The disease progresses at different rates for each person. "My mom’s
speech began to be affected, her sentences were jumbled, and it was
getting really hard to even carry on a conversation," said Centrella.
She
said that around that time, "a customer told me about Joe Wallace," a
Mass.-based photographer whose mission it is to take photos of people
with dementia as a way of honoring them and capturing their essence.
.webp) |
| Julie Centrella and her mom, Anne, in one the portraits taken by
photographer Joe Wallace, whose goal is to help remove the stigma
associated with Alzheimer's.
(Joe Wallace ) |
Centrella said, "Joe also learns about their background, and who and
what they were before their dementia diagnosis." She said that Wallace
"feels, as do I, that it’s very hard to talk about dementia."
Centrella added that often, "people are almost embarrassed by it, or they don’t understand it."
Photographer
Wallace strives to capture not the despair, fear, or futility of the
disease — but the essence of the person who is suffering through it.
Wallace
has enormous sensitivity for those struggling with dementia. Through
his moving portrait series, "The Day After Yesterday: Portraits of
Dementia," and his website Portraitsofdementia.com, he aims to
destigmatize the condition and present the multiple facets of a person
who is journeying through it.
"Alzheimer's can be so difficult
for people in the family to handle, because the loved one is still
physically present," said Wallace — while many of the person's memories
are not. "It's sort of a personal project for me," he added, noting that
he strives to capture not the despair, fear, or futility of the disease
but the essence of the person suffering through it.
%20with%20three%20of%20her%20four%20children.%20Photographer%20Wallace's%20own%20grandfather%20suffered%20from%20Alzheimer's.webp) |
| Anne Walsh (second from right) with three of her four children.
Photographer Wallace's own grandfather suffered from Alzheimer's. "When I
met Julie and her mother and her sisters," he said, "I was blown away
by their strength and their ability to use the experience to draw them
closer."
(Joe Wallace ) |
The portraits of Anne Walsh are part of his series, which Wallace
exhibits at different locations. He also participates in workshops on
the topic of dementia.
Wallace’s passion for the subject comes from experience: His own
grandfather had Alzheimer’s and his grandmother had vascular dementia.
"I wanted to share other people’s stories, using empathy as a way to help connect people who might be feeling alone."
He
told Fox News Digital, "I wanted to share other people’s stories, using
empathy as a way to help connect people who might be feeling alone."
"There
are millions [of people] living with different types of dementia, and
they still have life left in them and the ability to connect with people
they love," Wallace said. "When I met Julie and her mother and her
sisters, I was blown away by their strength and their ability to use the
experience to draw them closer."
He added, "That’s a more powerful story than just focusing on Anne's decline."
He has taken over 60 sets of portraits throughout a five-year period, he said.
 |
| Julie Centrella, second from right, with her husband, Pat, and their
three children. Centrella named her business Aine's Boutique after her
mother's original Irish name (which she changed once she came to this
country).
(Julie Centrella) |
Centrella and her family, including sisters Evelyn and Eileen and
brother, Tim, were thrilled with the way their mom's portraits turned
out.
"They captured her spirit, her expressions. She was still verbal at the time they were taken, but not like she used to be."
The
family displayed Joe Wallace's photos of Anne Walsh at her funeral Mass
this past December — as well as on her prayer cards.
"It was something to hold onto," added Julie Centrella of the portraits.
She
said the family displayed the photos at her mom's funeral Mass this
past December, as well as on her prayer cards. "She will live on through
these portraits," she said.
Centrella shared the pain of an
Alzheimer’s diagnosis for patients' loved ones. "My father passed away
from cancer and as bad as that was, the Alzheimer’s is worse," she
said.
Alzheimer's can mean "a lot of small losses along the way … In the end, there’s still the person in there somewhere."
"You
become numb to it because you’re losing your loved one by degrees.
First, they don’t know who you are, and that’s shocking, and that guts
you — and they don’t know who your children are. Then you get over that —
and soon the day comes where they can’t really speak or smile at you."
.png) |
| Julie Centrella and her husband, Pat, of Massachusetts. With her mom's
illness top of mind, Centrella decided to organize a fashion show to
raise money for Alzheimer's. From 2015-2019, the show raised over
$200,000.
(Julia Centrella) |
Centrella said dementia is "a lot of small losses along the way … In
the end," she added, "there’s still the person in there somewhere, and
you do get fleeting moments of that, and sometimes you’ll get a smile or
a little glimmer of recognition."
Seven years ago, as her mother
struggled with the disease, Centrella’s thoughts turned to activism. She
decided to put on a local fashion show to raise money, with friends and
customers serving as runway models.
The fashion show,
though interrupted by COVID-19 the last few years, "brings the community
together while raising awareness about Alzheimer’s."
She
has owned her own retail business, an upscale but affordable clothing
boutique named Aine’s, in downtown Reading for the last 15 years. She's
also developed an online business at AinesBoutique.com.
"I named
the business after my mom, who while growing up in Ireland went by the
name Aine," she said. "She changed it to Anne when she moved to
America." (Centrella's 18-year-old daughter is named Aine.)
Noting
that her first shows were small, raising "around $2,000 per event," she
soon got involved with a local Reading charity that was already raising
funds for Alzheimer’s, The David K. Johnson Foundation. Today,
Centrella serves on its board.
 |
| Julie Centrella is shown during one of the recent fashion shows she
hosted — with a Joe Wallace portrait of her mom displayed as well — to
raise money for Alzheimer's through The David K. Johnson Foundation.
(Julia Centrella) |
Working with The DKJ Foundation for the last seven years, Centrella
said donations have soared, with the money raised going to the Cure
Alzheimer’s Fund, a nonprofit based in Wellesley, Mass., aimed at
accelerating research to bring about a cure for the disease.
Between 2015 and 2019, the fashion show raised over $200,000.
Centrella
noted that her show, although interrupted for the last several years by
COVID-19 mandates, "brings the community together while
raising awareness about Alzheimer’s."
"The
[portraits] convey her love for us, even though she couldn’t really
speak anymore when they were taken. It’s been a treasure to have them."
The
co-founder of The DKJ Foundation, Greg Johnson, has his own story of
love and loss. His father was diagnosed at age 59 with Alzheimer’s, and
after the sudden death of his mother, his whole family had to scramble
for care options for his dad.
Johnson appreciates the opportunity to partner with Centrella. Their
bond, he told Fox News Digital, comes from "having common ground and
then wanting to do something about it."
He noted that raising awareness is as important as raising money,
particularly "making public spaces accessible and welcoming to those
with dementia and their caregivers," he said, such as restaurants and
other everyday destinations.
"Everyone has something [they’re dealing with], whether it’s dementia or breast cancer. We all have our struggles."
Centrella
said it has been rewarding to have an impact on her community as a
small business owner. "I’ve become really close to a lot of my
customers, and everyone has something [they’re dealing with], whether
it’s dementia or breast cancer. We all have our struggles."
 |
| Raising awareness about Alzheimer's is as important as raising money,
particularly "making public spaces accessible and welcoming to those
with dementia and their caregivers," said Greg Johnson of The DKJ
Foundation.
(iStock) |
Centrella is open to participating in an Alzheimer’s trial in the future. "I would love to be able to," she said.
"It makes sense, if you have a family history of Alzheimer’s — maybe it
is allowing brain scans to be taken, or whatever helps the cause. My mom
has five sisters who were also diagnosed with Alzheimer’s," she added.
Centrella said she chooses to focus on the positive, especially all that
she has, including the poignant portraits of her mother.
"They convey her love for us, even though she couldn’t really speak
anymore when they were taken," she said. "It’s been a treasure to have
them."