Disability rights activists protest against aid-in-dying measure

By Allen Tian

More than 20 activists for disability rights marched to the Secretary of State’s office to protest an aid-in-dying measure likely to end up on Colorado’s November ballot.

Holding signs that read: “Death does not cure anything,” “Give me liberty, Don’t give me death,” and “It’s not compassion, it’s contempt,” the protesters marched about 2.5 miles from the Atlantis Community Center to the Secretary of the State’s office. The march was led by a protester dressed as the ghost character from the movie, Scream.

The Colorado End-of-Life Options Act would allow mentally competent adult Colorado residents with a prognosis of six months or less to live to take life-ending drugs. Doctors would have to confirm the diagnosis and give such patients multiple opportunities to decline the drugs, which patients must self-administer.

Proponents of the measure last week delivered more than 160,000 signatures — well more than the number necessary to get on ballot — to the Secretary of State’s office. The office has 30 days to ensure that at least 98,492 signatures are valid. 

Disability rights groups ADAPT and Not Dead Yet, which led the protest, say the measure is too broad, lacks adequate safeguards, and risks exploiting the vulnerabilities of the disabled in a state that already has one of the highest suicide rates in the nation. 

Protester Carrie Lucas, holding a sign reading, “Not Dead Yet,” joined the group in her electric wheelchair. “They have really put our lives at risk, ”she told The Independent.

Lucas, who has progressive muscular dystrophy, says she is particularly concerned with the definition of “terminally ill” in the measure. She says it could conceivably include someone with her condition. 

While she would have to request the life-ending drugs, she says the measure underscores her belief that while suicide is discouraged for most Americans, the disabled are somehow encouraged to view it as an option.

“That’s discriminatory because we deserve equal protection under the law,” she said.   

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Disability rights activists protest against aid-in-dying measure

Brain Cancer Will Likely Kill Me, But There’s No Way I’ll Kill Myself

Like Brittany Maynard, I have extremely aggressive brain cancer. But I’m not downing any kill pills.

Kara Tippetts and family

I’m not surprised that an Oct. 6, 2014 article by Nicole Weisensee Egan—titled “Terminally Ill 29-Year Old Woman: Why I’m Choosing to Die on My Own Terms” featuring a well-produced video found on People.com—has gone viral.

The video, which features interviews of Brittany Maynard and her family members, is very emotional. Maynard, who was diagnosed this past spring, suffers from a stage-four gliobastoma multiforme brain tumor. She has a very aggressive form of brain cancer, and it is difficult to control its growth. In her video story, she describes how she was diagnosed and relates her understanding that the glioblastoma will eventually kill her. She then relates her fear that this scenario will be “out of her control.”

As I watched the video, I wanted to hug Brittany and shed tears right along with her because I, too, know those fears. I was also diagnosed this past spring with a stage-four glioblastoma multiforme brain tumor.

I can identify with Maynard and her spunky, adventurous spirit. She describes her love of travel. In my profession with The Lutheran Church–Missouri Synod’s mercy outreach, I’ve led medical mission teams and worked on relief projects in 11 countries, loving every minute of it. I have seen the poorest of the poor and the sickest of the sick. I have seen suffering that would make anyone’s stomach turn.

The Hardest Part Is Not Knowing When

Now I face my own prognosis of future suffering. Some days are joyful. Some days the diagnosis feels like a huge weight in my backpack.
 

The hardest part of a terminal diagnosis is not knowing the timeline. I speak candidly with my physicians and pray that they can keep my tumor under control with the latest therapies to extend my life, one more year, month, day. Someday, I hope my tumor qualifies to be studied in one of the many clinical trials for brain cancer. I’d like to think my situation was part of a cure for someone else.

My doctors have applauded my decision to step down from my physically and emotionally demanding job to spend precious time with my family. I have a husband and three daughters who I hope will always remember me as a strong, thoughtful (but bull-headed) woman, carrying Christ’s mercy and compassion for others in my soul with rich joy and meaning.

Suicide Is Not the Answer to Brain Cancer

And here is where my comparison with Brittany Maynard ends. Maynard chose to move her family to Oregon earlier this year to have legal access to physician-assisted suicide and to receive a prescription for drugs that she has stated she will use to take her life two days following her husband’s birthday, on Nov. 1, 2014. It’s interesting that Maynard steadfastly refuses to refer to her decision as an act of suicide, even though she will, quite literally, take her own life.

Many people who choose assisted-suicide have expressed that they are uncomfortable with the term. Assisted suicide, which means helping someone take his or her own life, has been redefined into the more euphemistic “aid in dying” or sometimes “death with dignity” campaign which has been spearheaded by the well-funded special-interest group Compassion and Choices (previously known as The Hemlock Society).

However well-intentioned, this is one area where the old adage that “Hard cases make bad law” comes into play. To make good policy decisions about assisted suicide for our society, we need to follow the rabbit trail all the way down the hole to see where it leads. Marilyn Golden, a senior policy analyst for the Disability Rights Education and Defense Fund, warned that “assisted suicide is not progressive, in fact, it puts many vulnerable people at risk, and we have already seen examples of that where it is legal.” Folks concerned about the rights of people with disabilities are worried about this.

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Brain Cancer Will Likely Kill Me, But There’s No Way I’ll Kill Myself