Saturday, May 17, 2014

Survey of Families and People With Disabilities on Guardianship - An Opportunity to be Heard!!!

Dear Guardianship Reform and Supported Decision-Making Workgroup,

Rona Statman, Director of Family Services at the Arc of Texas, and one of our folks in the GRSDM, and would like you to complete the survey below to learn more about how and when people with disabilities are put under guardianship (or conservatorship).  Please also distribute to your networks if you choose.  The survey is to be filled out by parents or people with disabilities.
 

The Survey: 

Our colleagues at TASH, ASAN, ACLU, The Arc of Michigan, and Quality Trust are collaborating on a survey of parents and individuals with disabilities.  The survey is being conducted by a group of individuals (researchers, lawyers and policy analysts) who work with TASH and want to learn more about how and when people with disabilities are put under guardianship (or conservatorship).  

The survey is IRB (Institutional Review Board) approved for a research article and applies to students because they reach the age of majority while in school. There are important questions to answer about how people with I/DD/ their families learn of and seek guardianship in order to know how to address the issue and to what audience. The study will be published in TASH's research journal RPSD; and will likely inform a position paper based on the data.

They are asking for your help!  Please take this very quick survey (if applicable) or send along to others who might have interest?   

Click here to respond: http://tash.org/ymq6.

Respondent name and personal information will be kept confidential.
 
The survey will close on June 4th, so please respond before that date. 

3 comments:

Thelma said...

Good to know this is happening.

StandUp said...

Thank you NASGA

Anonymous said...

Thanks, NASGA. I passed this on to a family of three, two of whom were declared developmentally disabled last year and placed under guardianship. They do not like their guardian.