Showing posts with label Down syndrome. Show all posts
Showing posts with label Down syndrome. Show all posts

Monday, July 13, 2026

Delco couple arrested for allegedly abusing and neglecting woman with down syndrome

Yahnae Clegg-Brown and Naiyr 'Hasan' Sanders allegedly 'systematically underfed and assaulted' the woman, who was under their care, investigators say.

By Molly McVety 


A Colwyn couple was arrested for allegedly abusing and neglecting a 20-year-old woman with down syndrome, the Delaware County District Attorney's Office said. The woman was under the couple's care.

In April, the woman was found outside the residence of Yahnae Clegg-Brown and Naiyr "Hasan" Sanders, having spent about four hours crying in rainy, 40-degree conditions, investigators said. When police arrived, she was suffering from malnourishment and had multiple injuries to her face and body. She was holding a trash bag of clothes.

The woman, whose name has not been released, allegedly had been "systematically underfed and assaulted" whenever the couple did not approve of her behavior, investigators said. 

Clegg-Brown is the woman's cousin and temporarily had taken over guardianship after the woman's previous caretaker died, the Inquirer reported.

The woman was forced to stay in a room with "no sheets, blankets or pillows and a deteriorating mattress," prosecutors said Thursday. Video footage obtained by officials allegedly shows Sanders pushing the woman down concrete stairs, slamming a door in her face and punching her on the right side of her face.

"It's heartbreaking to see a vulnerable member of our community suffer the abuse and neglect described in this case," Delaware District Attorney Tanner Rouse said in a statement. "Those entrusted with another person's care have a responsibility to protect them. To have systematically abused a young woman in this way is beyond comprehension."

Clegg-Brown was charged with two counts of neglect of a dependent person and one count of abuse of a dependent person. Sanders was charged with two counts of each, and simple assault. They are being held at the George W. Hill Correctional Facility with bail set at 10% of $250,000. A preliminary hearing is scheduled for next week.

Anyone with information related to the investigation can contact the lead investigator, Sgt. Steve Bannar, at (610) 891-4700. 

Full Article & Source:
Delco couple arrested for allegedly abusing and neglecting woman with down syndrome 

Wednesday, July 19, 2023

Atlanta father-son team develop app to help people with intellectual disabilities

By Hope Dean 

Click to watch video

ATLANTA, Ga. (Atlanta News First) - A Georgia State University student and his father have joined forces to develop an app benefiting people with intellectual disabilities.

Called “Let Me Do It,” the app helps users make decisions through a personalized choice tree, according to a GSU statement. Angad Sahgal and his father Amit said the app will empower people with Down syndrome, autism, and other disabilities to live more independent lives.

“It reinforces the fact that Angad has the independence and capability of making his decisions but can do with some help to navigate the steps to arrive at that decision,” Amit said.

Angad attends GSU’s IDEAL program, which works with students who have developmental disorders. He has also served as Georgia’s Youth Ambassador for the Center on Youth Voice, Youth Choice, a national organization that helps young people with disabilities make decisions about guardianship.

“As a person with a disability, entrepreneurship has allowed me to pursue my dreams and pave the way for the next generation of disabled entrepreneurs,” Angad said. “I know what it means to work with limitations and turn them into opportunities.”

The app is being funded by the Main Street Entrepreneurs Seed Fund, which comes out of GSU’s Entrepreneurship and Innovation Institute, and Synergies Work, an Atlanta-based nonprofit.

The app launches in November. Amit said that the app will one day support people with sensory disabilities and the elderly population, too.

Full Article & Source:
Atlanta father-son team develop app to help people with intellectual disabilities

Saturday, December 24, 2022

Dad Bought an Ice Cream Truck So His Two Kids with Down Syndrome Can Run Their Own Business

Thinking of a way to give back to the community and support people with Down syndrome, Joel Wegener of Ohio decided to buy an ice cream truck to create a career path for his special needs children.

What’s the best way to get people and a community together? Food, yes, but ice cream? Even better! Joel, 61, and his wife Freida have 10 children, two of whom were born with Down syndrome, Mary Kate and Josh.

People with Down syndrome are born with an extra chromosome, which leads to a wide range of physical and developmental problems. Down syndrome is a lifelong condition and cannot be cured.

Why an ice cream truck?

He explained, “The reason the ice cream truck is so perfect is that it has allowed them both to develop their interactive and social skills in a comfortable environment.”

Full article and source:
Dad bought an ice cream truck so his two kids with Down syndrome can run their own business

Friday, October 14, 2022

Heartbreaking: Man with Down Syndrome Has Life Upended After Horrible Call from Wendy's

By Warner Todd Huston

A man with Down syndrome was unexpectedly fired from the job he held at a Wendy’s restaurant in North Carolina for 20 years, shocking his family and friends.

Dennis Peek worked for years at the Wendy’s in Stanley, North Carolina, but during the first week of October, he received some bad news, according to the Today Show.

On Oct. 5, his sister, Cona Turner, wrote a Facebook post in which she related how shocked she was over the firing.

Like any other big corporation, Wendy’s has had its issues, of course. The woman who the restaurant’s founder patterned his famed character after, Wendy Thomas, even noted that being the face of the chain since she was little put a lot of pressure on her growing up.

But firing Dennis was a big error.

“My brother Dennis has worked at Wendy’s in Stanley for over 20 years and I am heart broken to say they have fired him,” Turner wrote.

Turner added that due to his more limited abilities, her brother can’t understand why he was fired. And she added that they fired him because “he was unable to perform the duties of a normal persons job.” Oddly, it was the same job he had already been doing for two decades.

Turner wrote that she was considering filing a wrongful termination lawsuit against the corporation for firing Dennis.

After Turner’s anguished note went viral on social media, though, the group that operates the Wendy’s quickly reversed the firing and said it was a “mistake.”

“We are committed to creating a welcoming and inclusive environment for our employees and our customers. This was an unfortunate mistake and lapse in protocol; we are in touch with the employee’s family, and we are looking forward to welcoming him back to work in the restaurant,” the Carolina Restaurant Group said in a statement, according to WBTV. “We cannot comment further on personnel matters, but we’re taking appropriate action. This was an unfortunate mistake that we’re working through with the team member, his job coach and family. We’re also using this as an opportunity to retrain all our teams on our protocol.”

On the heels of the company’s actions, Turner added an update to her post reading, “They have offered Dennis his job back starting next week. My heart is overwhelmed by the support that you all have given my brother and myself! Thank you all so much.”

However, despite the company’s concession, Turner added that they decided that Dennis would, indeed, retire, instead of going back to work.

“Dennis will not be returning to Wendy’s, He will be having his BIG RETIREMENT party that he has been wanting. Wendy’s has offered to help with expenses and anything else they can for his special day,” Turner wrote in a final update.

“I feel in my heart at this point i should do what is best for my brother. I will have more details Monday or Tuesday. I am going to try to make an event page.” Turner concluded, “Thank you all again for all your love and support for my brother.”

Just after being fired, WBTV interviewed Dennis, and he said “I work there a long time.”

Dennis added that he loves Wendy’s food, “A lot of food to eat. It’s good stuff. I love Baconator,” he said. “I love my job at Wendy’s.”

WBTV also reported that when Dennis’ sister asked to see her brother’s termination report, the Wendy’s manager who fired the long-time worker refused to allow it.

“He’s always excited to go to work. He loves seeing people come in and speak to him. He loves to interact with the people,” Turner told WBTV. “He don’t understand if someone is coming against him. He don’t understand not being treated fair. He don’t understand none of that. He don’t … it just breaks my heart.”

The restaurant group said that if Dennis changed his mind, his job will be waiting for him.

“Should Dennis retire and ever want to work again, we’ll also be happy to welcome him back,” the company said in a statement, according to the Today Show.

This is the least of troubles the restaurant chain recently suffered. Wendy’s fell into the spotlight for an even worse reason in August when an enraged Wendy’s worker killed a customer at an Arizona location after the man complained about the service. Then, in September, Wendy’s suffered an e. coli outbreak across six states. Fortunately, no one died from the problem, but at least 43 were hospitalized.

In the end, the outpouring of love and support Dennis received through this ordeal was amazing and shows how blessed this man is, especially to have such a supporting family.

It was also a great opportunity to see how these sorts of situations should be handled. Dennis’ sister deserves great credit for eschewing vitriol and adding updates as the company responded with positive changes.

Further, the company was right to move as quickly as it did so as not to hurt its brand, and more importantly, not to hurt its employees. And it’s idea of offering further training for managers is probably a good idea, too.

We are hopeful that other companies will also learn a lesson from this incident. The fact is, people with Down syndrome are not all unemployable. And many can lead vital and productive lives in public. That must be remembered. Fortunately, it all ended well for Dennis and his family.


Full Article & Source:
Heartbreaking: Man with Down Syndrome Has Life Upended After Horrible Call from Wendy's

Monday, March 15, 2021

Girl With Down Syndrome Asked Him to the School Dance; Now They’re Planning the Wedding

(Courtesy of Jake Pratt)

By Jenni Julander

Last year, a 21-year-old man with Down syndrome attracted media attention for “defying the odds,” graduating from college and landing a job at UPS. Now, he and his girlfriend, who also has Down syndrome, are serving as a source of inspiration for special needs communities.

Jake Pratt, now 22, and Grace Davies, 19, met at their Alabama high school. Their first date was a Sadie Hawkins dance in January 2017, after Grace asked Jake out.

“Our first date was a group date with some other friends,” Jake told The Epoch Times. “We went to dinner and to the school dance. Grace made a poster and brought me donuts to ask me to the dance.”

They had a good time. “I asked her to be my girlfriend not long after that,” he adds.

The Facebook group Positive About Down Syndrome shared a photo of Grace’s poster, which reads, “Roses are red, donuts are tasty. Do me a favor and go with me to Sadie!”

Epoch Times Photo
(Courtesy of Jake Pratt)

The organization, which aims to support parents of children with Down syndrome, also shared the couple’s inspirational story.

“[Four] years later, their love is still going strong,” they wrote on Jan. 15. “Jake graduated from the Clemson Life program last spring and is now working and saving for their future. … Grace is still currently attending her college life skills program.”

They added that the young couple are busy dreaming and planning for their next steps. Jake is saving for an engagement ring. Grace is happily planning their eventual wedding.

“Jake and Grace have the same dreams as any young couple: to eventually get married and live independently,” the organization shared. “For now, they are making the most of their time together during Grace’s breaks from college and talking on FaceTime daily when she’s away.”

The group’s post went viral with over 14,000 likes and 3,200 shares.

Epoch Times Photo
(Courtesy of Jake Pratt)

Social media users had glowing words for the young couple, and many found their story inspirational.

“Oh [how] sweet is this,” wrote one mother of a young girl with Down syndrome. “I am excited to see how our Cora will grow. These two are great role models!”

“So this is where my child will be in the future,” said another parent. “Would love to hear what all the parents did for them to have such a successful life.”

In fact, when Jake was born, his parents decided to treat him just like any other child. According to a viral tweet posted by Jake’s sister, Amy, it’s a mentality that gave Jake the confidence to pursue his dreams.

Nor do their dreams stop with graduating college, building careers, and getting married.

Epoch Times Photo
(Courtesy of Jake Pratt)
Epoch Times Photo
(Courtesy of Jake Pratt)

Jake told The Epoch Times that he hopes to teach Grace to drive one day so she can pursue her dream job of working in a fashion-related industry. The couple want to get an apartment together after Grace graduates, and they hope to buy a home together one day, too.

For now, Jake’s job at the local golf course is fairing well. While his other position at UPS, which made headlines earlier, is over for the season, Jake has applied for a permanent post and is hoping to hear back soon.

The couple hope their story will strengthen the idea that anyone can achieve the life they want if they believe in themselves and are willing to work hard.

Epoch Times Photo
(Courtesy of Jake Pratt)

“If you love each other, you can overcome anything,” Jake said.

For any young couples working to build a future together, he added, “Make sure you are making time for each other and always make each other feel important.”

Meanwhile, the world is cheering them on.

“They are a shining example of the fact that individuals with Down syndrome are just like anyone else and can live full and productive lives,” Positive About Down Syndrome wrote on social media.

Followers of the group concurred. “I hope we get more updates on their future,” one commenter said.

“This brought a huge smile to my face in a much gloomier time,” said another. “Congrats and may your future be as bright as both your beautiful faces!”

Full Article & Source:

Thursday, October 29, 2020

People With Down Syndrome 10 Times More Likely To Die From COVID-19

An illustration of COVID-19. (CDC)

by Shaun Heasley

Individuals with Down syndrome are at especially high risk of hospitalization and death from the coronavirus, researchers say, adding to evidence that the virus is particularly hard on those with developmental disabilities.

People with the chromosomal disorder are four times more likely than others to be hospitalized due to COVID-19 and they face a 10 times greater risk of dying from the virus.

The findings, published in a research letter this month in the journal Annals of Internal Medicine, are based on a review of medical records for 8.26 million adults in England between late January — when the virus first emerged in that country — and June.

The group included 4,053 people with Down syndrome and 68 died during the study period, nearly 40% of them from COVID-19. By comparison, only 20% of the 41,000-plus deaths in people without Down syndrome were related to coronavirus.

Researchers from the University of Oxford, the University of Nottingham, the London School of Hygiene & Tropical Medicine and University College London said that the higher risk did not seem to be influenced by age, sex, body mass index, smoking status or alcohol intake.

The increased risk was estimated after researchers said they adjusted for “cardiovascular and pulmonary diseases and care home residence, which our results suggest explained some but not all of the increased risk.”

Those with intellectual disabilities other than Down syndrome appeared to have a much lower risk, according to the findings.

Down syndrome is “associated with immune dysfunction, congenital heart disease, and pulmonary pathology and, given its prevalence, may be a relevant albeit unconfirmed risk factor for severe COVID-19,” the researchers wrote.

Information about the heightened risk for people with Down syndrome from COVID-19 should be used by “public health organizations, policymakers, and health care workers to strategically protect vulnerable individuals,” they indicated.

Currently, information from the Centers for Disease Control and Prevention about who is at increased risk from COVID-19 does not specifically mention Down syndrome.

“Most people with developmental or behavioral disorders are not naturally at higher risk for becoming infected with or having severe illness from novel coronavirus (COVID-19),” the CDC says. “However, people with developmental or behavioral disorders who have serious underlying medical conditions may be at risk of serious illness.”

Nonetheless, this is not the first research to suggest that COVID-19 could be more of a danger to this population. A study out earlier this year indicated that people with developmental disabilities are significantly more likely than others to die if they contract COVID-19.

Another report out just this week looking at data from California, Colorado, Indiana, Maryland, New Jersey, New York, Pennsylvania and Virginia found that people with intellectual and developmental disabilities were no more likely than others to contract the coronavirus. But, 12.3% of those with the disabilities who got COVID-19 died compared to 6.7% of virus patients in the general population.

 
Full Article & Source:

Monday, September 14, 2020

In Other News, Peter Falk’s Daughter is Still Chipping Away at Guardianship

I thank my lucky stars for Catherine Falk, every day of my life. Daughter of TV’s famous, rumpled, delightful Lt. Columbo, she has been working hard to assure nobody else has to go through what she did. When her father was stricken with Alzheimer’s, Catherine was prevented from visiting him by his legal guardian. With the cooperation of the courts, she was not notified when he died. She was not notified of his funeral arrangements.

HIS OWN DAUGHTER.

For those who don’t know, a guardianship is anarchy. The guardian doesn’t have to abide by laws common in child custody. The guardian can do whatever he/she wants. These laws are regulated on a state-by-state basis. The courts are notorious for rubber-stamping them.

I’ve gotten the rubber stamp twice, after filing two petitions in two separate years and under two different judges, to get a visit with my sister Amanda.

Amanda has Down syndrome and in 2013 (following the death of our dad, of whom I was primary caretaker along with Amanda), she was swooped out to Arizona from our home state of Michigan. This was following a dispute between another sibling, our oldest sister Robin, and the current guardian, brother Ted. 

Amanda and I stayed together during those very painful months and we wrote a book, “The North Side of Down.” Immediately after we published it, our story won the Honorary Medallion from the Book Reader’s Appreciation Group. This made Amanda one of the few co-authors in the world with Down syndrome… And Perhaps the only award-winning co-author.

It was my first glimpse into what a horror show guardianship is. I was so relieved when Ted won that case. Amanda was terrified that Robin was going to win. But we both thought things would be just fine now.

WRONG.

Anyone who has followed this blog has seen the struggle I have been though, just trying to get quality time with my sister.

Who knew it was going to be so hard to get permission to take your sister out for movies and pizza?

Evil is rampant, and it isn’t just toward the elderly.

Amanda is a cash cow. Her disability check is “worth a lot more than people thought,” Ted’s wife Ruthie said, back when she was still talking to me.

I couldn’t have cared less about the money. But I am becoming very aware of how much others do.

Back during the days of more open communication, Ted told me he was afraid if Amanda spent too much time with me in Michigan, “she won’t want to come back.”

He transferred her case to Arizona in an attempt to thwart me from filing further petitions. 

It’s not going to work. 

The only thing that has prevented me this year is the influx of Covid-19.

Now, per this text message, he claims he has removed me from notices about Amanda’s legal status through the court. He said I refused delivery (not true) and I will not be getting any more updates. Ted has lied to me in the past, so it may not be true that he has requested me to be removed and the court agreed, but if it is, it wouldn’t surprise me. 

When I posted this latest update on Facebook, a friend asked, “How low can Ted go?”

I guess we are finding that out, eh?


This friend is not alone. There are a number of friends and relatives, including people who have known Amanda her whole life, who are aghast at the way Ted is treating her. They don’t speak out. Many of them have even withdrawn from Amanda because they are so disgusted by the situation.

I wish people had more courage. Granted, my sisters can be vicious. They are bullies. They will gang up on you.

So what?

Do the right thing. 

We need to shed a light on this unethical behavior of guardians. Thank you, Catherine Falk, for pegging away at it.

On September 24th, Amanda turns 50 years old. Hang in there, little sis. I’m not giving up.

Stop Guardian Abuse

Full Article & Source:
In Other News, Peter Falk’s Daughter is Still Chipping Away at Guardianship

Sunday, August 19, 2018

Man's death at group home illustrates challenges of meting out justice when suspect has intellectual disability

Click for Video
Herbert “Herbie” Rohloff wasn’t expected to live to 53 years old.

He was born with Down syndrome, and doctors said they did not think Rohloff would survive past his second birthday, according to relatives. As a teen, he wasn’t expected to make it to adulthood. As he reached middle age, his brother worried that the biggest threat to his life was the busy intersection outside his group home in the West Rogers Park neighborhood.

But his family never thought his life would end violently. Last October, a fight with another resident over Halloween candy turned physical, and two weeks later Herbert Rohloff was dead. Chicago police closed the homicide case by exception, meaning detectives know who committed the killing but aren’t pursuing charges because of the person’s mental capacity, said Anthony Guglielmi, spokesman for the department, in an email. The Cook County state’s attorney’s office declined to comment.

The homicide case, among hundreds in Chicago last year, was complicated from the start because of the suspect’s intellectual disabilities. The legal community has discussed for years how to mete out justice in such cases. Now an approach known as an individualized justice plan is gaining some traction as a way to hold people with intellectual disabilities accountable while providing alternatives to traditional forms of punishment. Last year, Illinois lawmakers agreed to create a task force to look at the issue.

Charging people with intellectual disabilities can be complex because it’s unclear whether they could formulate the intent to kill, said Hugh Mundy, an associate professor at the John Marshall Law School.

“Every criminal (offense), or virtually every criminal offense, required a mental state in order to prove the element,” Mundy said. “It’s not just the act itself.”

Rohloff’s brother, Michael, and his sister-in-law, Maria, have been grappling with who should be held accountable. They described him as someone who liked to eat fried chicken, listen to Prince and watch “Rocky” movies. They’ve filed a wrongful death lawsuit against Lutheran Social Services of Illinois, the organization that runs the group home where Herbert Rohloff spent his entire adult life.

“You know, I don’t think it serves a purpose for (the person of interest) to be put in jail because he will not understand,” Maria Rohloff said. “But he needs to be put where he can’t hurt anyone else.”

‘Killed over a candy bar’


Last November, Michael Rohloff got a call from his mother telling him Herbert Rohloff had been hospitalized in Evanston. He found his brother struggling to breathe, with a black eye and bruises to the head, Michael Rohloff recalled in an interview with the Tribune.

 
Michael Rohloff holds a childhood photo of his brother, Herbert, at his home in Indian Head Park. Michael said his brother "looked just like this except with a snowy white beard" when he was killed in 2017 by a fellow housemate at a group home. (Stacey Wescott/Chicago Tribune)

“He looked at me, his face lit up, like it always does, and he was like, ‘Michael,’” he said.

The last thing Herbert Rohloff told his brother was that his ribs hurt. He would spend the next few weeks at Presence St. Francis Hospital in Evanston, heavily sedated, before he died. He suffered his injuries Oct. 31 when another resident beat him up over Halloween candy, but he wasn’t taken to the hospital until the next day, according to the family and reports from Chicago police and the Cook County medical examiner’s office.

An autopsy determined Herbert Rohloff died Nov. 16 from complications of multiple injuries and from congestive heart failure, according to the Cook County medical examiner’s office. He had rib fractures and multiple injuries to his spine.

“You know, it’s ridiculous,” Michael Rohloff said. “Of all the things, I was sitting there worried about him living too close to Devon and Western because the traffic is hectic, and (there are) so many strangers in the area. And you essentially get killed over a candy bar.”

‘It’s not about pointing fingers’


There aren’t data on how many people with intellectual developmental disabilities have been charged with serious felonies, but The Arc, a national advocacy organization for people with disabilities, is trying to get funding to fill that void in research, said Leigh Ann Davis, director of its criminal justice initiatives.

There have been cases of those with intellectual disabilities being prosecuted for, and being victims of, serious crimes, Davis said. That’s why it’s important for police agencies and the courts to understand the needs of those with disabilities, she said.

“What we’ve seen happen is that law enforcement (officers) don’t decipher that there is a difference, necessarily, between people with mental illnesses and intellectual developmental disabilities, and how that’s important because they may need to provide different services for someone or they may need a different referral depending on what type of disability the person has,” Davis said. “And the more that they (officers) know about the person’s disability, the more likely they can de-escalate a situation.”

In Illinois, advocates for those with intellectual disabilities are working with local prosecutors to find a middle road that provides alternatives to traditional criminal punishment. Amy Newell, executive director for The Arc’s branch in Rockford, said the group is pushing for courts to use personal justice plans that lay out the person’s diagnosis, limitations and recommendations.

“It’s not about pointing fingers, shaming people or any of that,” Newell said. “It’s about having an open conversation and really doing what’s best and safest for everyone.”

Last year, lawmakers created a task force to examine how those with disabilities are confined in jails, how they are represented in criminal cases and how police interact with them.

 
Michael Rohloff said he was worried about his brother, Herbert, living near a busy Chicago intersection. His brother's fatal beating over Halloween candy was shocking. (Stacey Wescott/Chicago Tribune)

In Herbert Rohloff’s case, police believe a resident of the group home caused the injuries and the person was taken to a local psychiatric facility for treatment, said Guglielmi, the police spokesman. Police aren’t moving forward with any criminal charges because of the person of interest’s mental capacity, he said in an email.

Cook County State’s Attorney Kim Foxx’s office did not return multiple requests for comment.

Mark Heyrman, a clinical law professor at the University of Chicago Law School, said not pursuing charges in the case was probably a wise choice, because it would be difficult for prosecutors to secure a conviction if they couldn’t prove the person of interest comprehended what he did.

“He may have a limited understanding of what actually happened,” Heyrman said.

 
Herbert Rohloff, who had Down syndrome, was beaten during a dispute over candy by a fellow resident of their group home in Chicago's West Rogers Park neighborhood. (Stacey Wescott/Chicago Tribune)

A family seeks justice


The Rohloff family suspects a worker supervising the residents was preoccupied giving another resident a bath when the fight unfolded, said Craig Hoffman, an attorney representing the family. Even so, the family isn’t sure why Herbert wasn’t taken to the hospital the same day he was injured. In the lawsuit against the home, the family notes that Herbert Rohloff was taken to the hospital the next day and in a private vehicle by a worker rather than in an ambulance.

The home where Herbert Rohloff lived, in the 6200 block of North Artesian Avenue in West Rogers Park, remains open, according to a statement from Lutheran Social Services of Illinois. It opened in 1983, and many of the residents have lived there since then, according to the statement.

“At Lutheran Social Services of Illinois, we consider the people who live in our CILA (Community Integrated Living Arrangement) homes family, so of course we mourn the loss of any of these individuals as that of a family member,” the statement read. “Legally, the Illinois Mental Health and Developmental Disabilities Confidentiality Act precludes us from divulging any information on our residents.”

The civil case remains pending, and the family expects it could take years before it’s concluded.

Holidays and birthdays without Herbert Rohloff keep coming and going. This summer, Michael Rohloff had the words “my favorite” tattooed on his arm in the same font used in the “Rocky” movies.

Herbert Rohloff stopped intellectually developing when he was 5, and he couldn’t express himself beyond simple sentences. “My favorite” was something Michael Rohloff often heard his brother say, and “Rocky” was one of Herbert’s favorite movies.

Michael Rohloff also has found himself regularly wearing the T-shirt that he wore to the hospital the day his brother died.

“It’s odd what you connect and stay with,” he said as he teared up. “I was wearing this shirt when he passed, and I was just saying today, ‘I’m never going to get rid of this shirt.’”

Full Article & Source:
Man's death at group home illustrates challenges of meting out justice when suspect has intellectual disability

Thursday, August 16, 2018

Denton woman to receive health services after guardianship hearing

Margaret Danko, right, and her daughter Janis Danko giggle in their Denton home as they talk about Janis’ singing abilities.
A local resident with Down syndrome and a degenerative nerve disease may finally get the added care she needs, but it comes at a cost to her mother.

A Denton County probate court granted temporary guardianship of 44-year-old Janis Danko to Courtney Carey, the manager of Denton County MHMR’s Guardianship Program. Janis has several health problems including tardive dyskinesia, a nerve condition that diminishes control of the limbs.

She had lived with her 80-year-old mother, Margaret Danko, in their east Denton home, but now will reside in a local group home for people with disabilities. Carey said during her testimony that Danko will still be involved in Janis’ life, just not as the woman’s primary caregiver.

“We’ll take care of her, but we have to do it together,” Carey told Danko after the hearing.

In a July Denton Record-Chronicle story, Danko outlined her fight to get Janis into the Denton State Supported Living Center. The woman said Denton County MHMR hadn’t responded to multiple inquiries for help since February.

“MHMR has done nothing but argue and threaten,” Danko said in court on Thursday.

The agency, citing privacy laws, declined to comment for the July story. However, an employee refuted Danko’s claims in court.

MHMR employee Morgan Quinnelly said she and other employees met with Danko and Janis four times and had been involved with the family for the past seven months. On certain occasions, Danko got frustrated with the employees and told them to leave her house, Quinnelly said.

Virginia Hammerle, an attorney who was appointed by the court to represent Janis, noted that Danko has moved several times when she couldn’t get the services she wanted for Janis. Hammerle said Janis told her that she wanted to live in a group home with people her own age.

“Although I don’t believe Ms. Danko is intentionally acting against Janis’ best interests, I do believe the effect of her actions are not in Janis’ best interest,” Hammerle said.

Danko defended her decision to move and said her frustration stemmed from the convoluted process to get Janis into the State Supported Living Center.

“Yes, I’ve been a lot of places and you know what it was for? Janis,” she said.

MHMR officials said admission to the state living center requires approval from a probate judge and often is used as a last resort for people who can’t function in other settings. Byron Brown, the court investigator for the Danko’s guardianship case, said he believed Janis would do well in a less restrictive residential home.

Danko said she resisted giving any decision-making power over to MHMR, but Judge Bonnie Robison assured her that the agency would be under the court’s supervision.

“Everyone in this [court] room wants to help you and help Janis,” Robison said.

The court decision granted guardianship to the MHMR program for 60 days. A hearing has been set for September to appoint a permanent guardian. Danko’s neighbors said the woman has done well caring for her daughter, but realizes she has physical limitations because of her age.

“Whatever needs to take place should be a permanent solution, not a Band-Aid,” neighbor Caleb Lopez said. “I would start today, yesterday, six months ago when MHMR was first contacted.”

Full Article & Source:
Denton woman to receive health services after guardianship hearing

Monday, January 1, 2018

Advocate for disabled workers is 2017 CNN Hero of the Year

(CNN)"My children are not broken," Amy Wright insists.

Most parents don't have to declare their children's fundamental value, but after two of 2017 CNN Hero of the Year Amy Wright's kids were born with Down syndrome, it was clear that she would have to back them up every step of the way.
 
"When you become a parent of a child with special needs, you are instantly thrust into becoming an advocate," Wright explained. "Trying to make people see the beauty in their lives that we see." 
 
Wright's advocacy took the form of a coffee shop. She opened Bitty & Beau's Coffee in January 2016, named for her two children.
 
On Sunday, it was clear that Wright, Bitty, Beau and the 40 disabled employees at the Wilmington, North Carolina, shop have an army of supporters.
 
Wright was named the 2017 CNN Hero of the Year for her efforts to advocate for disabled people. The award is determined by online voters who selected Wright from among the top 10 CNN Heroes finalists. 
 
Wright will receive $100,000 to grow her cause. All of the top 10 CNN Heroes for 2017 will receive a $10,000 cash award. Donations made to each of their designated nonprofit organizations are also being matched up to $50,000.
 
"I am bringing this home to the 40 employees who work at Bitty & Beau's because they are my heroes. And most of all to my two youngest children, Bitty and Beau, who are my inspirations," Wright said, hugging her CNN Hero of the Year award. She had a special message for her children.
 
"I want you to know, because I know you are watching, that I would not change you for the world, but I will change the world for you."
 
After all, people with physical and intellectual disabilities can be judged by their appearance alone. When Wright and her husband learned that 70% of the disabled are unemployed, they decided to become a part of the solution -- for their children and others.
 
"It hit me like a lightning bolt: a coffee shop!" Wright said. "I realized it would be the perfect environment for bringing people together. Seeing the staff taking orders, serving coffee -- they'd realize how capable they are."
 
Wright was presented with her top 10 CNN Hero award by actress Diane Lane, who said: "She opened a business where people like her son and daughter could work and shine."
 
Sunday's CNN Heroes tribute show was a night of shining stars, salutes and tears -- and a few laughs, too.
 
Hosts Kelly Ripa and Anderson Cooper kicked things off live from New York's American Museum of Natural History with a unique rendition of "Wind Beneath My Wings," complete with jazz hands by Kelly. 
 
Presenters Christian Bale, Diane Lane, Alfre Woodard, Christopher Meloni, Gaten Matarazzo and others added star power to the night.
 
Singer Andra Day and rapper-actor Common serenaded the crowd with their hit "Stand Up for Something" to wrap up the inspirational evening.
 
"This is emotionally taxing," joked comedian Jim Gaffigan.  (Click to Continue)

Full Article & Source:
Advocate for disabled workers is 2017 CNN Hero of the Year

Thursday, September 29, 2016

Coming Home?

Sandra Wood has spend the past four months recuperating from broken bones after a fall. Photo by Jeff Prince.
When Sandra Wood saw Billy Mittell earlier this month, the mute man with Down syndrome was making a sign created by putting his fingers together to fashion what looks like a roof. It’s the sign for “home.” Mittell was telling Wood he wanted her to take him back to where they lived for 30 years. It’s the same sign he was making the last time they saw each other back in January.

Mittell wasn’t born to Sandra Wood, but he latched onto her strongly once she became his legal guardian in 1986. Mittell, who spent his early years living in group homes with other mentally challenged patients, was thrilled to be taken in by Wood and given his own room in a real house. The woman he called “mother” loved him as if he were her flesh and blood.

But plenty has been broken in Wood’s life recently, most notably her heart. More literally, you can include two legs, an arm, and several teeth. It’s been a rough summer following a horrible winter.

The Fort Worth Weekly introduced Wood to readers in a 2016 cover story that described how a probate court judge removed her as Mittell’s primary caretaker (“Torn Apart,” March 16).

The 71-year-old Fort Worth resident was distraught after Adult Protect Services workers took Mittel in January, put him in a group home, and prevented Wood from seeing him. Mittell has no known relatives and had long relied on Wood for his basic needs and protection. They became a tight-knit duo that spent most days venturing out to eat lunch, playing bingo, visiting friends, feeding ducks at parks, and doing most anything else that was fun. Wood had carted Mittell to the same barber twice a month since the 1980s, and she even paid for regular manicures and pedicures for Mittell because he enjoyed them so much.

At a bingo hall on January 3, Mittel stumbled and fell in a parking lot. Wood took him to a hospital. Mittel’s injuries were not serious. And he had gone years without any health problems under Wood’s care. But a hospital nurse questioned Wood’s ability to care for Mittel. A swarm of social workers, medical professionals, and probate court representatives descended on Wood in the following days and quickly removed Wood’s guardian status. Mittel was gone.

Court officials will not discuss ongoing cases, but Aaron Shutt spoke to me about Wood and Mittell. Shutt is a board member of Guardianship Services Inc., the agency composed of case managers assigned by probate court judges to make decisions regarding a client’s housing, medical treatment, and money management.

“I understand that this is her son by all practical purposes,” Shutt said. “It is not our business to keep families apart. But our duty is to do what is best for the ward, and that is a delicate balance sometimes.”

In 2015, the Texas Legislature established the “least restrictive services” law, an act that more stridently requires guardianship to be considered as a last resort. Still, probate judges have shown in the past that they can interpret laws and dole out justice in most any manner they choose, including making decisions in closed hearings without family members being present and stripping defendants of their right to hire their own attorneys.

Wood began an immediate campaign to re-establish herself as guardian and get Mittel back home. She discovered what many people in Tarrant County have learned in the past 25 years –– local probate courts have established a network of medical care providers, attorneys, bankers, investigators, and professional guardians to take control of family situations gone awry. Many of those families say that the probate judges, however, are most interested in removing people from their families. Often times, group homes and other care facilities receive funding based on how many patients they serve. Banks are paid to watch the money. Attorneys and investigators are paid for their appointments. Many of those same people support the judges financially during elections.

Wood discovered that none of the social workers wanted to talk to her, much less tell her where Mittel had been taken. Court officials told her to lawyer up. Wood has little money to pay for a long court battle against a powerful probate judge and a well-oiled guardianship system.

Wood, overweight and diabetic, became distraught. Her appetite waned. She lost 50 pounds in three months. Her blood sugar levels fluctuated, and she became dizzy at times.

Wood called me on May 11 and said she had reached a caseworker by telephone and been given an opportunity to visit with Mittel in person at his group home later that week. Wood wanted me to go with her. I agreed but didn’t hear back from her. My phone calls to her went unanswered.

Three months passed. On August 24, I was sitting at my desk, thought of Wood, and called her cellphone number. She answered from a hospital bed, where she had been lying since the day after we had last spoken. Back in May, she had awakened, climbed out of bed, and headed toward the kitchen.

“I was walking down the hall thinking, ‘Should I make scrambled eggs or hard-boiled eggs?,’ and two days later I woke up, and I was lying on the floor,” she said.

A married couple and their two young children who live next door to her South Fort Worth home had come over to check on Wood. They found her lying unconscious.

“When I opened my eyes, all of them were standing over me,” Wood recalled. “I was bleeding from the mouth because I had knocked out a bunch of teeth. I woke up spitting teeth. The little boy picked one up and said, ‘Do you have to take this to the doctor?’ I said, ‘No, just put it in the trash.’ ”

The neighbors called an ambulance, and an EMT discovered Wood’s blood sugar was dangerously low. Doctors at Texas Health Harris Methodist Hospital treated her fractures, but Wood hasn’t been able to visit a dentist and still has half-broken teeth in her mouth.

Wood said her collapse is a direct result of having Mittel stripped away from her.

“I had been crying all the time and was upset all the time,” she said. “That kind of stress kills you. I miss [Mittel] so much.”

Once Wood began recovering, she resumed her calls to the probate court and its guardianship workers, trying to arrange a visit with Mittel. But her messages went unanswered, she said.

Probate court investigator Jeffery Arnier had sent a letter to Wood in May saying that “there is nothing preventing you from visiting [Mittel] and being a part of his life.” Arnier closed the letter by writing, “To my understanding, Guardianship Services, Inc. has not restricted you from access to [Mittel] and continuing to be a part of his life.”

Wood, however, couldn’t get anyone at Guardianship Services to talk to her, other than when she was told to get a lawyer.

I visited Wood at her hospital room on August 26 and found her in good spirits despite being confined to a wheelchair. She had lost another 50 pounds on top of the previous 50 pounds and looked like a different person than she was nine months ago when Mittel was removed from her home.

“Wow, you’ve lost weight,” I said.

“Well, that’s one way to lose it,” she said.

A court representative had told Wood that someone with the group home would be bringing Mittel for a visit on September 2 at Renaissance Park Multi-Care Center, where Wood was recuperating in west Fort Worth. Wood, however, was not given a specific time when Mittel would arrive. I wanted to document the reunion with pictures and a story and asked Wood to call me as soon as Mittel arrived. I could drive to Renaissance within about 20 minutes.

Wood called that afternoon to say Mittel had just arrived and for me to come quickly. I jumped in my truck and drove straight there. But by the time I arrived, the group home leader had already taken Mittel away. The visit had been a short one.

“They came in and weren’t here 20 minutes,” she said.

Scott Gordon, a patient at Renaissance, was sitting in the lobby and described seeing the reunion between Mittel and Wood. Many of the Renaissance residents came out of their rooms to see the reunion, he said, because everyone had heard Wood talking about the reunion for days.

“He went right up to her and hugged her,” Gordon said. “He was excited to see her. You can see the connection. You can’t doubt it. It is very evident that he loves Sandy.”

Mittel was unhappy when the reunion was cut short.

“He didn’t want to leave,” Gordon said.

Wood hated to see him go. But she was thrilled at the same time. She had finally been able to hug, squeeze, and talk to Mittel for the first time since January.

Wood is recuperating at home now and requesting another visit from Mittell.

Shutt, the guardianship board member, doesn’t think that will be a problem.

“It is my understanding that they were setting up a schedule whereby there could be regular visits between” Wood and Mittell, he said.

“The intent of Guardianship Services is to allow access and visitation.”

Wood, though, wants more than visitation. She is trying to raise money to hire an attorney to become re-established as Mittel’s guardian. She wants Mittel to move back into his room, which is still furnished and decorated like it was on the day that social workers took him away.

“He wants to be with me,” Wood said.

He wants to be “home.”

Full Article & Source:
Coming Home?

Sunday, July 17, 2016

County Governments Target Down Syndrome Adults and All Vulnerable People


The brutal treatment of a Down Syndrome man in a Bethlehem, PA, USA, Community Options Group Home exemplifies what our Family and all Northampton County Families have known for years and decades: County Human Services and their provider agencies severely abuse children, the disabled and the elderly.

 http://www.wfmz.com/news/news-regio...

Northampton County, PA, USA Executive, John Brown, dares run for PA Auditor General while his Administration reaps millions in unaccounted for federal money that includes the abuse of people with Down Syndrome.

Northampton County resident Ron Shegda echoes the horrors of this horrendous report about a disabled man through Community Options, Inc. and likely funded by Northampton County. “Our Sister with Down Syndrome was bribed away from her happy home “to see a lady with a puppy” 5-1/2 years ago by County employees—the oldest trick in a predator’s book—and I still don’t know where she is. Our Sister has been under 10 different roofs as we trace these events—and we know she has been been made black and blue numerous times, been put on psychotropic drugs, and also hospitalized for tests under Community Options for abdominal injuries. But everything is always covered up.”

It’s not credulous that Community Options reports “all state authorities have been notified.” These authorities do nothing except keep cutting checks to places like Community Options, active in 26 States in the USA.

Shegda continues, “Dr. Stephen Krason and 6 eminent scholars document in their recent book, Child Abuse, Family Rights, and the Child Protective System, how 2 million American Families are “falsely accused” every year by “social workers who lead disordered lives” and work for an “evil” system for the sake of unaccounted for federal Title IV-E and other government money. It’s a cozy racket for making money by dividing Families and abusing the vulnerable, despite any good that is accomplished. “Just compare the photos here of our Sister happy with her Family versus apprehended by government!” Shegda states that he has contacted Community Options and Northampton County Executive John Brown numerous times about violations of their Family’s Civil Rights, but it always falls on deaf ears with no response. “It is a violation of State Law that I don’t know where my Flesh & Blood has been sequestered all these years, nor that we are not allowed to freely see Each Other. When I saw my Sister months and months ago, she hung her head and said she is ‘not allowed to use the telephone’—also a clear violation of State Law.

The original apprehension was based on perjury by a nest of devious caseworkers / supervisors, and there has never been an occasion for defense. “Evil knows how to flow downhill and exploit innocent people,” observes Shegda.

Community Options, Inc. in the Lehigh Valley should have their license immediately revoked, be closed down, and Loved Ones returned to their Families like Esdras in this report above.

So far, at least 4 County Human Services agencies have had their licenses downgraded to the barest functioning level in the last year for severe abuses and irregularities against vulnerable people taken from their Families. Shegda concludes, “When 150 Abused PA Families and Witnesses wrote to the Secretary of Human Services in Harrisburg, Ted Dallas, last fall, his blithe response was to refer us back to the very County bureaucracies that have been abusing us.” Shegda estimates PA has wrongly sequestered 15,000 children and broken their Families with severe traumatization all around—let alone the Disabled and Elderly who have been wrongly maraudered and their Families destroyed.

Full Article & Source:
County Governments Target Down Syndrome Adults and All Vulnerable People

Friday, November 6, 2015

Rude Woman Humiliates Worker With Downs Syndrome. The Store Cashier Shocks Her By Doing This


This story comes from a shopper who recently encountered an extremely rude and insensitive woman. The rude woman was annoyed because an employee with down’s syndrome was packing the bags carefully but taking longer than she wanted. She started to humiliate him in front of everyone until the cashier suddenly had enough…
dsbagger
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Full Article & Source:
Rude Woman Humiliates Worker With Downs Syndrome. The Store Cashier Shocks Her By Doing This

Sunday, October 26, 2014

Ridgefield mother claims abuse in court-appointed guardianship


Collette DiVitto & Rosemary Alfredo

RIDGEFIELD -- Following an acrimonious divorce, Rosemary Alfredo and her ex-husband couldn't agree whether their then-23-year-old daughter, Collette, who has Down syndrome, should move with her to Boston.

Alfredo felt her daughter, who holds a job and graduated from a special college for students with intellectual disabilities, could live independently there, with help from more comprehensive Massachusetts social services.

Her father disagreed, arguing Collette should be placed in a group home in Ridgefield.

So the couple went to Probate Court, where Judge Joseph Egan appointed a guardian ad litem, Danbury attorney Sharon Dornfeld, to represent Collette's interests and make recommendations to the judge about the move.

Alfredo at first welcomed the appointment.

"I thought it was better than dealing with my ex-husband," she said.

In May, Alfredo found a place in Boston, hoping to move there permanently with Collette. In July, the court allowed Collette to stay there temporarily, with a final decision pending an assessment by state-appointed experts.

But on Oct. 10, the judge gave Alfredo 10 days to return Collette to Connecticut to live with her father, Daniel DiVitto, in Ridgefield.

"The court is trying to take my daughter away against her will and put her somewhere where she doesn't want to be," Alfredo said.

Dornfeld refused to comment on the case, as did Elizabeth Sharpe, a Greenwich attorney appointed as Collette's limited guardian. Egan also declined to comment.

Alfredo has decided to disobey the court order. And she is fighting the guardians, who she believes are no longer acting in her daughter's best interests. She has racked up more than $50,000 in legal bills in a system she says is violating her daughter's civil liberties.

Collette is thriving in her new environment, her mother said. She works as a teacher's aide in an elementary school, goes to Zumba classes, takes self-defense lessons and has many friends.

Alfredo said Collette does not want to return to Connecticut, and she believes her daughter's wishes should be respected.

Besides, she said, the court already has access to three psychological evaluations that prove Collette's competency.

In one of those evaluations, she is described as "an articulate and sociable young woman who demonstrates a broad range of skills and resourcefulness which far exceed what one might expect on the basis of her tested IQ."

Alfredo said Collette even asked Egan in an earlier court appearance to replace Sharpe because she doesn't like her, but the judge refused.

"This is not about a mother's fight for her child," Alfredo said. "This has to do with a young girl with Down syndrome whose civil rights are being violated. She has the right to live the life that she wants and nobody is letting her do that."

Barbara Jackins, an attorney with the Special Needs Law Group of Massachusetts who is familiar with the case and with Collette, characterized Sharpe's approach to the case as "overly legalistic."

"This seems like a runaway guardianship case," Jackins said. "It's just bewildering how anyone would make (Collette) move back to Connecticut, away from a package of services in Massachusetts, and go live with her father, who she doesn't get along with."

Alfredo said she is willing to take whatever risks come from defying the court order, because she feels it's what Collette wants.

"My daughter won't go," Alfredo said. "And I'm not going to physically force her."

Full Article & Source:
Ridgefield mother claims abuse in court-appointed guardianship

Wednesday, July 24, 2013

Va. guardianship case tests rights of disabled


A guardianship case for a Virginia woman with Down syndrome is testing the rights of adults with disabilities to choose how they live.

The Washington Post reports (http://wapo.st/12cgGZa ) that 29-year-old Margaret Jean "Jenny" Hatch has been fighting for nearly a year for the right to move in with friends who employed her at their thrift shop. Her parents want her to remain in a group home.

Hatch learned to read at the age of 6, has volunteered on Republican political campaigns and held a part-time job at the thrift shop for five years. She also has an IQ of 52 and tends to shower affection on strangers as well as friends.
    
The case, which will continue on July 29, has captured the attention of advocacy groups and Hampton Roads residents, who have turned the phrase "Justice for Jenny" into a mantra. For many, the legal fight is about not just who Hatch is but also whom she represents: anyone born with an intellectual disability or who ends up with one, through either age or mishap.

"There is a default assumption that people with intellectual disabilities and people with mental illness need people to make decisions for them, that they can't, with aid, fend for themselves. Which just isn't true," said Jennifer Mathis of the Bazelon Center for Mental Health Law, one of several organizations that have expressed interest in the case to the court.

Hatch moved in with Kelly Morris and her fiance, Jim Talbert, after a family friend she was staying with lost her apartment. Hatch's father, Richard Hatch, lives in North Carolina and told Hatch's case manager he could not give his daughter the level of care she needed, court records show. Her mother, Julia Ross, and stepfather, Richard Ross, said in the case manager's report that Hatch had a contentious relationship with her mother and couldn't live in the home.

Both July Ross and Richard Hatch declined to be interviewed.

While living with Morris and Talbert in 2012, the couple learned Hatch had a better shot of receiving a Medicaid waiver, which would entitle her to in-home and community-based services, if she were homeless. So in May 2012, they convinced her to move into a group home where she stayed until August, when the Medicaid waiver was approved and she moved back in with the couple.

Two days later, the Rosses filed for guardianship. A Newport News judge placed Hatch under temporary guardianship and she has rotated between group homes and living with the Rosses.

The Rosses want the right to decide, among other things, she Hatch lives, whom she sees and what medical treatment she receives.

Read more here: http://www.miamiherald.com/2013/07/22/3514414/va-guardianship-case-tests-rights.html#storylink=cpy

Full Article and Source:
Va. guardianship case tests rights of disabled

See Also:
'Justice for Jenny' Down syndrome guardianship case headed for trial