By Robert Weisman
When
his mother died two years ago, Mark Butler was thrust into the
unaccustomed role of caregiver for his 89-year-old father, who has
prostate cancer and kidney disease.
Butler,
63, the Newton-based president for Cigna in New England, had to find
time in the workday to call his dad in Bennington, Vt., and help him
navigate the health care system. Butler also began driving 220 miles
round trip to accompany him to medical procedures.
“I realized, ‘Holy cow, this takes a lot of time, energy, and discipline,’ ” he said.
Butler
had joined the ranks of the hundreds of thousands of working caregivers
in Massachusetts juggling the demands of their jobs with shopping for
groceries, paying bills, and sorting meds for older parents. They duck
out of meetings to haggle with insurers. They come to work late after
shuttling parents to doctor appointments.
These caregivers have long suffered in
silence, fearing employers would assume their responsibilities meant
lost productivity, absenteeism, and workday interruptions. But a
worsening labor shortage, and the personal odysseys of bosses like
Butler, are transforming corporate attitudes.
Drawing on
his experiences, Butler sought to bring the issue front and center at a
recent business roundtable retreat at Babson College in Wellesley that
drew top executives from the high-tech and biotech, real estate,
construction, and financial services industries. At the same time, he’s
worked to create a more welcoming culture for employee caregivers at
Cigna New England, which has 60 employees in Newton and 350 across the
region.
“Workers
used to be quiet about it,” said Tom Riley, chief executive of
Seniorlink, a Boston company whose technology aids family caregivers.
“If you worked in the bowels of a business, you were petrified and you
feared retribution if you talked about it. But that’s changing. Nothing
brings it home more than the 50-year-old CEO who suddenly finds that
he’s a caregiver and he can’t get to that morning meeting because of his
caregiving duties.”
With the
state’s unemployment rate dipping below 3 percent, many employers are
now seeking to accommodate working caregivers through more
family-friendly leave benefits and increased flexibility about when and
where employees work.
Business
leaders joined with their health care, education, and government
counterparts last month to launch a Massachusetts Caregiver Coalition
aimed at finding ways to support employees.
“It’s
seen as a talent retention and workforce development issue,” Riley
said. “Some employees have a half-time job as caregiver just at the time
their careers are taking off.”
More
than 612,000 workers spend at least some of their time out of the
office caring for older adults in Massachusetts, according to a recent
report from the state Executive Office of Elder Affairs along with the
Massachusetts Business Roundtable and the Massachusetts eHealth
Institute. Many of these employees see themselves more as dutiful sons
or daughters than caregivers. One survey showed more than four in 10
hadn’t told their supervisors about their responsibilities.
“For
the longest time, I never considered myself a caregiver,” said Scott
Williams, who leads the patient advocacy group at the Rockland-based
biopharmaceutical company EMD Serono. Williams has spent years helping
his aging mother cope with multiple chronic illnesses from a distance.
He recently moved her from Eastern Pennsylvania to suburban Maryland,
where his family lives.
The
number of working caregivers is swelling partly because the over-65
population — their parents — are living longer than previous
generations. To complicate the challenges, families are more spread out.
And more of today’s employees are having children later, so they and
their partners are caring for young children at the same time as they’re
helping their parents.
Sara Quist,
42, Cigna’s director of community engagement, is typical of a large
subset of working caregivers raising children and caring for parents at
the same time.
When
her family gathered at Conte Forum in Chestnut Hill just before
Thanksgiving to celebrate her son’s 7th birthday and watch a Boston
College basketball game, her 86-year-old father collapsed just before
tipoff.
“I could be a poster child for the sandwich generation,” Quist said.
She
took time off from her job to accompany her father to a workup at
Massachusetts General Hospital, where doctors determined he had suffered
an attack of vertigo.
Quist
knew she was fortunate: She could have taken advantage of Cigna’s
four-week caregiver leave policy if needed. And throughout the ordeal,
her manager was supportive, she said, even texting her early in the
morning to ask how her father was doing.
“They
let us bring our whole selves to work,” she said. “If you share your
caregiver story, people understand what you’re going through and it
makes it easier for others to share theirs.”
Many
aren’t as lucky. They care for loved ones with conditions that persist
for months or years, often with little or no help. Some talk of sitting
at work near new parents who complain of being up at night with crying
babies, afraid to tell them they’ve lost sleep trying to comfort parents
with dementia.
And not all
employers are sympathetic. In a 2017 survey by Transamerica Institute,
more than three-quarters of employee caregivers said the stress caused
them to make changes to their jobs, ranging from switching to part time
to getting a new job or taking early retirement.
Liz
O’Donnell of Dedham first had to string together vacation days but
ultimately left her job at a marketing firm after her mother was
diagnosed with ovarian cancer and her father with Alzheimer’s disease on
the same day in 2014. Her book about her experience, “Working Daughter:
A Guide to Caring for Your Aging Parents While Making a Living,” was
released last summer.
O’Donnell
said she “felt so unprepared and so alone” at first. “I didn’t hear
anyone in the workplace talking about it,” she said. “I didn’t realize
people in the next [cubical] or the next office might be going through
it. And the open office design made it harder to talk when your parents
called.”
Marc
Bernica, senior vice president for Boston-based child-care provider
Bright Horizons, recalled hiring a product manager in the company’s
Colorado office who had left her previous job because she felt that
employer hadn’t given her the flexibility to care for her aging mother.
Bright Horizons tries to recognize and accommodate employees’ outside
commitments, he said.
“These
are people who are in their peak earnings years, and of peak value to
their employers,” Bernica said. “We have to be able to think about their
well-being holistically.”
Sometimes that means enlisting colleagues to pick up the slack for working caregivers.
Meagan
Silva, an executive assistant at Rockland Trust in Hanover, said she’s
grateful to the coworkers who cover for her when she has to take a call
about the finances or insurance of an older relative struggling with
depression.
Full Article & Source:
As labor crunch tightens, employers offer more flexibility to those serving as family caregivers
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