Showing posts with label palliative care. Show all posts
Showing posts with label palliative care. Show all posts

Monday, May 25, 2020

Three Years ago Today My Husband was Admitted to the Hospital That KILLED Him

My Mission:End Palliative/Hospice Care,ILLEGAL Euthanasia,Killing our Loved ones.No Consent,no treatment,denied the right to LIVE.Patients/family's wishes denied,put on P/H unknowingly, against their will.Next mission:End Sepsis and hold Hospitals accountable for patients who contract Sepsis, My husband was denied antibiotics by a P/C APRN and then denied she was responsible,causing my husbands death. Hold on tight to your loved ones and steer clear of this Nashua Hospital if you want to live!

Monday, March 16, 2020

Three Years ago Today My Husband was Admitted to the Hospital That KILLED Him. St. Joseph's.The Hospital of Death, Sepsis Central. The Hospital he went to to get treatment, but got nothing but overdosed with Morphine by The Circle of Life (Death) Palliative care Doctor from Canada, where Medical Murder of our Loved ones is practiced daily. Overdosed by a Doctor who was neither wanted nor consented to.

Refusal of Hospice/Palliative care by the patient at this Hospital means absolutely nothing. Non-consensual Hospice/Palliative care is forced on un-knowing patient's along with ILLEGAL, NON-consensual DNR's. My Husband was just one of many patient's this Hospital Medically Murdered. He asked for treatment and adamantly stated he did NOT want to die, but they killed him any way. He refused Hospice/Palliative care, but against his and our family's will he was put on it any way. We were never told. We were never told of the illnesses they found through almost daily lab work, nor was he treated for anything. He had a UTI that we were never told about which was left untreated. The UTI and ALL the pressure ulcers all the way down his back ultimately killed him as he ended up with Sepsis. Again, we were never told. He was started on antibiotics and then all of a sudden they were stopped. We had no clue why. The Palliative care Nurse Practitioner, who is now the Director of  Cancer Services was responsible. She denied everything including ordering ALL treatment stopped, but my Husband's Medical file told a different story. She wasn't even his Doctor and had no business giving any order's concerning my Husband. She is also the one who ordered the ILLEGAL DNR and the NH Medical Board refuses to do anything and neither does the State of NH. The Medical Board admitted the DNR was ILLEGAL, but they said it was due to miscommunication. So does that give them the right to Murder my Husband and NOT be held accountable? They ALL belong in jail. Let's see how they like their new sucky lives!

I Love you My Knight and always will! 
Extremely Pissed Off Wife of Bill Knightly, Murdered by NON-consensual Hospice/Palliative care at St. Joseph Hospital in Nashua, NH


Full Article & Source:
Three Years ago Today My Husband was Admitted to the Hospital That KILLED Him

Wednesday, January 23, 2019

‘Assisted suicide’ turns vulnerable people into disposable ones

A year ago, I lost my 36-year-old husband to cancer. In the first few months after his death, I often felt lost without the heroic man I fell in love with 14 years earlier. But in our last few weeks together, I promised J.J. that I would keep sharing our story and carrying on his work advocating for better end-of-life care for terminal patients.

J.J. was a volunteer fireman, a Marine Corps war veteran, and a New York public servant under Govs. Eliot Spitzer and David Paterson. Then, after he was diagnosed with terminal brain cancer in 2014, J.J. dedicated his final days to fighting the legalization and social acceptance of assisted suicide.

This wasn’t an issue either of us would have become involved with prior to J.J.’s terminal diagnosis, but his illness gave us firsthand insights into how assisted suicide endangers those who are most vulnerable.

When a seizure sent J.J. to the hospital in May 2014, he was told that he had glioblastoma multiforme, the deadliest form of brain cancer. The neurosurgeon said that it was inoperable and that he likely had only four months left to live. Three doctors told us there was nothing we could do. We were told to go home and enjoy the little time we had left together.

Thankfully, we didn’t listen to those doctors, and J.J. had success with standard and experimental treatments. But he also realized that not everyone has the kind of support that he did, from family, friends and very good doctors. And even though J.J. was loved and supported, he suffered from periods of depression in his first few months of treatment.

He later told us that if he had ­assisted-suicide pills with him in those darkest moments, he would have been very much tempted to take them.

Then, in J.J.’s final weeks, we saw how the disabled are treated differently, how their lives are too easily dismissed as inconvenient, which is especially dangerous when ­assisted suicide becomes a legal medical treatment.

Assisted suicide injects governmental pressure and profit-driven insurance decisions into everyone’s end-of-life care. When that happens, death becomes the cheapest form of “treatment.”

Almost two dozen states considered assisted-suicide bills this past year. It’s already allowed in seven states and the District of Columbia, and various forms of assisted suicide and euthanasia are also legally available in Europe, as well.

If he were still with us, J.J. would continue to tell us that assisted suicide is bad public policy. He would warn legislators and voters not to focus on the individual patient when considering this legislation. Instead, consider the many vulnerable people who will lose all hope and be put at risk when suicide ­becomes a medical treatment.

Ultimately, legalizing assisted suicide results in less choice for patients through external pressures, coercion, mistakes and abuse. In Europe, for example, the expansion of assisted suicide has resulted in ever more groups of ­patients becoming eligible for the “treatment,” including youth and the non-terminally ill.

Proponents insist that assisted suicide is only for last-resort scenarios, when there are only weeks or days left and unbearable pain. But physical pain isn’t among the top five reasons patients in Oregon — the first state to legalize assisted suicide, in 1997 — request death by doctor.

In reality, assisted suicide is less about ending a patient’s suffering than it is about ending society’s care. There is a lot we can do to improve care at the end of life for terminal patients, and assisted suicide shouldn’t be one of them.

That’s why, even as he took to the public square to speak out against death by doctor, J.J. also fought for better access to hospice and palliative care.

I have no doubt that J.J. would have supported bills like the Palliative Care and Hospice Education and Training Act, which was introduced in Congress last year.

This bipartisan measure helps Americans with advanced illness have better access to palliative care. It increases the number of health-care professionals trained in palliative care, expands national funding for research in palliative care and develops a ­national educational campaign to inform Americans, including physicians, many of whom are unaware of the benefits of palliative care.

J.J. was convinced that the most vulnerable Americans need support, not poisonous pills and needles. A year after his death, it is vital that Americans continue to hear his message.

Kristen Hanson is the community-relations advocate for the Patients Rights Action Fund.

Full Article & Source:
‘Assisted suicide’ turns vulnerable people into disposable ones

Saturday, September 1, 2018

Dying badly despite all my efforts

I’m a palliative care nurse practitioner so you would think that my mother would have had a good end-of-life experience, but she didn’t.

She had done everything she could to prepare for a “good” death.” She was aware of her health situation and willing to discuss it with her family and health care providers. I lived nearby, was her health care power of attorney, and we talked regularly about her wishes. She had a living will and a MOLST (Medical Orders for Life-Sustaining Treatment) form. And she chose to live in a continuing care retirement community outside of Baltimore, a place with varying levels of care.

She lived there for more than 16 years in its independent living section. But in her 91st year, her doctor recommended hospice. The care they provided was wonderful. My mother was comfortable, and we felt supported.

The first challenge came when the alarm sounded on my mother’s oxygen concentrator. I called the equipment company, and they agreed to send a replacement. Hours went by. Calling them again, the answering service told me if this was a medical emergency I should call 911. Then the on-call person called back to say my mother wasn’t one of their patients. Minutes later, the delivery driver called to say he had arrived but couldn’t find the apartment.

But the real trials came when we moved my mother to the nursing facility within the continuing care retirement community (CCRC). This was when we discovered that the CCRC had no process to move her there, even though it was only a few hundred yards away. I had to explain that taking her in a wheelchair through the public areas was not going to work. The facility asserted that my mother’s hospice should arrange — and pay — for the ambulance, which the hospice rightly refused. After multiple phone calls, the CCRC ordered transport.

When my mother finally arrived, the problems with care coordination began. It took an hour to be seen by a nurse. The nurse said she had to check my mother’s chart, which was puzzling because my mother didn’t have one, having not come from a medical facility. However, without such a chart, the staff had no idea who my mother was or why she was there, even though her medical records from the previous 16 years were in the adjoining clinic. When they finally examined her, they tore her fragile skin, which bled. Finally, the charge nurse asked me for the details on my mother’s terminal diagnosis, medical problems, medications and even which hospice was providing her care. I could provide that, but what about a family who couldn’t?

The charge nurse agreed that my mother urgently needed medication for her breathing. Her physician had ordered it, but it hadn’t arrived, and as the hours went by her breathing became rapid and labored. The pharmacy sent an emergency delivery of a laxative, but not the breathing medication. That finally arrived eight hours after her admission and took a while to work.

The next day an aide came in to note that “he seemed to be sleeping” and left. Then the nurse tried to place some medication ordered for my mother’s mouth in her eyes instead. That evening, the manager came by, noted our exhaustion, and sent us home saying someone would check on my mother every hour that night.

Early the next morning a tearful nurse called to tell me she hadn’t given my mother any of her ordered medications overnight because she hadn’t known about them. We rushed to the nursing facility where the staff was apologetic. Not long after, my mother died.

There’s so much about this that’s hard to understand but little that’s unusual. Our health care system is not really a system. It does a bad job of coordinating transitions between clinical settings. Communication is poor and inconsistent, and the CCRC was using paper charts. The nurses had too many patients, and they were licensed practical nurses (LPNs), who lacked the training that registered nurses (RNs) have.

We thought we could overcome these issues and did as long as my mother was in our care. We managed to keep her comfortable and at home until 42 hours before her death. But those last hours were awful because of our decision to move her to the CCRC’s nursing facility.

I have to live with that. My mother may have died badly because of it. The question is: How many more will?

Full Article & Source:
Dying badly despite all my efforts