with dementia.

"I knew that if I left mom there, it would be like condemning her to a slow, painful death," she said.

Lois Coleman Neufeld brought her mom, Joy Coleman, home to live with her this past spring, after the personal care home where she was living brought in new COVID-19 restrictions. (Robert Neufeld/Submitted by Lois Coleman Neufeld)

And within a month of having her mom back at home, Coleman Neufeld said she also started seeing changes. The 91-year-old who could once only walk a few hundred metres before getting tired was now some days walking well over a kilometre.

It was a stark change from the woman living in Parkview Place who, unable to participate in most activities, was left in her room, discouraged and depressed.

"For the first time in years and years and years, I saw her cry. She's a very strong woman. She doesn't cry," Coleman Neufeld said, voice trembling. "So the question of taking her out wasn't a huge issue, in a way, to resolve. The biggest issue was, can I manage it?"

A difficult decision

While the improvements Webb and Coleman Neufeld saw were undeniable, so were the challenges they faced — and the sacrifices they had to make.

Webb, who is self-employed as a wedding planner, was able to take time off to become her grandmother's full-time caregiver.

And while she initially set her grandma up on a bed in her living room so she could spend her final days with a view outside, it eventually became clear that the arrangement needed to be more permanent. Webb and her husband moved to their basement while Goertzen moved into their upstairs bedroom.

Meanwhile, Coleman Neufeld was already on long-term disability, and her partner went down to part-time work to help her manage the new role. The shift also means she has less time for things that were usually part of her life, like camping, volunteering and seeing her grandchildren.

Lois Coleman Neufeld out for a walk in August with her mom, Joy, and her dog, Mulan. (Robert Neufeld/Submitted by Lois Coleman Neufeld)

"I think acknowledging the difficulty is a really important step," said Coleman Neufeld, "and to always try to keep your pulse on the issues or the developments or how you're feeling, how the caregiver is feeling."

The decision to pull out of a care home

As care homes across Manitoba report COVID-19 cases, and as some report outbreaks and deaths, pulling family members out can seem like a good option — but not everyone is equipped to do that, said Michelle Porter, director of the Centre on Aging at the University of Manitoba.

"It is really important for people to be — if they are going to contemplate making this decision — that they are [as] informed as they can be in making the decision so that they are able to handle the load," Porter said.

There are many factors to consider before taking that step, Porter said.

Those include considering whether a family or individual can provide the kind of care needed, whether their home is safe and whether — if things don't work out — they'll be able to readmit their loved one to their place of choice.

Care home beds in the Winnipeg area, for example — where Coleman Neufeld's mother's former care home is — are only held for social leaves, not full discharges, said a spokesperson for the Winnipeg Regional Health Authority (though clients are given a long-term care contact who will try to help facilitate readmission to their facility of choice if a bed is available). 

In the Southern Health region — where Webb's grandmother's former care home is — social leaves are allowed for up to 21 days, a spokesperson said, but after that the person would have to restart the panelling process to be placed back in a care home.

The pandemic has also shone a light on longstanding issues in long-term care, said Porter, including shared rooms that have made infection control nearly impossible and inadequate staffing that means many residents aren't getting the level of care they need.

While there's no comparing the care a person would get in a facility to the one-on-one attention they might get at home, the current recommendation of 3.6 care hours per resident should be increased to 4.1, she said.

"We certainly know that staffing should be changed so that we can have more full-time positions that are better paid that would enable people to be working in one place, building relationships with residents," she said.

"If they're running from one place to another because they can only get so many hours at each place, that's obviously not good for the staff, but it's also not good for residents."

And while Manitoba now seems to be taking steps to address some of its more glaring issues within long-term care, it remains to be seen whether those efforts will be adequate, said Laura Tamblyn Watts, CEO of CanAge, a national seniors advocacy group.

"Do I believe that the Manitoba government, over the course of this first wave and now entering the second wave, knows the ingredients in the recipe for change? I do. The question is: will they actually move quickly enough?" she said.

"Every day that these issues are not addressed are days that lives are lost. It is, in my view, the most urgent situation that we have in Canada in the time of COVID-19."

Politicians 'shrug their shoulders'

Pulling their family members out of care didn't solve everything: Webb's grandmother still sees a palliative home care nurse and gets regular care for bedsores, and Coleman Neufeld's mother still requires help with things as simple as eating. But the thought of what may have happened otherwise is enough to make them grateful they were in a position to make that choice.

"Had we not pulled my grandmother out, I know she would not be here today. And I think it would have wrecked all of us," Webb said. "I think we would have just all been so wounded by that, I don't know as a family where we would be today."

Coleman Neufeld, whose mother lived in a care home that has since become the site of Manitoba's deadliest COVID-19 outbreak, is also haunted by what might have been.

"I think about it all the time. When the news came out, I felt so bad for the staff members and I felt bad for the families as well as the residents, that they're being isolated, that families feel abandoned, not being able to do what they feel is their responsibility to care for their parents," she said.

"I think I would have died.... I can only imagine the angst that families are feeling."

Both Webb and Coleman Neufeld are frustrated — even angered — by what they see as a general indifference from the people who are supposed to be solving problems in long-term care.

"I don't have any easy solutions, but neither do I hear discourse in amongst the politicians or in the care home setting," said Coleman Neufeld. "They mostly shrug their shoulders. 'Well, what can you do?'"

Reflecting on stories she's heard from families across the province, Webb agrees.

"I don't think the general public has even a glimpse of the things that are happening right now," she said. "And if we knew, nobody would want to put their loved one in a care home."

Full Article & Source:

Saturday, November 7, 2020

Judge says care home residents in England are legally allowed visitors

Mr Justice Hayden said courts were concerned about the impact on elderly people of lockdowns. Photograph: Rosemary Roberts/Alamy Stock Photo

A senior judge has said friends and family can legally visit their loved ones in care homes, in an apparent challenge to recent government policy that has in effect banned routine visits in areas of high Covid-19 infection.

Mr Justice Hayden, vice-president of the court of protection which makes decisions for people who lack mental capacity, said courts are concerned about the impact on elderly people of lockdowns. He has circulated a memo that sets out his analysis that regulations do “permit contact with relatives” and friends and visits are “lawful”.

He was responding to guidance from the Department of Health and Social Care (DHSC) last month telling thousands of care homes in England that visiting should be stopped in areas with tier 2 and tier 3 lock down restrictions, apart from in exceptional circumstances such as the end of life.

It triggered blanket prohibitions by some councils and sparked anguish from relatives who warn a lack of contact is leading to misery and early death in some cases. Within a week, Gloucestershire county council told care homes in its area to stop visits until next spring.

With the England-wide lockdown starting on Thursday, care home providers, families and groups including Age UK and Alzheimer’s Society, have called on ministers to this time make clearer provisions for visiting. The high court judge’s comments, issued on 15 October, could boost their cause.

Hayden said exceptions in the existing regulations mean contact with residents staying in care homes is lawful for close family members and friends. He said the court of protection was concerned about “the impact the present arrangements may have on elderly people living in care homes,” citing their suffering.

Relatives and residents have become increasingly despairing at a lack of access, with some feeling their loved ones are in effect “imprisoned”. A promise by the care minister Helen Whately on 13 October to start testing relatives to allow them to visit has not been fulfilled.

Whately had told parliament that selected close relatives could be treated like key workers and allowed into care homes saying: “I am planning for us to launch a pilot on that shortly.” But no pilot has been launched. DHSC officials say they are “considering plans” with and promise further details “in due course”. Rapid turnaround saliva testing has been mooted by NHS test and trace as one way of allowing more care home visits and is being trialled in Liverpool, where the mayor, Joe Anderson, on Tuesday said it would be used in care homes.

“We can no longer stand by and watch the erosion of people’s human rights and the impact of isolation through the effective blanket bans on visiting in care homes,” said a statement co-ordinated by the National Care Forum ahead of MPs voting on Wednesday about new lockdown restrictions. NCF represents charitable care home providers and its call is backed by 60 care organisations, health charities and relatives groups.

“We know that isolation caused by restrictions on visits from loved ones is intrinsically harmful and we have heard over and again the extreme anguish that this is causing. After eight months of visitor restrictions – we cannot continue like this – there is simply not enough time for many of those living in care homes today to watch and wait.”

Blocks on care home visits were introduced in spring to reduce the spread of the virus into settings with highly vulnerable populations. More than 18,000 people have so far died from confirmed or suspected Covid-19 in UK care homes.

A spokesperson for the DHSC said: “We know limiting visits in care homes has been incredibly difficult for many families, but our first priority remains the prevention of infections to protect the lives of vulnerable residents.”

Some care residents have been in isolation since March triggering rising concern at the impact on their mental and physical health.

John’s Campaign, which lobbies for greater involvement of family and friends in care, has launched a legal claim over the government’s visiting policy which details harrowing cases of separation, according to filings seen by the Guardian.

Full Article & Source:

Wednesday, October 14, 2020

Robots to be used in UK care homes to help reduce loneliness

Machines can hold simple conversations and have been found to improve mental health

 
The wheeled robots, called Pepper, have been successfully trialled in the UK and Japan.

Robots that can hold simple conversations and learn people’s interests are to be deployed in some UK care homes after an international trial found they boosted mental health and reduced loneliness.

The wheeled robots, called “Pepper”, move independently and gesture with robotic arms and hands and are designed to be “culturally competent”, which means that after some initial programming they learn about the interests and backgrounds of care home residents. This allows them to initiate rudimentary conversations, play residents’ favourite music, teach them languages, and offer practical help including medicine reminders.

The researchers, led by Dr Chris Papadopoulos at the University of Bedfordshire, said the trial was not intended to explore the replacement of human carers with robots, but to help fill lonely periods when, because of a stretched social care system, staff do not have time to keep residents company.

The trial, in the UK and Japan, found that older adults in care homes who interacted with the robots for up to 18 hours across two weeks had a significant improvement in their mental health. There was a small but positive impact on loneliness severity among users and the system did not increase feelings of loneliness, academics found.

The robots’ limitations centred on their conversations feeling superficial and lacking “richness”, users said. They lacked personalisation and sometimes did not show enough cultural awareness, and their head movements and hand gestures were sometimes distracting. The analysis was part of a £2.3m research project funded by the European commission and Japanese government.

Advinia Healthcare, a trial location and one of the largest providers of dementia care in the UK, said it was “working towards implementing this into routine care of vulnerable people to reduce anxiety and loneliness and provide continuity of care”.

“This is the only artificial intelligence that can enable an open-ended communication with a robot and a vulnerable resident,” said Dr Sanjeev Kanoria, the Advinia chairman. “Now we are working towards bringing the robot into routine care, so it can be of real help to older adults and their families.”

He said the robots would not directly lead to job cuts but would be worth using because happier residents mean less work for staff and improve satisfaction ratings, boosting occupancy.

The initiative comes amid a continuing staffing crisis for UK care homes exacerbated by the coronavirus pandemic, during which more than 18,000 residents have died of confirmed or suspected Covid-19.

Before the outbreak, the care industry had at least 120,000 vacancies and the largest operators this week told MPs that staff are suffering “burnout”, and the strain is being increased by the financial difficulties many operators are facing, after costs soared and occupancy levels fell.

A single robot loaded with software costs about £19,000, about £1,000 more than the average salary of a care worker in south-east England. But cheaper robots could also be used.

Care England, which represents the largest providers, said the robots were not likely to replace staff but might help create deeper and higher-quality relationships with residents.

“In the UK alone, 15,000 people are over 100 years of age and this figure will only increase,” said Irena Papadopoulos, a professor of transcultural health and nursing at the University of Middlesex. “Socially assistive, intelligent robots for older people could relieve some pressures in hospitals and care homes. No one is talking about replacing humans – the evaluation demonstrates that we are a long way from doing that – but it also reveals that robots could support existing care systems. While results demonstrate that our experimental robot was more culturally competent to users, they also reveal that there is room for improvement.”

Vic Rayner, the executive director of the National Care Forum, which represents charitable care providers, said: “Robots in social care should not be seen as part of a frightening futuristic vision. They offer key additions to how care is delivered that need to be explored further and understood. Covid-19 has shown us that rather than being a sector which does not understand technology, it is in fact one that is ripe to explore how technology can improve efficiency, support data flow and enhance communication with families and loved ones.”

Full Article & Source:

Thursday, August 27, 2020

NHS care homes told to put ‘Do Not Resuscitate’ orders on all residents at Covid peak

Christopher Furlong/Getty Images
Care homes were told to introduce blanket “do not resuscitate” (DNR) orders for all residents at the height of the coronavirus pandemic, according to a new report.

A survey of 128 care home managers and nurses by the Queen’s Nursing Institute charity found that one in ten of the institutions was ordered by NHS bosses to introduce DNRs without permission from the residents, family members or fellow staff, in order to free up hospital beds.

Half of the staff members who said they had been asked to change DNRs worked in homes for the elderly, while the other half worked in homes for younger people with learning or cognitive disabilities, The Times reports. 
 
A fifth of the survey respondents also said that they received residents from the hospital sector who had tested positive for Covid-19 during March and April.

An unnamed respondent told the researchers that care homes “were advised to have [DNR orders] in place for all residents”, adding: “We acted in accordance with medical advice and resident wishes, not as advised by a directive to put in place for all by a clinical care group representative. We challenged this as unethical.”

Report author Professor Alison Leary has described the findings as “worrying” and is calling for a public inquiry. 

“These decisions were being made by NHS managers not clinicians,” Leary, a professor of healthcare and workforce modelling at London South Bank University, told The Telegraph.

She added that “the way the situation for care homes has been handled needs a retrospective view, particularly because winter is coming, which is always a difficult time” for the elderly and other vulnerable people.

Reports over the treatment of residents in care homes hit by Covid outbreaks sparked widespread outrage back in April. In response to the public anger, ministers forbid the use of blanket DNR agreements and instructed the Care Quality Commission to “urgently” tell homes to tear up agreements that “would stop residents getting access to full healthcare if they choose it”, as the London Evening Standard reported at the time.

Full Article & Source:
NHS care homes told to put ‘Do Not Resuscitate’ orders on all residents at Covid peak

Wednesday, May 27, 2020

Were conditions for high death rates at Care Homes created on purpose?

During the COVID-19 pandemic, people in care homes have been dying in droves.

Why is this happening? Is it simply because older adults are very vulnerable to SARS-CoV-2 and therefore it’s not unexpected that many would succumb?

Or do care homes deserve the lion’s share of the blame, such as by paying so poorly that many workers have to split their time between several facilities, spreading the virus in the process?

Alternatively, could medical experts and government bureaucrats, with the full knowledge of at least the top tier of government officials, have created conditions shortly after the pandemic struck that contribute to the high death tolls while engendering virtually no public backlash against themselves?

This article shows that the third hypothesis is highly plausible. The people who created the conditions may be unaware of, or oblivious to, their implications. But it’s also possible that at least some of them know exactly what they’re doing.

After all – seeing it from an amoral government’s point of view – the growing numbers of elderly are a big burden on today’s fiscally strained governments, because in aggregate they’re paying much less into the tax base than younger people while causing the costs of healthcare and retirement programs to skyrocket.

Here are three sets of conditions that collectively create a framework for enabling significantly boosted care-home deaths – and doing so with impunity – even while most of each set of conditions in isolation may appear to be purely for the benefit of everyone in society:

One. Bureaucrats develop extremely broad definitions of novel-coronavirus infections and outbreaks. This is coupled with the continuing presence, in a number of care homes scattered across each jurisdiction, of at least one nurse or physician who follows every letter of all definitions and rules. (Such individuals are always present in every discipline, but in the medical milieu their actions can be deliberate, deadly and very hard to detect.)

Two. Influential organizations and individuals produce hospital-care-rationing guidelines that recommend younger people receive higher priority than the elderly during the pandemic, by giving significant weight to how many years of life patients would have ahead of them if treatment is successful. Also, some guidelines bar care-home residents from being transferred to hospital.

Three. The chief coroner and leaders of the funeral, cremation and burial industries craft procedures that fundamentally change the way care-home deaths are documented and bodies dealt with. Their stated goal is to prevent overburdening of medical staff and body-storage areas during a surge in COVID-19 deaths.

They also put them into effect very quickly with no notice to the public; this gives those directly affected very limited opportunity for input or push-back.

Among the many radical changes is death certificates are no longer completed by people who care for care-home residents; instead, they are filled in by the chief coroner’s office.

Also, examination of the undisturbed death scene is prevented, as are all but a very few post-mortems and other sober second looks at the cause and mode of death.

In the background are the complicit ranks of public-health organizations, politicians, media and many other influential individuals. When the pandemic first strikes they focus on how new, dangerous and poorly understood the virus is. As one side effect, this scares many care-home staff so much they flee in fear, leaving their overwhelmed colleagues to cope.

After a short time, they also start to distract the public and victims’ loved ones from uncovering the three sets of conditions by focusing on other factors in the rash of deaths among institutionalized elderly – and by insisting the solution to everything is more testing and contact tracing, along with accelerated vaccine and anti-viral development.

This article shows how the three sets of conditions were put in place in Ontario, Canada.

Variations on these conditions very likely have been crafted in other jurisdictions in North America, Europe and elsewhere. An exclusive interview with the daughter of one of the dozens of people who died during an outbreak at an Ontario care home illustrates how the three sets of conditions work in practice.

Condition Set One: Broad Definitions of Novel-coronavirus Infections and Outbreaks


At the start of the novel-coronavirus epidemic in Ontario, formal definitions of infections and care-home-outbreaks weren’t issued, at least not publicly.

Rather, in late March Chief Medical Officer of Health for Ontario, Dr. David Williams, and the Associate Chief Medical Officer of Health, Dr. Barbara Yaffe, described the criteria verbally during their daily press briefings.

An outbreak should be declared when two or three people show symptoms of infection with the novel coronavirus, they said.

Also, polymerase chain reaction testing for viral RNA wasn’t required for confirmation.

This is a loosened version of criteria used in the province prior to the novel-coronavirus epidemic. These previous criteria defined an outbreak as either: two people in the same area of a facility developing symptoms within two days of each other (making their infections ‘epidemiologically linked’) and at least one of them testing positive for viral RNA; or three people in the same area developing symptoms within two days of each other.

On March 30 the Ontario health ministry released new rules for defining and managing care-home outbreaks (with the document confusingly dated April 1). Staff at all Ontario care nursing homes were trained on the new rules via webinars two days later, on April 1.

The new rules included an even broader outbreak definition: the presence of only one person with just one symptom of a SARS-CoV-2 infection. Outbreaks were deemed confirmed when just one resident or staff member tested positive; subsequently, every resident in the care home showing any coronavirus-infection symptoms is deemed to have COVID-19.

Notably, however, there wasn’t a symptom list in the document. Dr. Williams said on April 1 during that day’s press briefing they deliberately did not include a list of infection.

This is because:
“to look for those symptoms [in the rest of the care-home residents after the initial case is identified] is a challenge, particularly in seniors,” […] “They may not mount a fever, they may have a lot of other symptoms and they may not have obvious symptoms. [Rather,] any change in their health condition really [can be considered a symptom].”
A few minutes later Dr. Williams added:
I don’t mind false alarms. [As a result of the looser outbreak criteria] the numbers [of outbreaks that] we see might be[come] quite [a bit] larger …. [But that’s because w]e want to ramp up the sensitivity. [That] means the number of outbreaks will go up, because we’ve widened the definition.”
One week later, April 8, a Provincial Testing Guidance Update was issued. It included the following list of symptoms (most of which are highly non-specific): fever, any new or worsening acute respiratory illness symptom – for example cough, shortness of breath, sore throat, runny nose or sneezing, nasal congestion, hoarse voice, difficulty swallowing – and pneumonia.

The document also listed several symptoms that are “atypical” but “should be considered, particularly in people over 65” [italics added]: unexplained fatigue/malaise, acutely altered mental status and inattention (i.e., delirium), falls, acute functional decline, worsening of chronic conditions, digestive symptoms (e.g., nausea/vomiting, diarrhea, abdominal pain), chills, headaches, croup, unexplained tachycardia, decreased blood pressure, unexplained hypoxia (even if mild) and lethargy.

Then on April 22 the province produced the first COVID-19-screening guidelines for care homes. It’s broadly similar to the April 8 document, except that two or more of some of the symptoms – for example sore throat, runny nose and sneezing, stuffed-up nose, diarrhea – need to be present for a person to be deemed positive.

On May 2 a new testing guidance and a new screening guide were released. Both documents concede that if a person has only a runny or stuffed-up nose, “consideration should be given to other underlying reasons for these symptoms such as seasonal allergies and post-nasal drip.” 

They also narrow the definition of falls considered diagnostic of a novel-coronavirus infection in people over 65, to falls that are unexplained or increasing in number.

However, they add to the symptom list another three that are very non-specific: a decrease in sense of taste, abdominal pain and pink eye.

There are enormous implications to having overly broad definitions of symptoms and outbreaks, particularly in combination with other rules put in place at the beginning of the epidemic. 

Broad definitions very likely are used in many other jurisdictions around the world, albeit perhaps masked by the use of somewhat different terms.

First, in Ontario, in every facility with an outbreak, every resident with even just one symptom is defined as being a ‘probable’ COVID-19 case. This applies whether these residents had an inconclusive or negative viral-RNA test result – or even weren’t tested at all.

Second, the cause of death of everyone who had been diagnosed with a SARS-CoV-2 infection is recorded as being COVID-19. This is a dictate of the World Health Organization and is followed throughout North America, Europe and elsewhere.

Third, COVID-19-attributed deaths are deemed ‘natural’ by new rules released by the chief coroner on April 9 (see ‘Condition Set Three,’ below). In all but an extremely small number of cases, natural deaths are exempt from any further investigations or post-mortems. (Over the last 30 years post-mortems have become rare, but to almost completely remove the possibility is another matter.)

Taken together, this may explain what the daughter of a woman who died along with dozens of others, during a COVID-19 outbreak at an Ontario care home experienced. The daughter granted the author an exclusive interview on May 13. (Under a pseudonym to shield her from possible repercussions.)

Diane Plaxton said in the interview that on April 1 she received a shocking and unexpected phone call from her mother’s care home.

“Your mother’s declining. She’s been having loose bowels and lots of diarrhea. There’s a DNR on her chart. And we’re not sending anyone to the hospital. [Likely because of ‘Condition Set Two,’ below] We’re going to have to put her on palliative care,” Plaxton recalls the head nurse telling her in a cold, uncaring voice.

Plaxton was stunned. She knew about her mother’s diarrhea: it was from bowel-cleansing meds she’d been on for about nine days, after being diagnosed with a clogged bowel. Plaxton told the nurse that if her mother seemed to be declining it probably was from the diarrhea and resultant dehydration.

She suggested to the head nurse that she give mother IV rehydration. The nurse refused, saying it would “just prolong the inevitable.”

The head nurse didn’t say the word COVID-19, nor tell Plaxton the home had been declared to have an outbreak that day.

She also didn’t mention that on March 30 the province had issued new rules on novel-coronavirus infections and outbreaks, then trained all of Ontario’s care-home staff on them via webinar April 1. As described above, the rules included very broad definitions of SARS-CoV-2 infections and outbreaks.

Therefore the nurse could well have been complying fully with the new rules by diagnosing Plaxton’s mother with a novel-coronavirus infection based on her having diarrhea alone (and without telling Plaxton any of this).

Furthermore, since transfer to a hospital was not an option (as per ‘Condition Set Two’) and since COVID-19 is deemed to be very frequently fatal in the elderly, this may be why the head nurse pushed Plaxton so hard to consent to palliative care for her mother.

Shaken but unbowed, Plaxton asked the head nurse to let her speak to the nurse who had been directly caring for her mother.

Fortunately, that second nurse was kind, and agreed that palliative care was not appropriate for Plaxton’s mother. She agreed instead to allow her to not take the bowel-cleaning meds, and to coax her to eat and drink to recover her fluids and strength. She also said she’d keep an eye on the slight fever Plaxton’s mother had.

Over the next few days this plan worked, and the nurse told Plaxton she needn’t worry.

That’s why it hit Plaxton like a gut punch when on April 10 she got a call from another nurse, who was panicking. She told Plaxton her mom was struggling to breathe and “going fast.”

The nurse said the care home couldn’t transfer her to the hospital. She asked Plaxton’s permission for the doctor to give her mother “a shot to ease her passing.”

(The nurse didn’t tell Plaxton what ‘the shot’ was. But it very likely was morphine, which is routinely used to relieve severe pain. A high enough dose of morphine slows people’s breathing and hastens their death.)

Plaxton was reeling. She immediately consulted with her sister; together they decided to give consent for the shot. Three hours later their mother was dead.

Condition Set Two: Hospital-care-rationing Guidelines


In mid-March, not long before Plaxton’s mother died, treatment-rationing guidelines for during the pandemic started to proliferate.

For example, on March 21 the UK’s National Institute for Clinical Excellence produced its guidelines.

They’re based on a frailty score and on mortality probabilities across different age groups for pneumonia and underlying cardiovascular or respiratory diseases.

On March 23 the paper “Fair allocation of scarce medical resources in the time of Covid-19” was published in the prestigious New England Journal of Medicine. The paper’s first recommendation calls for:
maximizing the number of patients that survive treatment with a reasonable life expectancy.”
(Interestingly, the paper’s lead author, Ezekiel Emmanuel, MD, PhD, is an oncologist, bioethicist and senior fellow at the Center for American Progress. The centre is secretive about its funders but according to a 2011 investigation in The Nation its supporters included dozens of giant corporations ranging from Boeing to Walmart. Today, retired general Wesley Clark and executive VP of global investment firm Blackstone Henry James are among the organization’s trustee advisory board members.)

On March 27, the equally influential Journal of the American Medical Association (JAMA) published “A framework for rationing ventilators and critical-care beds during the COVID-19 pandemic.”

The paper’s authors assert that:
[y]ounger individuals should receive priority, not because of any claims about social worth or utility, but because they are the worst off, in the sense that they have had the least opportunity to live through life’s stages.”
Ontario Health published guidelines for hospital-treatment rationing on March 28, albeit not publicly. (To this day the government hasn’t made the protocol public, nor disclosed whether or when they implemented it.)

At that time a crush of COVID-19 patients crowding Ontario hospitals wasn’t a realistic possibility for at least the short or medium terms (contrary to the pandemic-curve theoretical modelling), because all elective hospital procedures and surgeries had been cancelled or indefinitely postponed.

Toronto Star reporter Jennifer Yan obtained a copy of the Ontario treatment-triaging document and wrote in a March 29 article that:
[u]nder the triage protocol, long-term-care patients who meet specific criteria will also no longer be transferred to hospitals.”
Then on April 10, the Canadian Medical Association adopted all the recommendations by Dr. Ezekiel and his co-authors in their New England Journal of Medicine paper, and advised Canadian physicians to follow them.

The Canadian Medical Association statement (whose authors were not listed) asserted that “the current situation, unfortunately, does not allow for” the time for Canadian experts to create their own recommendations.

This is tendentious. Canadian healthcare providers and researchers have access to as much information about COVID-19 as do others around the world. In addition, many had direct clinical experience with a close cousin of the novel coronavirus, SARS-CoV, in 2003.

Indeed four Canadians co-authored an ethical framework for guiding decision-making during a pandemic that was based on their experience with SARS and published in 2006. They made no mention of age as a criterion for treatment triaging in that framework.

On April 17 the Canadian federal government released information to guide clinicians in rationing healthcare resources during the SARS-CoV-2 epidemic. Unlike at least some other COVID-19-related guidelines issued in the same period, it was not accompanied by a press release; therefore it has flown under the public radar.

The document includes an emphasis on age-based rationing. It also explicitly discourages transfer of care-home residents to hospitals:
Long term care (LTC)[care-home] facilities and home care services will be encouraged to care for COVID-19 patients in place and may be asked to take on additional non-COVID-19 patients/clients to help relieve pressure on hospitals”
This is underlined in another place in the document:
If COVID-19 does develop in LTC facility residents, they should be cared for within the facility if at all possible, to preserve hospital capacity.”
Prohibiting transfer to hospital drastically narrows the treatment options available to care-home residents.

There have been transfers of care-home residents to hospitals in Canada during the COVID-19 crisis, but until very recently they have been by far the exception.

(Instead, starting in mid-March as part of the clearing out of hospitals to make room for a putative surge in COVID-19 patients, thousands of elderly people were transferred from hospitals to care homes. This likely also contributed to the care-home death toll. More than one journalist has compared care homes to the Diamond Princess cruise ship: virus incubators with people trapped inside.)

All of this may well be why Plaxton was told by nurses at the care home that her mother couldn’t be transferred to hospital.

This also has played out at other care homes.

The medical director of the Pinecrest nursing home in Bobcaygeon, two hours’ drive northeast of Toronto, strongly advised residents’ family members against considering hospital transfer.

The Globe and Mail reported on March 29 that Dr. Michelle Snarr wrote families on March 21 (which was the day after three of the home’s residents tested positive for SARS-CoV-2) and raised the spectre of significant suffering and possible death if the elderly people were put on ventilators.

Dr. Snarr reiterated this in a March 30 television interview.

Once we heard it was COVID, we all knew it was going to run like wildfire through the facility […] The reason I sent the email was to give them a heads-up that this is not normal times. Under normal times, we would send people to the hospital if that was the family’s wishes, but we knew that was not going to be possible, knowing that so many people were going to all get sick at once and also knowing the only way to save a life from COVID is with a ventilator. And to put a frail, elderly person on a ventilator, that’s cruel.

[In another interview Dr. Snarr said they weren’t outright refusing hospital transfers.]

The last death attributed to COVID-19 at Pinecrest occurred on April 8; by then, 29 of the home’s 65 residents had perished.

“I’ve never had four deaths in a day at any nursing home I’ve worked at,” Dr. Stephen Oldridge, one of the physicians working at the home, was quoted as saying in the March 29 Globe and Mail article. “You feel helpless. Because there’s nothing you can do other than support them, give them morphine and make them comfortable.”

Dr. Oldridge told CBC a similar narrative on April 1:
“There is no vaccine, we have no effective treatment other than supportive care for these folks, and obviously there’s no cure. So when the infection takes hold in their lungs, in this elderly population we can just make them comfortable.”
Still other media reports indicate that care-home residents’ families in Canada have denied the option of transfer to hospital during the pandemic even if the residents are relatively young, do not have a DNR, and both they and their families want the option of a transfer. Instead, they are pressured to put DNRs in place. This also is happening elsewhere, such as in the UK.

Hugh Scher, a Toronto lawyer who’s been involved in some of Canada’s highest-profile end-of-life cases, strongly opposes this. He told the author in a telephone interview:

The notion that long-term-care-home or nursing-home medical directors can tell residents and their families that they can’t or shouldn’t be transferred to hospital if they need treatment for COVID or anything else – I don’t agree with that.

[…]
[But unfortunately] there’s now an aggressive push to say, ‘Granny’s already ninety-five … and sending her to hospital for a cough or a runny nose isn’t going to improve her underlying condition. And so she should be made comfortable and left to die.’

Condition Set Three: New Rules Surrounding Death Certificates and Removal and Disposition of Bodies


On April 9 the Chief Coroner for Ontario, Dr. Dirk Huyer, released rules for an ‘expedited death response’ in handling and disposition of bodies of people who die in care homes and hospitals.
The stated goal was to prevent infection spread, overburdening of medical staff, and overfilling of hospital morgues and body-storage areas in care homes in the event of a surge in deaths during the pandemic.

The new procedures were created jointly by Dr. Huyer’s office, the Ontario Ministry of Government and Consumer Services and the Bereavement Authority of Ontario (the province’s funeral-home, cremation-services and cemetery self-regulatory body).

They are a drastic sea change in the way deaths are handled in the province. Yet they were launched extremely rapidly with the only “surge” in sight one in mathematical models, and a significant body-storage-space problem based on hard data nowhere on the horizon (and still a low probability).

The new procedures went into effect immediately on April 9. Then over the next three days (the Easter long weekend), Dr. Huyer and the registrar of the Bereavement Authority of Ontario led webinars on them for staff of hospitals and care homes across the province.

“We pushed it [writing and releasing the new rules] a little more quickly than maybe was necessary because it’s a brand-new process and there’s thousands of people involved,” Dr. Huyer told Toronto Star columnist Rosie DiManno in explaining the haste.

As part of the new rules, the chief coroner’s office now completes the death certificates of every person who dies in long-term-care homes. The office also completes some death certificates of people who die in hospitals. Up until April 9, and for good reason, death certificates in Ontario were filled in by the physicians or nurse practitioners who cared for the people before they died.

In addition, as also noted in ‘Condition Set One’ above, COVID-19-attributed deaths are deemed ‘natural’ by the new rules. And all “natural” deaths are virtually exempt from any further investigations and post-mortems.

(Dr. Huyer was quoted in a May 18 Globe and Mail article as saying “a number” of COVID-19-attributed death investigations have been started – including that of a man whose daughter believes he died because of neglect at a care home and who asked the coroner’s office to investigate – but that he doesn’t know what that number is.)

Dr. Huyer said, in a phone interview:
“All of these things were added during this period of time to allow not only a timely approach but also an efficient approach to be able to ensure that people proceed to burial or cremation in a timely way without requiring extra storage space,”
Yet it was only 10 months ago that the official report on the high-profile Wettlaufer inquiry was released. It calls for many more checks and balances surrounding care – and more rather than less time and transparency in determining and documenting the causes of death.

Just 18 of the report’s 91 recommendations have been implemented. (The inquiry probed the killing in southwestern Ontario by nurse Elizabeth Wettlaufer of eight people, attempted murder of several others and aggravated assault of two more. All but two of the victims were LTCH residents.)

Moreover, the April 2020 rules also dictate that families must contact a funeral home within one hour of a hospital death and within three hours of a care-home death. The bodies are to be taken to the funeral home extremely rapidly, and from there to cremation and burial as quickly as possible.
This journalist wrote about the rules in a May 11 article.

Diane Plaxton found and read online the May 11 article. She suddenly understood more of what took place before and after her mother’s April 10 death.

She and this journalist connected, and the May 13 interview ensued.

Plaxton related, in that interview, that three hours after she got off the phone with her dying mother on April 10, a nurse called and matter-of-factly said her mother was dead. She asked Plaxton to call a funeral home.

And about an hour later, while Plaxton was still reeling, another nurse called and again told her to contact a funeral home.

“I got off the phone. That’s when I flew off the handle,” she told the author in the May 13 interview. “It’s like they’re treating her [body] like a piece of garbage: ‘Get her out of here! Ger her out of here!’”

As if that wasn’t enough trauma, at the funeral home four days later she saw COVID-19 listed as the cause of her mother’s death. Plaxton believes what really killed her mother was the combination of dehydration and chronic diseases including asthma; her shortness of breath on April 10 may have been an asthma attack, Plaxton surmises.

Making matters even worse, the funeral director told her she couldn’t take a copy or photo of the ‘Cause of Death’ form. He said she’d have to request a copy from the government and it could take months to arrive.

But the funeral director also commiserated with Plaxton. He was incredulous that her mother had gone from dehydrated to dead so fast. He also was bewildered by the requirements such as bodies having to be picked up in haste and arrangements for cremation and burial also having to be made extremely quickly.

“I’m just taking orders from the top down,” Plaxton recalls the funeral director telling her.

That’s the third of the three sets of conditions that can enable high death rates in care homes.

The three sets are the work of officials, experts and bureaucrats who – while being seen to serve the public interest and who could be unaware of, or oblivious to, the implications of the conditions – may in fact have hidden intentions.

Even if the latter is true, there’s little chance the perpetrators will be caught or punished.

On May 19 the Ontario premier announced that an independent commission will probe why so many people have died in the province’s care homes. This journalist believes it’s very unlikely the commission’s mandate will include scrutinizing the sets of conditions described in this article.

Perhaps the most elegant element of all is that just one or two people working at any given care home can suffice to translate the sets of conditions into actions – or inaction – that can be deadly for residents. And they’d probably be the only ones held responsible in the unlikely event any of this ever comes to light.

It’s all as simple as one, two, three.

Full Article & Source: 
Were conditions for high death rates at Care Homes created on purpose?